WWYD: Dementia and Surgery
runninginplace
7 years ago
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blfenton
7 years agotishtoshnm Zone 6/NM
7 years agoRelated Discussions
Dementia/Alzheimer's
Comments (17)You have a challenge for sure and yes some things need to be done. But a little dust in the home isn't something I'd jump up and down about when he's out driving. Establish your priorities. First things first. Laws of course vary from state to state so you need to do some research. Here in MN, a guardianship is not an easy thing to get. A Conservatorship is far easier and gives most of the power that would be needed here from your description so far. It would enable you to help with finances, etc. I'm not sure what your "draft" system is, I'm assuming it's some sort of an automatic bill payment. That can be OK if someone is monitoring it. He's still going to be susceptible to the phone scams, disreputable family members, neighbors, and others who prey on this type. Driving. You should get a statement from the doctor on his ability to drive. Put it in the doctor's lap if possible. I don't know his driving habits or anything but hitting a kid or getting lost are real possibilities. Even contacting the DMV seems extreme but a lot of people simply shouldn't be on the road and they can help evaluate. My dad went through it as did a good friend. Another friend was forced into it when his mother took his (these days you have to say) "challenged" daughter and disappeared. They were going to the store and she got lost. We had everyone we knew out searching for them, police and highway patrol were alerted. This was before cell phones were so cheap that everyone had them so there was an extra challenge there too. They were found, pulled over on a freeway ramp. That was enough to get him to pull the keys and take away the car. My dad was the same way, attitude-wise. Nobody's gonna tell HIM what to do! You need to approach it like handling a kid at times to avoid tantrums. One way that helps is to make them think it's their idea. "You wanted me to remind you to make the appointment" or "That was a good idea to get that checked out, you should do that right now. We'll go do it and stop for lunch afterward" or whatever works with him. My sister and I would go over and do some cleaning while he was gone. A lot of times he wouldn't notice it, which was all the better. I'd stop and mow while he was sleeping or gone. At first it really angered him but then it wasn't too bad. He started getting used to it. Otherwise, the suggestion to go in a group, even 2 or 3 is good, and 1 or 2 keep him occupied while other(s) tend to some things and rotate out. The biggest thing is to get it started and go. It has to be done and putting it off isn't going to make it better or easier for anyone. The optimist in me wants to point out this can even be a positive experience. Spending time with them while you can is enjoyable for both. Take a recorder and get him to tell stories, family history and the like. It also exercises their minds a bit. The recordings later will likely be treasured. Assisted living is nice, but around here, I doubt he'd be allowed into assisted living. Much depends on the local definition. Here, you have to be able to care for yourself for the most part. If his mind is going, he's going to be sent to a nursing home around here. Assisted living is exactly that, an assist. They'll give you the option to eat in the dining room, the option to have someone do light cleaning, the option to have someone wash clothes, etc. If he needs physical therapy or something, that is not part of assisted living. If you cause any trouble for any other residents, you're out. They do not have people who check on you daily, care for you, etc. It's an apartment with amenities for people who are having trouble, but it's NOT a nursing home and they're not about to become one. Went through that with my one aunt. They were patient with her and she became good friends with the administrator so they let her stay there longer than most but she was bumped to the nursing area when she was having troubles. An old GF's uncle was in a fabulous one in Eau Claire. I'd love to move into that place! Price was very reasonable there too. But there too, it's assisted living, not for someone who needs advanced care. So do some research on that before assuming things. Good luck....See MoreSevere dementia in several weeks
Comments (7)If it's the Alzheimer's form of dementia - and no way to know absolutely until an autopsy - it would be "early onset" which strikes at @65 or younger. That presents a whole different scene than deepening into the disease/condition gradually over a period of years. My Mother had Alzheimer's, but didn't present until she was into her 80's and lived to be 92. Her descent was gradual although unmistakable. She started off on Galantamine which slowed the observable things for a while - the disease was still progressing under the masking effect of the drug - then added Namenda. We stopped the Namenda since she said it made the top of her head hurt. We couldn't bear the thought of adding discomfort to what she was already going through. If there's a support group sponsored by the Alzheimer's Assn. in your area, they're quite helpful with information - especially for the caregivers, have references to available services and let you know you're not alone....See Moreback to my eyelid lift question, WWYD?
Comments (33)Some years ago, several of my friends recommended an internist, saying he was as caring and available as any doctor could be. I signed up with him and found him to be as advertised. His thoroughness and comprehensive caring were unique. Unfortunately, his office staff members (in an office of 4 docs) were a disaster. Messages not passed along, test results not communicated and sometimes lost, on and on. I mentioned this to him a number of times over the years. He would shake his head, apologize, and say that personnel matters were an ongoing problem. But little was ever done, new hires weren't any better than those they replaced. I reached my limit and switched to a young, bright internist who works at a local medical school practice as part time faculty and part time clinician. It was like going from the Middle Ages to the Modern Era. It's a well oiled machine. I sometimes get test results the same day. I get reminders for appointments by phone and email and leave every appointment with a copy of the doctors notes and items for follow up and all info remains available indefinitely on the website. When I contact them, I get a complete and thoughtful response in a few hours. I've sent my doc emails in the evening with questions and I've sometimes gotten back responses in less than 15 minutes. My new doc is a bit more mindful of time but, I think, is more comprehensive and the med school setting requires her to be more up to date. I see this practice for more than just GP stuff and everyone is the same. And after every appointment, I get an email with a patient survey, asking me to provide them with information that describes my experience and point out what was good and what was bad. There's no excuse for a poorly run practice and no need to be stuck using any doctor who doesn't pay attention to the totality of the patient experience....See MoreAnother WWYD? Please skip if you are not into friendship discussions
Comments (51)Elizabeth, I feel the opposite at certain times. But, yes people can be rude. They could have at least asked you if you wanted to join them. When we have guests for longer than a weekend, I love for them to take off on their own. Meet back for dinner or a night activity. A few years back DH‘s niece came with her family and it was the first time for the kids to explore NY. Both DH and I were not interested in long sightseeing days. But, the difference is that we invited them and they are family. My sister lives in a tourist town in NC. She stills gets the occasional co worker from her previous town calling and hinting. These are people she never socialized with when she was there! Hard to say if they just can’t afford a hotel, or are cheap and want to pull one over. Actually one good friend of hers was planning a visit and then asked if she could bring a friend of hers! Someone my sister never met. People are so different when it comes to hospitality. This friend, I will call her Tilly, is very bohemian for lack of a better word. She would certainly not only welcome you into her home, but anyone you would want to bring. When she travels, she stays with strangers. People don’t realize that others have different styles. One time my SIL wanted to come for a weekend. She set things up for whenever she visited that she couldn’t drive a night. DH would be off doing his thing leaving me to entertain her. Let’s just say she is not my favorite, for many reason. So, when she asked, inwas tired and told her no. A few months later she told me how annoyed she was, “ after all, you have to cook anyway!” What’s the big deal? I found out after many years she lied about the night driving. She accidentally mentioned what she did and I said to myself really? I stopped the sleepovers unless I felt it was necessary. She could have been honest and said that she really enjoyed time with us and getting away for a weekend....See Moretinam61
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