What is the syndrome, ”Stiff Persons’ Syndrome?”

http://www.cidpusa.org/stiff%20person.html

https://mmcneuro.wordpress.com/2014/02/12/stiff-person-syndrome-a-misleadingly-flippant-name-for-a-serious-disease-2/

I am hoping for the best for this warm talented singer and her sweet children.

How awful for her and her sons.

What a poorly chosen name. It seems like autoimmune conditions are on the rise, or perhaps if being better understood, are more common because of now being correctly identified and reported. If on the rise, I wonder why.

I see an alarming amount of auto immune conditions among my friends, and their children. And some of these conditions, are doozies. I hope we sort out what is going on soon.

My guess is pollution. Think of all the products that exist today to treat even minor ills not widely suffered in the first world 50 years ago.

From the NIH…

https://pubmed.ncbi.nlm.nih.gov/34957554/

tj

So sad to hear this about anyone; what a dreadful sounding condition. Chisue, in addition to pollution, I would suppose plastics, pesticides, flame retardants that were added to furniture and children's clothing for many years, certain food additives, and probably so many other things that are supposed to be benign. I'm not a conspiracy theorist, but one does wonder.

I have 5 autoimmune diseases...so many are having them and so few doctors know how to treat them! These diseases attack our good cells. They are supposed to be passed on through families.

I saw the sad news about Dion earlier. Reportedly, her condition is extremely rare - something like just a few out of a million, IIRC.

Science keeps advancing and much more is now known that wasn't previously. Even scientists wonder if we're seeing increases, or just more and better identification.

And I can't help but wonder whether aftereffects of COVID may be a factor for some people.

Plllog wrote:

“They are supposed to be passed on through families.”

I don’t think directly. There are some (?) haplotypes that seem to suggest that a person with certain ones may have a greater risk of acquiring certain autoimmune conditions. For example, the B27 human leukocyte antigen is often associated with some autoimmune conditions. The HLA B8 is another. As I ”understand” it, the presence of these or other HLAs doesn’t indicate a diagnosis, but some antagens or genetic components may be found more frequently in associate with autoimmune diseases.

Some autoimmune syndrome or diseases seem to frequently (can frequently) overlap. As I understand it, a person with Rheumatoid arthritis (RA) or Lupus (SLE) may also have Sjogren’s Syndrome or Raynaud’s (or other). And,I suspect that because of the varying degrees of severity and the complex array of other autoimmune conditions, and the lack of some clear cut diagnostic tests and results, that some conditions don’t get noticed. And maybe some patients don’t report various symptoms.

I used to get this odd phenomenon (?phenomena) where a certain section of my forearm, close to or over a vein, would be painful or feel fiery. I could run my finger along the arm over the vein and it would cause pain there and nowhere else. I'd get this off and on for years, but never said anything. One gets to detect how reporting or even commenting on these things might get perceived. It was not a show stopper, so I didn’t feel it was worthwhile to comment about it. I’ve also had my feet turn blue-purple, but never to the extreme of out and out Raynaud’s. I just tried to keep my feet warm and so on. It’s not as though there was any remedy for any of these mild or fleeting phenom.

Plllog, I’m sorry to hear that you have several AI related conditions and hope that your comfortable and managing.