Oncologists arrest, scary stuff
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10 years ago
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neetsiepie
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I need your good thoughts and prayers
Comments (126)The best news,just as we all hoped! Dexascan is a piece of cake - I used to do them when I worked in the Rheumatology office. Bone-building drugs may be prescribed, but they work slowly, so 6 weeks one way or the other won't make a huge difference. There are lots of reasons you can have osteopenia or osteoporosis - drug therapies, both chemo and steroids, being too thin (being under 127 pounds is a marker for risk), family history, early menopause, low calcium and Vitamin D, and the list goes on. For now, take care of yourself, be a good girl and do what the docs tell you to do. We'll all be here, thinking of you and cheering you on until those crutches are tucked away in the closet....See MoreWeirdest scam call ever!
Comments (49)So I had another call today from a private number. Woman id'd herself and wanted to speak to Annie Deighnaugh. I said who was she with, she named a firm that didn't mean anything to me. I said what does she want and she refused to say anything other than she has personal business with Annie Deighnaugh. I refused to ID who I was and since I wouldn't she would say nothing else. I asked her to give me a general idea what it was about and she would only say "personal business with Annie Deighnaugh". She did say she wasn't trying to sell me anything. So we were at an impasse. I told her if she really knew Annie Deighnaugh, she'd have other ways of contacting her and suggested she use it. She said she would try again later, and I told her not to call again. I suspect it was a call reminding us to fill out a proxy statement. But how ridiculous. I could've been anyone and misrepresented myself as Annie Deighnaugh, so why on earth would that make a difference? How could they possibly trust that I was who I said I was? And if it was about a proxy vote, why couldn't she say that? It's just getting super bizarro!...See MoreMy hubby - need prayers..
Comments (49)Want to give an long over do update.. Hubby's last treatment (chemo & radiation) were 12/23. He was supposed to finish radiation 2 days sooner but had complications with neck burns; they had to get his pain under control. I asked the radiation oncologist for the morphine pops again; this time he gave it to us but it was a 3 day wait for it to get ordered. I'd called pharmacies in both NJ & Philly; no one stocked it, not even hospitals. He ended up using a Fentynol patch for a few days; he was only able to wear it for a few hours as the Fentynol made him sick. They are supposed to be a 24 hour patch. The pain problem was a dry neck - he couldn't have the antibiotic cream on his neck for radiation because he'd fry; which meant he had to go from the shower, we'd wrap his neck in wet gauze & baby wash cloths plus an ace bandage then he'd unwrap when we crossed the bridge. He lost over 20 pounds, which he couldn't afford to lose anything. Healing was very hard on him. He did so well at 1st but his autoimmune kicked in about 2 weeks out to where his blood counts were really low. I ended up taking him to a natural Dr where he had supplements & a vitamin C drip which seemed to work; unfortunately, he needed 2 drips per week but we couldn't fit 2 into our life (it was an all day thing with ride plus waiting for the bag to drip) plus he did not like the way the girls stuck him or pulled the IV out. His body was still sore from all the needles in Philly, he didn't need more pain. Yes, we complained... He got very depressed because he wasn't healing quick enough. I could not get his mood changed. Different antidepressants were tried but nothing worked. What ended up working was our old neighbors came up from Tennessee on Valentines day (he didn't know); so that cheered him. Then we made the decision to have the feeding tube removed. The feeding tube was a huge source of pain; his intestines always hurt; he was usually found doubled up in pain. It was thought he had gas but from what I researched it could have been spasms. Any puree's that I made, he basically shut down & wouldn't eat them, nor would he eat by mouth because he had no taste buds and no saliva. To someone that likes to eat, this is very depressing. He'd tell me that the puree would sit in his stomach & not digest. We saw the radiation nurse practitioner and I was able to speak to her alone.. she backed me up that the tube needed to come out & that he needed to be able to sink or swim. Had he not started eating, they would either feed him via nose or another feeding tube. On 2/22 we saw the ENT surgeon & lied about how much he was eating by mouth; they pulled the feeding tube out.. yes, held a towel over it and yanked & out it came. 5 months after it was put in, it was taken out & he's been doing well eating. His taste buds are better; he's not complaining about the saliva as he knows he's going to have to drink water with almost every bite just to swallow it. Most food will suck up his saliva like a sponge. We knew our health insurance was going to get canceled & it did. He was going to start physical therapy 2 weeks ago when they called to say it was denied for lack of coverage. We've been on this since December, asking for Cobra forms but they never came. Thankfully I know the rep; he told me when it was sent out & when it did not arrive the following Monday & Tuesday (last week) hubby & I made the 2 hour drive to Port Newark to do it in person. We split the driving because neither of us drive that far. The insurance cost us a pretty penny until we are approved; then they will either refund the money, if hubby gets back to work before we use up our large payment or they will deduct the lower amount from my large payment until he does work. He had a PET scan on 2/4 - we were not supposed to get the results until the following week but the nurse practitioner called us the same day because she knew how depressed he was. He told me a week or 2 before the scan that he was not fighting any more nor was he doing this again if treatment did not work; so I was a basket case as well; especially since it was right before my dad's 4 year anniversary of being gone because of cancer. Had we not had my inheritance from my dad I don't know what we would have done to survive. We were very fortunate that we did move to where we are so he had better treatment options. After making the drive to North Jersey the other day, there was no way he could get treated at my original choice, where my dad had treatment; but he was able to get treated at a very large place; which I'm not sure he would have chosen had we still lived in the old house. So, everything has worked out. The next scan will be in 5 months; so we'll see. I'm not sure when he'll be able to get back into his truck to deliver cars; but hopefully he'll be able to do the yard van to drive drivers to their cars. Hopefully physical therapy will help....See MoreAdult Stepchild moving back in... I'm less than thrilled
Comments (7)As a mom, I understand your wife's feelings. I have two sons ~ 20 & 23. The 23 left at 18 because he didn't like my rules, he came back several times because he couldn't loaf in any one place very long... but when I allowed him to come back, he ALWAYS had conditions! Had to find a job... spend his day looking, not sleeping all day. He had to do chores... more chores if he wasn't working because he had more time. He had to pay $50 a week. and he had to follow our house rules.. no staying up all night watching movies or playing video games, clean up after yourself, and he could only fix himself meals when we were preparing our meals. (He was welcome to eat what we were having but if he didn't like it, he could fix himself something else... but he could only do so when I was making dinner~ not after all the dinner dishes were done & kitchen was clean, because even though he had to clean up after himself, he is not very good at it so we'd end up having to do it over.) Consequently, my son CHOSE to not stay with me very long.. usually a few weeks & he'd find someone's couch. That's why he came back several times. We stuck to our conditions and he kept coming back, hoping we'd let him slide. He eventually joined the military and has matured a lot in the last two years. But, I am also going through it with my 20 year old son... having to stay firm & consistent with the rules. If they don't like it, they are "adult" age and can go do something else. You should not feel like a prisoner in your own home & suspect your wife agrees but it's her son & she doesn't want to turn him away, but maybe is conflicted because she remembers how bad it was when he was there before... I feel for her. Oh yeah, if he is leaving Dad's because he doesn't like the rules or being told what to do, does he think it will be different in your home? I think this is one time you & your wife should get together with Dad & stepmom to have the same rules/expectations in both houses....See MoreILoveRed
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