Oh, I'm so very sorry to hear of your very difficult condition. I'll keep you in my thoughts.

Holy cow, that sounds awful!!! Good luck and keep us posted if you don't mind. I recall a colleague battled something similar for a very long time....it sounds unpleasant. How do you feel, in general? Are you feeling sick overall, or is it confined to your poor sinuses?

Sorry to read this... I hope you are able to find the solution and that healing comes soon. It would be good to understand the whole thing, but let's hope at a minimum it resolves and doesn't come back.

So sorry to hear of your struggles! Feel free to vent away, Sounds like your case is pretty complicated, but they are on top of it.

I recall when DH was bitten in his hand by our cat who wasn't feeling well at the time, Took him 6 weeks of antibios, including shots and 2 weeks of daily IV infusions where he went to the hospital every day... they added the antibios through a picc line. I don't recall how many antibios he was on, but so thankful he had no bad reaction to any of them. We were fortunate to have a excellent infectious specialist on the case.

Sending you thoughts of calm and healing, patience and comfort. This too shall pass.

Wow that sounds awful, and a really long time to be fighting this. Would intravenous antibiotics be more guaranteed to wipe it out? If so, I’d be asking to take a little vacation. But that’s just me.

I am so sorry you’re going through this. It sounds really rough. I’m sending hope for strength and that the latest mix of meds does the job.

this sounds awful and very frustrating. hoping that you will turn the corner very soon and healing will be right around the corner.

You poor kid. Its just so awful to go from doctor to doctor and the problem is not resolved. The pill up the nose sounds just awful. I hope the meds kick in soon. Wishing you well.

Im sorry this is happening to you. There's the physical anquish plus the mental frustration of the whole thing. I sure hope things improve soon. I know very well the "diagnostic dance." Been there. Still there.

Thanks for letting me vent

The three physicians work in conjunction with each other. I keep getting kicked up the chain since it is getting more complicated. Only one diagnosis. It's the sphenoid sinus behind my left eye that was pus filled, just under my brain. Last CAT scan, it still hasn't broken through the membrane, hence the use of pills. If they thought hospitalization was necessary I wouldn't fight it. It hasn't reached that level so far.

Boy, it's awesome feeling like I have a cold for months now.

Oh, ICK! You poor dear. Is there anything like a visiting nurse service that could give you IV antibiotics at home? You really, really don't want to be inpatient with all the stuff floating around in a hospital right now.

Have you had radical sinus surgery? Why won't this DRAIN?

I had the major surgery a decade ago. This was a minor revision. There was a "ledge"the surgeon chiseled away so it would drain.

I'd worry myself to death if I was worried about what was "floating around" in a hospital. My full-time job is at a hospital. This isn't from that, it's not contagious. Sinus issues are my burden to bear. I don't have heart disease and I don't have diabetes. But sinus infections, I know, am intimate with

I am so sorry you are enduring this for so long. Sinus issues are no joke and many don’t get the treatment needed for issues. Glad you are and it sounds as if the care is very good, but these things are very stubborn.

What a terrible situation and so scary. Vent here any time. You know we are all sending you healing thoughts.

I'm so sorry you are dealing with this health Issue, Rob. It sounds painful as well as annoying. I wish for the best outcome quickly.

Also sorry to learn this - wishing you healing ASAP.

Best wishes for a speedy recovery.

((((Hugs)))

Rob, of course you're frustrated. You've been going through this for a very long time. At least it appears you have the best looking after you. I hope they come up with the best plan for you and it is solved soon. Hang in there.

That sounds so unpleasant, Rob. I hope it works quickly for you.

Rob, I hope this begins to resolve quickly for you. It is a lot to have to endure.

I refused to get an implant after having a tooth pulled because a sinus lift was involved and there was NO WAY I would go through that. That and the fact that because there was that added factor, the cost was $5,000 for one tooth which I didn't have and even if I was indepently wealthy, I would never go through it.

You know we are always down for a good vent.!

I'm so sorry you are going through this and I'm so glad your daughter can make you laugh. This sounds like a rough one. You sound like a terrible candidate for a coke addiction.

Wish it was as easy for you as my mystery sinus pressure five years ago after coming back from a Florida vacation. For a month I had splitting sinus pain above my eye, but no cold. Thought it was a mold reaction and tested my house, did everything to figure out this pain. I was stretching in front of the TV one night and when I folded over to touch my toes a gush of water flooded out of my noise and my pain vanished.

In a rare spontaneous moment on vacation, I asked my husband to throw me as far across the pool as possible. I landed with a splash and got water up my nose. I think the pressure from flying lodged it in there good. It just took five weeks to come back out!

Wishing you all the best and a speedy recovery, rob.

So sorry to hear this hasn't been resolved yet, it sounds miserable. Sending good healing thoughts your way...

Rob - wish I had a magic wand to wave and make this misery disappear. Take your meds (as unpleasant as they are) and hang in there. We're all hoping you get relief soon.

Gad! I sure hope the latest will do the trick. I really feel for you. Good luck

patriciae

As familiar as I am with sinus infections, I had never heard of this type. I can hardly bear to think of your discomfort and pain. Best wishes for you!

Rob, it's been 4 days since you last posted. Are things improving? I really hope you are making some progress in healing.

Tomorrow is my follow up with the surgeon. I hope he says that everything's perfectly fine, but I would assume he's going to do a culture to find out definitively, and that will take days!

Sending up prayers and keeping my fingers crossed for you.

Good luck Rob!

Hoping you get some good news from doc

Rob, I thought of something I had forgotten about. Did your doctor advise you to use distilled water with your sinus rinse? I learned a while back that you should absolutely NOT use tap water for this purpose. There are too many contaminants in tap water to put any up your nose. I think you might be able to boil it, cool it and use it, but not sure of that. Most doctors recommend using slightly warm distilled.

I got pretty good at warming the distilled in the microwave just enough seconds without having to let it sit and cool before adding the med.

I hope yiu are getting better.

Yes, I've always used distilled water. Thanks for the reminder!

I did not get to see my physician today, because he called out sick. I do happen to know that the super flu is going around. I hope that's not what it was! I'm rescheduled for Wednesday, and if they move it again I won't be surprised.

Still not solved. New antibiotic. One final time. And if it doesn't work, I will go farther up the chain, to the Chair. A specialist at the specialties. I was already in otolaryngology, and surgical, this one specializes in nasal. I could have gone up sooner, but I just didn't think it would persist (I managed to pay $7,177 in out of pocket this past year for dental and medical, after coinsurance and deductibles).

I can't believe it has gone on this long. It shouldn't take two surgeries and eight antibiotics, but that's my body's fault and nothing else.

Any use in going to an infectious disease specialist? An immunologist? Are they culturing things before throwing antibiotics at it? Is it definately a bacteria and not a viral infection? These might be stupid ideas. Just spitballing because it sounds frustrating as hell. I'm so sorry for what you are going through.

I'd also ask your docs to consult with docs at other instututions to see if anyone else has ideas. I know you said you are at the best hospital in a multistate area. Is it a university teaching hospital? If so, they should be interested in your case and conferring with others.

I'm so sorry you are going through all this.

I'm reminded about gut biome and one gal who had chronic diarrhea and nothing helped. They finally did a fecal transplant from her husband and it fixed her up. Now it's a treatment option for chronic gut infections.

Another guy who had a chronic ear infection in one ear and everything they tried didn't work. Finally he fixed it himself by putting wax from his good ear into his bad ear.

So I can't help but think your sinus biome is so messed up from all the anti-bios you've been treated with that it can't get healthy. Is there such a thing as a nasal biome transplant? Where you can get mucous from a healthy nose transplanted into yours and see if it helps? I'm no doctor or anything, but I'm just thinking outside the box, trying to think of a solution for you.

I'm so sorry you're going through all this. I hope they can find an answer and you can find a way back to health. I can only imagine how miserable all of this is for you. Sending you thoughts of healing and strength.

ETA: Apparently it's a thing! https://www.sciencedirect.com/science/article/pii/S0966842X24003263

Actually, I typically avoid all antibiotics. I don't want to build up a resistance. So that's how I got here. I should've gone sooner. Yes, they've cultured. Kicking it up to higher ups is the answer in this case. I'm making them wait for one more run. He admits this is frustrating him that he can't fix it for me, and he has ideas in his back pocket. He's shared them all, and we're making choices together. This is a bad time of year for my allergies, so it's hard to tell what is concomitant, and thus, the one more try to get over the hump.

Beyond frustrating for both of us. I should say.

What a frustrating mess. I sure hope there's a solution fo you soon!

A bacterial sinus infection can develop when a viral infection causes the sinuses to become blocked and bacteria begin to grow inside the sinuses, and these bad bacteria have been bothering you for so many weeks! Given the latest culture I hope your doc pulls out his best treat for your infection. The infection is located in the sphenoid sinus, which is behind the eye, near the brain. It sounds like it’s a precarious spot, and that’s likely why the doctors are being extra cautious, trying to prevent any further complications.

If they have tried many rounds of different oral antibiotics and found the oral drugs not effective, the next step would be hospitalization and intravenous antibiotics. If all fail then nasal microbiota transplantation (NMT) may be looked into, as this is experimental and not a standard or first-line treatment for acute sinus infections.

All those antibiotics, especially when taken over a long period of time, can really disrupt the balance of good bacteria in the gut. Since gut health is crucial for overall immunity and well-being, taking steps to support it can definitely be helpful to fight off the infection along with drug treatment. If the doctors’ orders did not include probiotics, Zinc, Vitamin-C, D for immunity support, I would discuss with the doc.

The fact that you have a team of specialists working together is a good sign, and it sounds like you’re in very capable hands. But it doesn’t make the process any easier to endure, and I imagine it’s emotionally exhausting to feel like progress is slow, especially when it’s a deep sinus infection and the symptoms are so persistent. So yes it’s frustrating.

So sorry - wishing you relief going forward.

FWIW, I went through a period in my life with constant sinus infections and can only imagine the pain and discomfort. Mine were always accompanied with depression and brain fog ☹️

All I have to do is look at a bottle of antibiotics, and I get a raging yeast infection. Ugh.