Early stages of dementia, crying!
7 years ago
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- 7 years ago
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My step-mother has dementia
Comments (3)I think talking to the doctor before your father (who must already be under increased stress) is a wise choice. The drug therapies for elderly dementia patients can be so individualized, the doctor may have reason for prescribing this drug given her particular history - you'll know once you've asked. All I can add is that my good friend took her mother-in-law into their home for the last 5 years of her life with dementia, very rough on the household (and mother) for the first few months with episodes of paranoia, anxiety and aggitation....which couldn't be attributed to strange surroundings, she moved from next door back into the larger family home where she had raised the son who was now 'raising' her. The neurologist prescribed Aricept and shortly after she was sleeping more hours than anyone would like to have seen, but sweet and peaceful the hours she was awake. That continued to the time of her death 4 1/2 yrs later at age 90, at home and quietly....See MoreDementia question
Comments (21)Hi Susan, Do you know some of your father's friends? How to contact them? Do you know whether your brother may perhaps have talked to one or other of them? How about calling one or more of them, for I'm sure that they'll be able to fill you in on how things are going with your Dad ... some of the blank spaces. Will he be upset about your interference when he finds out that you've been talking to them? Maybe a good idea to let him know of that possibility beforehand, so it's not a surprise when they tell him that they've been talking to you? I agree that it's important that you catch the queen bee ... and cut off her wings before you get stung. Trying to mend things later are hugely costly, both in terms of emotional and financial issues ... and may well alienate family members who were formerly friends. You haven't been able to come up with a pill that has even a possibility of turning a greedy person into a benefactor of charitable causes? Various religious enterprises have been making efforts toward such an end for millenia ... with limited success. Good wishes as you proceed with the actions that you feel are necessary to meet your father's needs: I hope that he can agree with the need as you go along, for it's unpleasant for everyone if such actions need to be undertaken when the elder is unhappy about them. ole joyful P.S. I have said for years that it makes sense for several seniors to find a home where they can live together, for it shares chores, meaning lower such burden for each, and there's social interaction, with the extra bonus that minds are kept from going to seed as quickly, plus shared costs of household, plus utilities, plus food, etc. will cost less than living singly ... and certainly far more than for them to go into either a residential or nursing home. It would make sense for them to pay for a homecare person to come in to do the heavy household chores, etc. The major benefit is, of course, that if someone takes ill, there are others on hand to provide immediate care, call for help, etc. - and quite likely have good judgement as to which course to follow. Not useful to have two, three or four, etc. move into one person's home - or that person will always feel that s/he's the untimate authority - "It's my home, remember!". Not a good idea to have only three ... or two will form a deeper friendship and the other will feel imposed upon - even ganged up on, whether that opinion may be somewhat justifed, or less so. But people say that it can't work - that they'll fight. Over someone's desire to move a chesterfield an inch or so this way or that, etc. - peanut stuff. It would need to be overseen by a congenial woman, who was able to mediate difficulties before they got out of hand, whom everyone loved ... and it'd be best if all of the residents/(inmates?) were so pleased with her that she had them eating out of her hand (metaphorically speaking). o j...See MoreIs this dementia, selfishness, or something else?
Comments (22)Can you talk to your mother about planning for the future -- more as a just in case than suggesting that she needs help now? In my view, everyone should have at least one other person listed that doctors can talk to. Even better would be to add a medical power of attorney that at least gived the named person the ability to make decisions -- decisions which can be as general or as limited as necessary. Do you belong to Costco? Their website has a computer program called WIll Maker. I used it to prepare some documents for my dad (he wound up not using them) and had it available when a friend's mother would up in the hospital needing surgery and the doctors were telling my friend there was a better than 50% chance her mom wouldn't make it. If her mom had difficulties or didn't make it, my friend would be in a terrible position. You don't want to go there. Both my mom and MIL had Alzheimer's and my dad had another form of dementia caused by heart issues. Don't count on being able to get conservatorship until you are past the point where your mom is likely to have had significant problems, injuries or losses. Besides that, taking your mom to court to take away her control and her dignity is not something you or she really want to have happen. I would strongly encourage you to talk with her while she is still competent and get her to at least list you and/or your brother on the medical information release forms so the doctors have someone they can talk to if she should fall or be in an accident. We all need that. If you can get a power of attorney, that would be much better. The power of attorney can be a way to approach discussion of end of life choices too. It will really help both of you if you know what kind of care she wants and her preferences both in terms of medical treatment and in terms of what happens with her property, a funeral, etc. These are hard things to deal with, but time is slipping away from you and you don't know how much time you have until your mom may not be able to help with these things and you are forced into the nightmare of taking away her control and trying to guess what she would want. If you know what she wants, you have a basis for making the difficult decisions. I cannot overstate how important that is. I lost my parents less than 5 months apart. That was difficult enough, but at least we all knew there was a plan for how to deal with all the unplanned things that kept coming at us. I know my dad feared that and wanted to stay in control, but in the end it as especially reassuring to him that I knew and he then saw me honoring his wishes and protecting them. Please try. For both of you....See MoreWWYD: Dementia and Surgery
Comments (54)One other perspective fwiw: I have an elderly parent with Alzheimers and we learned the hard way that hospitalization and anesthesia (as well as pain and/or pain meds) can precipitate a condition called delirium - and it's especially common among the elderly and those with dementia. My father was living independently, with a lot of personal care help etc, when he had a minor medical incident. After a day in the hospital he basically shut down, physically and mentally, in what we later realized were classic signs of delirium. It was a six week ordeal, life and death, much of it restrained and/or semi-conscious -- even though there was literally nothing wrong with him physically. He ultimately survived, but never returned to anywhere near his baseline. He was living in a continuing care community at the time and so we moved him to the skilled nursing wing instead of his own apartment. 18 months later, he's now under hospice care. I'm sure that he wouldn't have declined so dramatically and so quickly if it weren't for this episode. There's nothing we could have done differently; the original ER trip was necessitated by an anaphylactic reaction. He had an Epipen but the only prudent thing was a quick trip to the hospital, which had happened plenty of times in the past. Now, having done a lot of reading on delirium and dementia, I would avoid elective procedures and anesthesia with someone who has dementia. One other thought -- we got great help and guidance from the palliative care specialists at the hospital throughout this ordeal. The regular doctors and nurses were terrific, but they were focused on fixing the problem, such as it was, rather than ensuring his quality of life....See More- 7 years ago
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