shut down Netflix for a parent with dementia
7 years ago
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- 7 years ago
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Mom with dementia upset about move
Comments (67)My mom has had Dementia for a while and she moved from an apartment to a room and board where she wasn’t taking her meds, never changing clothes, showering etc and had a small dog that she loved but was neglected and she would forget to feed etc. i ended up going to take care of her once a week, give her a bath, change her clothes, clean her room and take care of her dog. the Dementia grew worse. She would call the police 3-4 times a day, accused me of stealing from her and that the ppl at her room and board were poisoning her. They finally kicked her out and after I had been looking for months to find a semi-affordable assisted living/memory care facility that I will have to help pay for due to her limited funds, I was able to move her there and had to tell her the dog would join her another day because she said she wanted to live in the street with her dog. She’s not not been there a week and attempted to leave multiple times, continues to ask for her dog and leaves me awful messages that she’s gonna have me arrested, that she hates it there and that I’m dead to her. Doctors are going to increase or change her meds to assist with her anxiety. It’s been draining, and depressing- I am her only child and I have spent so much time taking care of her and all I get in return is vulgar words, messages and accusations - and all the while I am working extra to pay for her damn care while I have a family of my own and the money I pay for her is taking away from my own kids. It’s painful....it’s comforting to see others on here with similar stories of how awful loved become with Dementia.......See MoreDementia now?...possibly...Chemical imbalance before maybe?
Comments (10)The mainline Alzheimer's drugs are good, but once the disease - Alzheimer's or one of its numerous related dementias - gets a toe hold, there's no magic bullet. The drugs can stabilize someone for a time, then they reach plateaus, then have a downturn with more and different symptoms, reach another seemingly stable plateau, then downslide again. It's a natural progression - but without the drugs it's almost impossible to calculate what the rate of decline might be. I won't say anything negative about alternative therapies since nutrition is key to everyone, not only those suffering dementias, but nutrition will not bring back or regenerate those brain functions that have been lost. From someone who was a caregiver for five years, it was difficult enough keeping my Mother ineterested in a decent, balanced diet without having to contend with the idea of her taking a handfull of nutritional supplements. There comes a time when food, hydration, etc. is no longer of interest to them. Systems are slowly, systematically shutting down - including the mechanisms controlling the ability to swallow. Mom lived to be 91 1/2 and it was pneumonia that finally took her. She had an easy, pain free death - the kind of death we wish for ourselves and those we love. I would agree with seeking out a new doctor that is at least sympathetic with the treatment of the elderly - any doctor that dismisses things simply because one is old would not have my confidence. And because the population is aging, there are plenty of good doctors out there who still have their elderly patients' best interests at heart. You wouldn't buy a rug for your livingroom you didn't like - should be the same for primary physicians....See MoreTalking sense into parents
Comments (48)"Right direction according to whom?" That depends. Parents who will be able to support and care for themselves until death have every right to do exactly as the please. However, if they end up needing the support and care of their children then they need to take those children into consideration when making decisions about their future. I have a friend who's 80yo parents decided to up and move 800 miles away because they wanted to "go back home." Friend warned them that he wasn't going to be at their beck and call if they moved so far way. They depended on him for home repairs, errands, etc. Parents said they didn't need him - don't worry about it. Well, now mom and dad constantly complain that he doesn't visit enough and what's going to happen to them if they get sick? They can't afford to move back and are very upset with the situation they have found themselves in. My friend has stuck to his guns because he wanted to teach then a lesson. Kind of mean but I also understand his side. He says, in the end, it they get sick and need help - he'll have to drop everything to travel away from home to take care of them, possibly jeopardizing his job. The "right direction" according to ALL involved....See MoreFaucet lock/flow limiter to stop tub overflows for senior w/dementia?
Comments (21)I would like to add that when I last had friends who worked in Hospice, they provide adjunct care - visits from PT, OT, and Wound Care, music therapists, social workers, pastoral care workers, and maybe bathing aids. They did not provide basic sitters/nursing assistants. That is also not covered by Medicare. It is all up to family and state Medicaid (if the income is low enough) to pay for basic care. There were a very few onsite Hospice Care homes, though, where everything was covered (I believe). Those are rare. I do not know if Medicare pays for "memory care," which are like locked nursing homes for dementia patients, for more than the 100 days they pay for initial nursing home care. You would need to look into that if that time comes. Last I knew, Medicare paid only for skilled nursing care (where you need an RN or Physical or Occupational Therapy), never for any basic care. And the max was for up to 100 days (they decide when you are well enough to go home and quit paying for it then.)...See More- 7 years ago
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