Kaseys baby Lakota needs prayers agian............

16 years ago

Without yet a proper diagonse...they think he has "failure to thrive syndrome" but actually they are looking for more problems...he has a very high palette (the roof of his mouth) and where we all have the creases in our hands he has none...I have always thought he had downs...but I think they are ruling that out....She take him to therpy a couple times a week, upping his calorie intake...and various other things right now.....I know it is not because they don't have food for him...because they do...I know he gets the attention he needs because he is such a happy outgoing baby...but way behind on development and size...they are going to continue to run tests on him til they find out what for sure is his problem...plz say prayers for Lakota......Stacy aka Gramma Stacy

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Comments (44)

Marilyn Sue
16 years ago
Awww, poor little one, prayers from me Stacy. Let us know how he does.

Sue
grinch_gut
Original Author
16 years ago
I will and thanks. As I said at least they are getting him therapy and such...which I was always afraid they wouldn't as they had not mentioned to me anything...but from seeing him I knew something was not right......He is such a happy happy boy but so small so so far behind....but wow do the other kids love on him and give him attention it is all about Lakota...which he needs!
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The only life those kids have ever known is now totally different. It will be an adjustment for them. It won't be long before they sense the calm around them and see a big difference in their mommy. All you can do Stacy is encourage her that she is doing the right thing and support her...the rest is up to her. God Bless her for taking this first step. Remind her how much strength that took.
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Thank you everyone....................
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Watch for personality changes, even very temporary ones. Most will show signs if they are using meth, and may be 'tweaking' right in front of you. It may not last long. Long time results may cause the hair and teeth to fall out. If she is using then she will need funds to buy, so watch anything that could bring her quick cash. If she wants to be around her friends, beware. They may help her feed her habit. A man who knows he is going to jail when caught has little to lose, so he may not mind commiting another crime. You may be able to get a protective order, but keep in mind that a PO is only a piece of paper and a bullet will go right through it. Where it helps is if he is arrested then a violation of the PO is an additional crime and he might be jailed more quickly. I hope Lee doesn't have friends that read KT, because you not only announced where she was, but announced to him that Tanner had lied to him. Remember, this is a public forum and anyone can read it. She may not remember how to function in a normal family situation any longer, so don't let her destroy yours. Call every agency you can and try to get her some help. You can't do it yourself. Just so you know, I have not experienced this myself but have worked in a field where I dealt with users, and my husband is still connected with two programs. Even with excellent programs, and a failure meaning certain jail time, not all addicts will be able to stay clean. In closing, please remember that no matter how good your children are, you can't take all the credit, and no matter how bad they are, you can't take all the blame. They have freedom to choose for themselves. Sometimes they make bad choices too often that leads them into addiction and they no longer can make a choice. Get her some help at the earliest possible time, and don't beat yourself up. She is an adult, just not a responsible one.
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My heart goes out to you in your moments of despair which is totally understandable when you look around and see so many with their children on the right path. Know that you're not alone, go to Al-Anon please. Addicts are just people who can't stop doing what they do. We can relate to them if we think of giving up foods we love or cigarettes or coffee etc. It's not easy and it's not because we're weak, it's because the yearning is ruling our brain. I will pray that your Kasey can find the strength to realize that she's on the road to losing more than just her children. In the meantime you need to surrender to God. Know that He is on your side. Do what you can to make yourself accept and realize you had no part in her addiction, it was just a very bad choice that has it's grip on her. Way down inside her, she yearns to stop but the drugs rule. Say your prayers and then just let it be. You're a good woman and she knows it. She loves you but the drugs are making her love them over others. In time I feel she'll recover. God bless you and your husband.
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glenda_al
16 years ago
Sorry to hear!

Will keep Lakota in my special thoughts!
grinch_gut
Original Author
16 years ago
Thanks Ms Glenda...also my concern is I am wondering about the "expermantial" sp. drug they used to treat his RSV when is was in the hospital for it....I know that when my friends baby had RSV 18 years ago the drugs they gave her slowed her weight/height way down but nothing in her development....Stacy
mamatoad
16 years ago
Stacy, I'm sure the doctors have ruled this out, but I'll mention it anyway, just in case. When my grandson was a baby, he was diagnosed as "failure to thrive" and many tests were done. Turns out he had a milk allergy! Was finally put on soy milk and problems soon were corrected. I will certainly remember little Lakota in my prayers! Bettye/AZ
grinch_gut
Original Author
16 years ago
Thanks Mamatoad...Kasey didn't mention that to me but I will ask her if they have ruled that out...to me any ? we may have is worth asking...so I will ask her about that! Thanks agian STacy
phyllis__mn
16 years ago
Keeping the little guy in my prayers and thoughts for a good diagnosis.
Dash2
16 years ago
Something else to check, which is so often overlooked, is celiac disease. Took 18 months before they finally figured out what was wrong when my son was an infant. After two hospitilizations and much anxiety, they diagnosed him. That was more than 30 years ago. They still only seem to look for it as a last resort. But the diagnosis is so much easier and faster today. Good luck and blessings for all of you.
lindyluwho
16 years ago
So sorry to hear this, Stacy. I hope they can find and fix the problem quickly.

Linda
shellm
16 years ago
((HUGS to you and baby LAKOTA))Prayers going out to all of you.

Love Shelley
des_arc_ya_ya
16 years ago
No advice, Stacy - just healing hopes going out to Lakota. Please let us know how he's doing. ((Stacy))
lydia1959
16 years ago
Sorry Stacy, sending prayers for Lakota. Hope he is better soon.
gramzeeinmd
16 years ago
So sorry to hear this Stacy. Please keep us posted.
I will add Lakota to my prayers and special thought list.
Love U
Deb
((((Lakota and family))))
erica
16 years ago
Sending healing thoughts to Lakota and family! Hope you get answers soon - are there any photos of him here?
donna_oh
16 years ago
Lots of prayers for little Lakota (love his name)

Donna (^_^)
Kathsgrdn
16 years ago
Sending prayers for Lakota. I sure hope it's nothing serious.
pump_toad
16 years ago
I will certainly pray for him.
Lois
Jamie_LA
16 years ago
Sending special thoughts and prayers for Lakota. Keep us updated!
nodakgal
16 years ago
Oh Stacy! Poor lil guy!
Now they know something is wrong it will surely make it easier to fix him right up!
(((Gramma Stacy))) I know how you worry!
janie_ga
16 years ago
Good luck and prayers headed his way!
itsmesuzq
16 years ago
I'm so sorry to hear this...lots of good thoughts and prayers to you, Lakota and family.

Susan
susanjf_gw
16 years ago
he might be like a pal's baby and have to go soy formula, and now he's older, goat's milk, if it's a digestion thing.. good thoughts and tons of prayers....
grinch_gut
Original Author
16 years ago
Thanks everyone. I will keep you posted as she keeps us posted.....Stacy
kacram
16 years ago
You got it Stacy. I hope they get a diagnosis
soon! and a good one!

(((((lakotA))))
jannie
16 years ago
I have a nephew who was born with some minor birth defects. Turned out he was autistic. My siser got him lots of theraspy. As a kid he was a Holy Terror. Wouldn't look you in the eye and he wrecked anything he touched. He came to my house when he was four and took the screens out of my upstasirs windows. But luckily he has grown up and his behaviour has totally turned around. In fact, he's a sophmore in college. saying prayers for Lakota.
lilliepad
16 years ago
Stacy-I have been out of touch here for a while and am not sure what is going on with Lakota but I will certainly keep him in my prayers.How old is he now? Something you might suggest the doctors check if thay haven't already,a possible Biotion or Biotinaise defficency.Our little Rowdy has that and has to take a supplement every day.If it isn't treated it can lead to many permanent dissorders and some of the symptoms you mention are related to the defficency.Simple blood test to diagnose and simple to treat with the Biotin supplement.Rowdy's was related to the bowel surgery he had at birth but there are other reasons for it to occur.The milk allergy is also a very real possibility.Rowdy had that too,threw up all the time and wasn't gaining.We first atributed it to his earlier problems but when we changed him to a soy formula you can't believe the difference.The doctor didn't recommend the formula change,by the way.We did it on our own.Sometimes mother's(and in this case grannie's)intuition is better than the doctors! I hope they get things figured out soon.((((((( Lakota and gramma Stacy)0000
maybee_gw
16 years ago
No creases on his hands is troublesome :o( I'm hoping for the best with the little guy
taigen_gw
16 years ago
Prayers are sent from here...waiting for a diagnosis is so hard on everyone. Praying for the best outcome and for all to be able to deal with whatever outcome.
bobbie56
16 years ago
"Charge Syndrome" mimics many of the Down Syndrome features. It also mentions palm creases.
katclaws_mo
16 years ago
Sending my thoughts & prayers as well. Hoping for the best for the little one.
marry
16 years ago
Stacy, adding my prayers to all the rest! Our little granddaughter was born with heart problems and I know how scary it is having a little one so sick!
sandiefl
16 years ago
I will add Lakota to my prayer list. Sending prayers for all of you.
grammahony
16 years ago
Late getting here, but never to late for prayers. I'm praying for baby Lakota.
Leslie
mariend
16 years ago
No suggestion, just prayers for you, family and medical staff.
margad
16 years ago
Saying many payers for Lakota
jannie
16 years ago
I'm still praying hard.
country_bumpkin_al
16 years ago
Adding my Prayers for Lakota! Waiting and not knowing is the worst part!
tami_ohio
16 years ago
Adding my prayers, too!

Tami
Cherryfizz
16 years ago
Thinking good thoughts for Lakota. Hugs for Kasey and Grandma Stacy. I hope the Doctors can find our the reason he isn't thriving.

Anne
Jodi_SoCal
16 years ago
Stacy, I hope they determine what is going on. I remember a while back you showing photos of all Kasey's beautiful kids and commenting on how different Lakota looked from his siblings. Maybe you were on to something way back then but didn't know it. Regardless, he is a handsome young boy and I wish the very best outcome for him and the family.

Jodi-
Zipper_TX
16 years ago
((((Stacy)))) I am adding my prayers here too, I hope you get a diagnosis soon.
liz
16 years ago
keeping all of you in my thoughts and prayers...Keep us posted Stacy...I have never heard of any of these symptoms...I know it's got to be weighing hard on all of you...
bearcat_va
16 years ago
Sending my prayers and thoughts for Lakota. As a special education teacher and a parent of a child with special needs, I can certainly sympathize.
cheryl_ok
16 years ago
Oh, so sad. My heart is breaking. Prayers from Oklahoma!

Kaseys baby Lakota needs prayers agian............

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