Oh, Jodi, how awful for you! I hope they can help.
My girlfriend just started a clinical study for COPD. She has a six hour appointment at the clinic today. UGH! Wonder what they're doing to her!

I and my sisters would love to hear from you about the results, I have suffered from it severely for many years, it is so loud I have trouble hearing people who speak to me and I have the tv cranked up, my husband still doesn't get it and continually turns it down to a level that is useless to me. Mine never goes away and never lessens in volume, it at times changes frequency. My sisters also have it.
When I was young my mom used to grab her head holding her hands over her ears and say please stop this screaming in my head, I now know just what she meant.
It would truly be a miracle if I could hear silence.

I'll be interested is hearing how it works out for you, Jodi. I've had tinnitus for years, drives me crazy.

I too have had it now for several years. Mine started in my left ear and one day my right ear seemed plugged up. When I yawned, the tinnitus was also in my right ear. My changes frequency as well. I have been told that I have moderate to severe hearing loss in the higher frequencies so when someone speaks to me, I only catch parts of what they say. My DIL is always talking to me as she turns away and I have to ask her to repeat herslef. She really gets annoyed with me but I can't help it. I have found that I now hum almost continuously to drown out the sound of the ringing. My husband gets embrassed by me when I do it around others. No one who doesn't have tinnitus can understand the way it makes you feel. Hope your trial works, I'd be interested in knowing more about it.

My husband has had tinnitus for years, and it has been difficult for him too. I would also be interested in knowing more about it. I hope your trial works, best of luck to you.

I have it too. Mine sounds like tape hiss. It's no fun. Please add me to the list of those who will be interested to hear your results!

I have it in my right ear and there are times when I have to meditate or else it might drive me crazy. I talk much louder than I have too and I truly believe it's a result of not being able to hear as well as I should. When life is quiet, I seem to hear well. Hearing is a challenge when a crowd is around.
I hope you report back to us on this procedure and if it helped you or not. For a while I was considering going overseas to have my ear worked on but decided it wasn't worth the very good chance surgery would be Unsuccessful.
When I am over tired or worked up, the ringing in my ear is like a Salvation army bell ringer on caffeine. >**

Keep us informed... sounds very intersting.. ps to those with a hearing loss and haven't seen a hearing professional... do so...There's usually not a charge, but you might want to ask when first calling... if nothing else you'll at least know how bad it is and what can be done for you... It may not be as expensive as you think... My audiologist has removed ear wax that greatly improved my hearing... and indicated that even if your ear is stuffed full & you've been to see your MD... they may not want to clean it out for you...and so they don't say anything... she sent an elderly patient who came accompanied by a relative to their MD and the MD said she was fine... not... When they came back to her .... she had the patient sit so they were unable to observe how much was removed from the ear canal..
Have it done by a professional -- never stick anything smaller than your elbow into your ear...

I am very hard of hearing, and my silence is noisy. I have hearing aids that finally help. I am writing here to let you know that the "TV Ears" have been a great help for a long time, and I just received a new set from Costco (on-line) that one can use with telephone as well (my biggest hurdle). I am anxious to get it operating, but this Yard sale is taking all of our time and energy for another day. TV Ears has a web site, I think

I'm deaf in one ear and only 40% in the other and wear a powerful hearing aid which only makes the sound louder. It's unbearable at time and, of course, some meds make it so loud that I hear tooting. Please keep us informed. Unfortunately I have no ear left in which to try the product.

Very interested. I have had off and on "clicking" in my left ear for a long time.

Recently was given a Rx as an antibiotic, (not associated with the clicking) which caused my ears to ring, and they have been ringing ever since.

Years ago I saw an audiologist who said I have a problem hearing low tones. No suggestions as to what to do about it.

In the last year or so I realize I have some hearing loss, but even though it is a nuisance/problem, I haven't had it checked on.

Please give us everything you can as to the results you are having.

Sue

I have it, too. It sounds like a high-pitched ringing. Mine is only a minor nuisance, thank heavens. Certain medications can cause it or make it worse.

Considering how many people are going to have tinnitus or deafness caused by earbuds, etc, in the future, someone could get rich from this if it works.

I have had it for over 10 years. I tried acupuncture, and it is down to a tolerable level.

Wow. Amazing how many of us suffer from it.I sure hope it helps you and will benefit more people.Looking forward to following your results.

I've got it too. Mine is a side effect of the Acoustic Neuroma I had in 2000. I lost the hearing in my right ear. Most of the time I don't pay much attention to it unless someone mentions it. (Thank you so much, Jodi. LOL) I have a really hard time with hearing test. It's so quiet except for the noises in my right ear that I can't hear the sounds they play for my left ear. GRRRRRR!

I hope this works Jodi. Keep us updated please.

Hubby developed tinnitus back in the 70's. Maybe too much loud music in younger years? He tried everything, including ear drops, getting his bite fixed (TMJ- temporal mandibular jaw) surgery, medications, a sleep sound white-noise machine. He thinks it was the first sign of his developing Multiple Sclerosis, which was diagnosed in 1998. It still bothers him. But his other neurological problems are worse.(MS and seizures)

I have had it for years, but wasn't bad until I went to a club. Now it is much louder, but I have music or the TV on and it doesn't both me. I hear it when the house is quiet.

lindyluwho, I too had an Acoustic Neuroma (1998) and lost complete hearing on my left. Since then I was left with a head full of bell ringers who only know one song and if that isn't enough sometimes they decide to fly a helicopter. As the sounds around me getting louder so do the sounds in my head. Such fun!! Luckily biofeedback has helped me gain some control over it.

Good luck Jodi, please keep us posted!

I'm another sufferer. I wish I could FIND a place that would flush my ears! My ENT won't. My internist won't. I've tried soaking with mineral oil. Tried drops of water + hydrogen peroxide.

The 'hiss/ring' began in my right ear about five years ago. I now have it in my left ear too. I also now have hearing loss. (The ENT was happy to confirm my hearing loss but refused to try cleaning my ears. Guess who sells hearing aides?)

Could this be due to something we ingest in our food?

I have had it for years. I think my hearing is okay, I hear the tinnitus when everything is silent. Keep us posted.

I have what sounds like "frequency" in both ears. I usually notice it once or twice a day when things are quiet. Thankfully it doesn't disturb my sleep. Unfortunately my new church plays the worship songs loud like a rock concert. I may need ear plugs to prevent further damage.

Matti5, did you have surgery for your AN? I had FSR (Fractionated Stereotactic Radiosurgery.) In the past 3 years I have started having Hemifacial Spasms on the right side of my face. Stress seems to make it worse.

Mine sounds like a tree full of locusts. I hear it all of the time, when it is noisy or quiet. Sure hope that the test works for you.

I did until a couple of years ago. The tumor had shrunk after the FSR but it's been about the same for years so I quit going for the MRI. The doctor that treated the AN died about 2 years after I had the FSR. He was at Johns Hopkins and was a fantastic doctor.

My AN was 3 cm. How big was yours? I did a lot of research and didn't like the list of complications associated with the surgery. That's when I found FSR. The doctor that treated me was certified to do either procedure and he felt I was a good candidate for FSR. I found that surgeons would say the only option was surgery. The Radiologists would say radiation was the best option. Since my doctor did both I trusted him more than the other doctors I talked to. He wasn't bias about one method over the other.

Coffeemom (and others), I highly recommend ear plugs. I love live music, but it's almost always too loud for me no matter what the venue. I carry simple foam ear plugs with me all the time. They don't interfere with my enjoyment of the music.

I was misdiagnosed for nearly 2 years because I did not present with the usual symptoms such as hearing loss. My hearing was perfect. Mine was 3.5 centimeters. I saw a doctor would did FSR, but because my tumor was pressing on my brain stem and I had lost most of the feeling on the left side of my face, he said I was not a candidate and recommended me to an AN surgeon at Stanford. The AN had crushed the facial nerve and after surgery the left side of my face was paralyzed for nearly 6 months. I recovered to about 85% and to look at me today you would not have any idea I have any issues, except for being deaf in one ear. I too was blessed with fantastic doctors.

Had my first follow-up appointment today. I've been using the device 2-6 hours a day for 12 days at this point. I told them I hadn't noticed any reduction in noise so they suggested I try another one of the frequency settings (there are four). I've been using one that sounds nearly identical to my tinnitus up to now. Starting today, I'm using the white noise setting. Perhaps that will help. I want so badly for this to work.

Jodi-

Oh Jodi, I hope this works for you. Best of luck.