The Future - all the positive things to look forward to :)
6 years ago
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- 6 years ago
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Things you're looking forward to...
Comments (46)flyleft, there are only a couple of doctors in the US doing this particular procedure, but you could contact Dr. Greenspan's office (via that site I linked; ask for Lois, his assistant - if you want my full mundane name to use as a reference, email me if you don't know it already) to see if there is someone closer to you. Dr. G and the neurosurgeon he works with to do the permanent implants are the most experienced with it, have done the most studies and procedures over the longest period of time, so people do come in from all over the country to see Dr. Greenspan. It's a relatively new use of an older technology, IIRC a couple of thousand have been done worldwide - I'm more or less one of the guinea pigs to get this more widespread. It was just sheer luck that I live nearby and that a rheumatologist dumped me in Dr. Greenspan's lap as a "hopeless case". I did not get total relief from pain, although some lucky folks do. The vast majority of patients (close to 90%) get at least 50%. It works best on nerve-based pain so "mechanical" pain like plain ol' osteoarthritis and such isn't likely to get as much effect (and it doesn't do a damn thing for cramps! *wry chuckle*) and I got a "meh" response on migraines. Nor does it have the slightest effect on acute pain at all. My overall average pain levels dropped by about 2/3 which is considered an excellent result. On the standard 0-10 pain scale "my normal" ranges from 5 (a good day, WITH meds) to an 8 (again, WITH meds); with the trial neuromodulator after about 2 weeks of healing and adaptation a 5 was a "bad day" and I was averaging a 3. My best day was a 2, which I then promptly went and made into a 5 by having WAY too much fun LOL! I went from 4 strong pain pills a day (and still not being able to function past about 20% of normal) to 2 (but with increased activity levels) and a couple of amazing days with just 1 pill broken into two doses supplemented with a few Advils. I had the trial unit put in June 15th and taken out July 30, and lemmetellya, it has sucked big time since. Major, major flare. I think I've just plunked down on the nearest piece of furniture or even just the floor and bawled more in the last month than I did in the preceding decade. I had hysterics last week when I finally broke down and took my cane back out of the closet. I'd honestly come close to forgetting just how bad it was - I mean I knew it was bad, but... THIS bad? Really? I didn't "feel like my old [healthy] self" because it didn't take away all the OTHER crap like the neurological and cognitive issues, the GI/urinary stuff, the extraordinary fatigue and weakness... basically the way I put it to the doctor was that I felt like I did about 13-14 years ago when I "just" had CFS, before the fibro and the various neuropathies reared their ugly heads and my back gave me its final "f-you, I quit", but dropping the pain so much lightened the total load on me. Congrats on your first "rebirthday"!...See MoreOrganizational things I'm looking forward to
Comments (9)YAY Janet! I'm thrilled you got the home you wanted! Lynn, how do you like having a microwave in drawer form? I think the favorite thing in our home is the laundry on the second level with the bedrooms. I have a few more things to do to it before I take pix to share how I've organized it's space. The only way it could be better was if empty hangers appeared magically when I needed them. I also love having a walk in pantry for storing all our food and larger season pans, crock pots and toaster oven. Another part of our kitchen I love is that on one side of the cabinets are to the counter. Two having outlets in them. One has the coffee pot and blender. The other has the toaster and mini food processor. We also have a huge attic for storage. Right now we are using the basement since we've not finished the flooring in the attic yet. With the cooler weather coming we'll be doing that soon. Then we'll be able to spread out our wood work shop that's in the basement. Our garage is six foot deeper than a standard two car garage giving hubby room for a workbench, four large storage cabinet, two smaller ones and room to store our rider mower and huge snow blower you need out in the country. Oh, and each bedroom has it's own bathroom with vanity for storage (ours has twelve drawers) and their own walk in closet. Weird as this sounds, there's no linen closet. For some reason when I was making changes to the plans to make it fit our lifestyle more I never noticed until it was too late. I found a solution that I like even better though. I store each rooms linens in an under the bed roll out storage container....See MoreWhat are you looking forward to this year?
Comments (26)This will be our 3rd year at our house as well... I always look forward to the leap! But at the end of summer I moved a bunch of plants. I had haphazardly planted lots of stuff and decided to move things more by color. Our house is beige so I decided the yellows, oranges and reds should be in the beds around the house and the pinks, purples, blues, etc. are now in the long backyard bed. That's going to be my more fun area where anything I want to try can grow. I'm looking forward to all of it!...See MoreWhat are you looking forward to this winter?
Comments (56)Altho not fond of winter here, I plan on doing all those little projects that never appear to be completed. We are planning on close to some heavy snow storms, accumulating close to 6 plus feet, through out the winter. I am hoping to find a fix for this crippling Rheumatoid, and to be able to tackle my snow shoes once again and have some shoeing time on a bright sunny day. The basement, especially "his" side needs a really good sorting out. My antique kitchen tool collection needs a good cleaning and sorting....might part with some of them, might just move them all around. Clothing in closets, rubbermaids and drawers, needs to be sorted, repaired, given away, whatever. My crafting project box needs a really good sorting out...what WILL be done, what will never be done, that sort of stuff. And, if I accomplish and or all of that, then I'll watch a new program or read something interesting!...See More- 6 years agolast modified: 6 years ago
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