Cancer really does stink, feel free to skip

2 years ago

last modified: 2 years ago

My reason for sharing my story may be so people understand how sneaky and shocking cancer works. I had zero symptoms, have always been healthy and active. Not a clue what was going on inside of me. Of course, I’ve known people who have had cancer, thankfully most have fully recovered. I hope to join them in total recovery, but am sad that so many others have gone through the pain and angst that the last month has brought me and those that love me.

My husband and I have lived a very good life. Married 52 years with few hiccups.

Last November (2021) out of nowhere he got very sick - 3 weeks in the hospital , one week sedated on a vent. (Sepsis)

By the end of December he was home, with home health nurses, PT, OT and lots of support from family and friends.

During his last PT appointment (early February) I mentioned to the therapist that I thought I might have a pulled muscle in my right thigh. She knew my history of arthritis in the right knee and suggested I call my ORTHOPAEDIC surgeon if it got any worse. We really thought I had just been more active, while caring for DH.

After a few days I went to Urgent Care. Doc agreed it was probably a pulled muscle. Given meds and suggestion to rest as much as possible. On Feb 14, DH took me to the ORTHOPAEDIC ER because the pain had gotten worse. EXrays taken, bursitis diagnosed.

By Saturday (2/19) I could barely move. Our son got me to the ER where they were looking for an infection of the bursa….that day, an Interventional Radiologist was called in. No problem at all with the bursa.

Femur fractured in 2 places.

Fracture caused by a tumor that traveled from my lung to my hip area and basically exploded. After a full body bone scan, a spot was also found on my brain. Primary tumor is in the lung. (My Last cigarette was in the 1970s, people do wonder).

Luckily, I was accepted as a patient at a renouned Cancer Center close to our home. I was transferred to H Lee Moffitt Cancer Center on March 1. Total hip replacement done on March 3. Up and walking on March 5. Discharged to home on March 10. Have been home with PT, OT and nurses who come as scheduled.

Numerous appts at Moffitt meeting teams of experts that I have great faith in.

Hip surgeon wants the hip to heal before radiation. Will know more after my 3/31 appt, but radiation of the hip area is expected.

First radiation to the brain is on the 3/23….surgery may follow next week.

Waiting for more info about the lung spot before treatment plan is decided.

There really is very little pain with the hip replacement. (the needle biopsy of the lung hurt more.) I had heavy duty drugs while hospitalized before and after surgery. I am now at the point that I save a good pill till I need it in the middle of the night. Opiad constipation is another whole discussion, I’ll spare the details.

To say I am overwhelmed at times is putting things mildly. We are blessed with wonderful family and friends that seem to know exactly what is helpful and what is not.

Our 2 adult children have stepped up and taken care that DH and I at our numerous medical appointments with a list of questions and the calm mental state to listen to what our providers say.

I never ask ‘why me?’ but I somehow wish I had more of a clue that something was going wrong inside me.

I will never turn down a good thought, vibe or prayer. Tell people you love that you really do love them. Often.

This forum still makes me smile most times. I thought of you all when I had my 20 year old granddaughter go buy a recliner for me. Only one store within 25 miles had one for quick delivery, I’m sure it will be fine (arrives Tuesday). I know it’s big and brown and ‘it massages you grandma!’

Peace.

Featured Answer

maddielee
Original Author

2 years ago

last modified: 2 years ago

Today’s agenda includes pressing the ’clean’ button on Roomba (with the ’reacher’ stick from my “Hip Kit” because I can’t bend over). Yes, a ”Hip Kit” is a real thing, available on Amazon of course. Handy stuff n that ”Hip Kit”.

Pretty exciting how clean floors bring me calmness.

I will be carefully brushing my clean hair before some long time friends stop by this afternoon. I may even put a bra on.

My wonderful husband is scrambling 2 eggs for me as I write. A way to add more protein in my diet. The soreness of my jaw really is getting better every day, just like the doctor said it would. Not ready for popcorn, but I bet I can handle a grilled cheese sandwich later today.

And this…

Wordle 287 4/6

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Thank you all. 💕

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Comments (234)

Springroz
2 years ago
You are amazing!!!
maddielee thanked Springroz
Mimou-GW
2 years ago
Yes, you are amazing! Wishing you a speedy and full recovery.
maddielee thanked Mimou-GW
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eld6161
2 years ago
Sending positive energy to you!
maddielee thanked eld6161
cyn427 (z. 7, N. VA)
2 years ago
Wow! It is wonderful to hear from you so soon! Glad you are home and hope that the meds are helping now. I know your DH is relieved to have you home, too.
maddielee thanked cyn427 (z. 7, N. VA)
Jilly
2 years ago
last modified: 2 years ago
Maddie! Where is your Wordle score!

I’ll bet it’s better than mine today.

Two darn lines with nothing!

Wordle 285 4/6

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I hope you’re having a good day! 🥰
maddielee thanked Jilly
Zalco/bring back Sophie!
2 years ago
last modified: 2 years ago
Maddie, I hope all is well. I think you have another medical appointment today?

As for Wordle, it took me SIX tries to get the answer! That was a first.
maddielee thanked Zalco/bring back Sophie!
Jilly
2 years ago
It was challenging! My DH was cussing at it. 😄
maddielee thanked Jilly
mtnrdredux_gw
2 years ago
Last week, for the first time, I did not get it in six.

route, wound, bound, mound, round, sound

The word was "found." Mad.
maddielee thanked mtnrdredux_gw
Bunny
2 years ago
Mtn, I too went 6X that day. Rhyming words are the worst. And just the day before, on Sunday, the Gospel reading was the parable of the Prodigal Son. I should have gotten it in 1. But no...
maddielee thanked Bunny
maddielee
Original Author
2 years ago
You all are great! Thank you! No appointments outside the house today. The evil/sweet PT did come to make me walk more then my sore head wanted to. She was correct, it did me good.

I also was able to chew food for the first time since brain surgery. Cottage cheese with tiny pieces of pineapple but that counts as food, right?

Sorta decorating related, did you know an extra long twin fitted sheet fits well on a big brown recliner without getting stuck in the mechanism? And you can slip a pillow under the sheet on the foot part for extra comfort.

Wordle 285 5/6 - still not the top of my game. 💕

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Jilly
2 years ago
It definitely counts for food! I’m excited for you, another step forward. :)

Now I want a recliner again. Gave ours away — well, it was supposed to be temporary, but they moved and left it!

You did better than my DH on Wordle. :D
maddielee thanked Jilly
lisaam
2 years ago
Maddie, you are my hero / heroine —depending on how your pronouns flow. keep being amazing (except for when you just dont feel like it).
maddielee thanked lisaam
Tina Marie
2 years ago
@maddielee I have a friend (one of my lunchbunch ladies - schoolmates of my mom ) who recently had a lesion (most of it) removed from her skull. She said her head was incredibly sore for weeks. They ended up taking a piece of bone and replacing it with titanium. I was with her last week and she showed me the incision - still a tad swollen (after almost a month) and she is so frustrated with getting the last bits of glue off her scalp!! I'm so glad you are eating and doing PT. Keep up the good work - we are rooting for you!
maddielee thanked Tina Marie
honibaker
2 years ago
Just came across your story, thank you for posting it. What it that saying... that a trouble shared is halved? Hope that is true for you.

God bless you, and you have my continued prayers. Looks like you have a lot of friends here who will be thinking of you daily!
maddielee thanked honibaker
jojoco
2 years ago
You beat me too in Wordle today. Whatever you're doing, keep it up!

love,

Your cheerleaders
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lascatx
2 years ago
Maddie, you are doing great! I'm not even playing Wordle, so you beat ALL my scores. LOL And my husband says cottage cheese and pineapple is definitely food -- food he likes. I knew he liked cottage cheese, but usually not with cottage cheese. I'm going to remember that.
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Michele
2 years ago
You’re amazing! Sending prayers that recovery is quick and complete.
maddielee thanked Michele
maddielee
Original Author
2 years ago
Because I slept almost the whole night and was able to chew small pieces of banana this morning. Small things that mean a lot. A yawn still hurts, so I try not to….

AND I can carefully wash my hair tonight!!!! With my friend’s (RN) help and baby shampoo, I am so excited!

Look @Jilly…!

Wordle 286 3/6

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Jilly
2 years ago
Good morning! ❤️

Oh my goodness, that’s going to feel soooo good! (Hair washing.)

We both got it in three! 🙌

Wordle 286 3/6

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maddielee thanked Jilly
maire_cate
2 years ago
How wonderful that you feel well enough to stop here for a visit and keep us informed. I admire your positive attitude and willingness to share with all of us.
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Zalco/bring back Sophie!
2 years ago
How nice to see you! Love hearing about all the progress. Small things matter so much. And that Wordle score, woohoo!
maddielee thanked Zalco/bring back Sophie!
mtnrdredux_gw
2 years ago
So glad you are on the mend Maddielee. Yawning never occurred to me, but I can imagine it is uncomfy given your jaw soreness.

After I blithely asserted here that I had never failed at Wordle and almost never got a 5, I am starting to suck. I keep getting words that have like 10 variations and choosing which one is just a big cr@pshoot. That's my excuse anyway. Next subject?

Years back when I was in a Bermuda hospital after a car accident, my then BF and now DH washed my hair for me! Sealed the deal. Nothing like showers, baths, etc when you are under the weather.
maddielee thanked mtnrdredux_gw
yeonassky
2 years ago
last modified: 2 years ago
Glad you can eat and sorry for the pain when you are yawning. I love having my hair washed and it is such a luxury. Glad you can enjoy that too. :-). Continued success. Every tiny milestone counts.
maddielee thanked yeonassky
Funkyart
2 years ago
Just so wonderful to hear about your progress! You will feel like a new woman with clean hair and maybe a new food in the morning.

And thank you for keeping us updated-- I look forward to each one!

(even though you beat me at wordle today!)
maddielee thanked Funkyart
deegw
2 years ago
Wordle 287 3/6

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Hi Maddie!
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Jilly
2 years ago
Good morning, maddielee, dee, all!

Maddie — how did the hairwashing go?

Dee, our score is similar:

Wordle 287 3/6

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Maddie, what’s on the agenda today?
maddielee thanked Jilly
Jilly
2 years ago
I’m so glad the soreness is getting better! I love that you’ve been able to progress to eating different things every day.

Enjoy your visit with your friends. 🥰
maddielee thanked Jilly
Zalco/bring back Sophie!
2 years ago
Friends over, housekeeping, Wordle in four and a grilled cheese sandwich, that is a lot of excitement in one day, maddie !

Have a wonderful Saturday.
maddielee thanked Zalco/bring back Sophie!
orchidrain
2 years ago
So happy to hear your progress and plans for today. I love your positive attitude. Hugs.
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Tina Marie
2 years ago
Enjoy your dad Maddie!
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DLM2000-GW
2 years ago
A bra? Seriously maddilee that may be pushing things to far! Every day brings a bit more normalcy and you get to visit with friends which is the best medicine.
maddielee thanked DLM2000-GW
OutsidePlaying
2 years ago
Great progress, Maddielee! A bra? Nah, your friends would understand if you didnt. Just throw on a sweater over your shirt. I’m so glad you can branch out a little more with food choices.
maddielee thanked OutsidePlaying
l pinkmountain
2 years ago
Hubs got his "hip kit" before his surgery. The pieces have some in very handy to this day. My dad uses the "put on your socks" gizmo and the tongs for picking things up.
maddielee thanked l pinkmountain
Feathers11
2 years ago
I say "no bra," too. But I bet that grilled cheese will be the best one you've ever tasted! Congratulations on the progress.
maddielee thanked Feathers11
texanjana
2 years ago
I‘m glad your recovery is going well Maddielee. What an ordeal. Holding you up in prayer daily.
maddielee thanked texanjana
Kswl
2 years ago
Glad to hear you are doing better Maddielee! Throw a robe on and forget the bra 😎
maddielee thanked Kswl
lascatx
2 years ago
Glad you are continuing to improve -- a little more each day. Soon the little bits will be noticeably bigger bits. You are doing great! Hope you enjoy a very special grilled cheese sandwich.
maddielee thanked lascatx
Arapaho-Rd
2 years ago
last modified: 2 years ago
Maddielee, so good to hear you're doing better and having some visitors 🌷
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maddielee
Original Author
2 years ago
Once again, thank you for the encouraging words.

Had a nice day yesterday, but it wore me out. My friends came and stocked our fridge/freezer .with goodies. They knew not to stay too long and were carefull and aware that laughing would not be comfortable, so stories were not over the top.

Another morning with a headache not as bad as it was yesterday..

yes, I wore a bra. I’ve never been someone who could spend the day in pjs or a nightgown. Most days I force myself to get dressed. For me its part of the healing process, having clothes on is a small step towards normal. (plus I don’t want my grandkids to remember me as an old sick lady wrapped in a blanket.)

Love to all.

Wordle 288 4/6

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Jilly
2 years ago
Good morning! You are my hero.

I’m glad you had a good visit … I want you to get some rest today! :)

You did better than me again, got it with less letters. I should’ve had it on 3!

Wordle 288 4/6

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PS Your grandkids have the coolest grandmother. ❤️
maddielee thanked Jilly
sheesh
2 years ago
Those grandkids are great motivators!
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Zalco/bring back Sophie!
2 years ago
I totally get the need to be dressed and how that affects how you feel.

Love hearing your progress.

Don't overdo it today :-)
maddielee thanked Zalco/bring back Sophie!
Re Tired
2 years ago
So happy to hear you have the hip and the brain surgery behind you. I'm sure there are down times, but you're amazing to stay so positive and do all that you can. A dear friend had a massive tumor removed from her brain's right frontal lobe on Tues. I pray that she recovers as well as you seem to be doing and that both of you experience FULL recovery.
maddielee thanked Re Tired
maddielee
Original Author
2 years ago
Once again, writing ’Thank you’ seems inadequate. But I do appreciate every one of you.

One month since Hip surgery, one week since the tumor on my brain was removed. I’m feeling OK today. Not great, OK. Radiation on the hip starts Wednesday. treatment for lung comes after I heal more, the doctors don’t want me throwing up while my brain is compromised.

This thread has grown in the best possible way, time to let it go where long threads retire.

love and peace to all. 💕
yeonassky
2 years ago
(((((Maddie Lee)))))

With what you are going through and have gone through it is no wonder you're going to have ebbing and flowing of feeling good or okay even. This kind of thing takes time and patience to heal from. I wish we could do more. Sending good healing Loving thoughts your way!💖
beckysharp Reinstate SW Unconditionally
2 years ago
Oh, maddielee! Sending all the good thoughts, vibes, and virtual hugs.
RNmomof2 zone 5
2 years ago
There should be no reason for vomiting with treatment. Make sure that you have all the anti-emetics necessary to prevent that. Hugs!
lyfia
2 years ago
{{{{Maddie Lee}}}}

You do have a lot going on and had major surgeries. It's ok to have ups and downs. I'm so impressed with what you're able to accomplish so far in your healing in such short time. Just focus on the small things - which it seems like you're doing. Sounds like you have some awesome friends who understand not being up for things. Hope you continue to improve so you don't have to delay treatment, but even if you do it is ok as you want your body to have the best possibly chances to handle any additional trauma. How is your husband doing - if I remember he also had some health issues going on.
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maddielee
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2 years ago
Thank you all, I just posted an update.

Thursday, April 14, 2022 update.

https://www.houzz.com/discussions/6255559/health-update-thanks-for-asking-i-tire-quickly-so-a-group-update-is#n=0

Cancer really does stink, feel free to skip

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