Reversing Alzheimer's symptoms
Alisande
7 years ago
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stacey_mb
7 years agoRelated Discussions
Can you help with Alzheimer's Question?
Comments (18)Thank you all so much for your input and support. The two biggest issues we are now addressing are those posed by some of you: Guardianship and Finances. As with any family and situation like this, you can imagine that there is much more going on than what I am able to express here. Families are complicated and this family IS complicated. The facility that she is in now has finally come to acknowledge that they can not just release her - they have said she is unable to make decisions regarding her medical care. Now we need to get two doctors to sign off that she is incompetent before proceeding with the guardianship. Determining who will be the guardian is quite tricky at this point because she is involved in a few legal issues that play into the short and long term affect of the decision. That will be hashed out hopefully in the next few days. If she is deemed incompetent the question arises as to whether she can proceed forward in her legal battles - most, probably initiated by her severe lack of decision making abilities which is a symptom of the disease - and whether it is in her best interest to do so. She is the one who initiated some of the legal issues. Others are the result of her behavior and forgetfulness. Like I said...it's complicated. Once some of these legal issues and guardianship is determined, than we can get more of the financial picture in focus. Thank you Graywings for linking the government retirement and the federal disability links. We believe she is under the older system; but as you said it needs to be confirmed as she did have the ability to switch over to the newer one at some point. We are learning more about her diagnosis which was originally known as Pick's disease. The symptoms fall into two patterns and her's is in the behavioral pattern which shows as impulsive, inappropriate social behavior, lack of social tact, loss of insight into their own behavior or others, repetitive or compulsive behavior to name a few. The other pattern type involves the language skills in understanding speech and such - she is not so much affected by this pattern. It is believed that the disease starts in the 30's and 40's which makes us now think that what we thought was a possible personality disorder had actually been early signs of this Alzheimer's. There has been a history of unusual behavior (as observed by outsiders but denied in general by most of the immediate family). She has definitely been told repeatedly by numerous people that she has Alzheimer's disease but is not able to make the connection as to the consequences. She will insist that the doctors are crazy and argue about every little thing, whether it pertains to the discussion or not. And then she will quite nonchalantly say "I have Alzheimer's, what's the big deal let me out and go back to work". Hopefully when they find the correct level of medication for her, she will be able to voice her desires. We feel strongly that her young teen son have access to her if he desires as the past few years have been turbulent for all concerned. Thank you again for all your info, recommendations on facilities, and especially the support. I will keep you posted. It will not be an easy road but I will look at this as a growth experience. The thing that has hit home hard is, without parents around any longer - WE are the adults we used to turn to for advice! With much appreciation, Chris...See MoreMy mom got Alzheimer's during aunt's end of life care?
Comments (15)Thank you everyone! I just know I’m going to get bombarded at different points of time while up there, most likely by my aunt and my sisters husband. They will feel I need to be told what my responsibilities are and will be doing so to protect my younger sister who they think cannot handle it. I told everyone long ago that as I lost my childhood I had no plans on losing my older age years as well. My Aunt who just passed knew this and coaxed mom into setting herself up in an environment that has assisted living. I contacted several facilities and had literature sent to her as well as info on all senior amenities in her area. Mom was under the notion that it was all her idea, picked her place to live and she uses most of the local senior services. Of course I will do my share but had to say those things to get the ball rolling while mom had all her wits. I do love my mom but do have to limit the responsibilities to somewhat shared responsibilities with my sister as I live five states away. I have decided not to have any conversations with others regarding mom (except with sister) while up there. My response will simply be “its Karen time” as in, my aunts’ funeral time. And, instead of getting myself worked up over likely “mom” topics from family members I’m going to think of Annie’s words and let it rooolll off me lol. Thanks for that Annie; I’m already putting that great advice into action. This morning I was getting worked up again and visually pictured myself awash with comforting warmth starting at the top of my head and moving down over my body taking all negativity away. Mattie, I have no idea how you have cared for two elderly persons with Alzheimer’s/dementia. My potential problems are nothing compared to what you do on a daily basis. I do not have it in me to be a caregiver for elderly. It’s a selfish thing to admit but true. You are a special person! Kellielog, I know you get what I’m talking about. I had an alcoholic parent and a mentally unstable parent. I’m not sure but do I remember that your dad was both? I know I always felt like the real parent as young as age five or maybe even earlier. It’s not something you ever get over. It’s something that takes over against your will. Being that I’m a very strong willed person it still catches me by surprise. To all, your kind words really have helped right now and I mean that....See MoreEncouraging study on Alzheimer's!
Comments (18)Thank you, alisande, who started this thread. My older sister (64 yr. old) starts having dementia, and the classic symptom of Alzheimer's (constantly accusing people) ... Your info. gave me hope. Here's an excerpt from alisande's link: http://abc7news.com/health/non-drug-treatment-may-reverse-alzheimers/336963/ "Ten memory-loss patients, some with brain-scan-confirmed patterns of Alzheimer's, participated in a small UCLA trial called MEND (Metabolic Enhancement for NeuroDegeneration). In the UCLA protocol, patients made dramatic lifestyle changes. They avoided simple carbs, gluten and processed foods. They increased their fish intake, took yoga and meditated. They were instructed to take melatonin, get adequate sleep, incorporate vitamin B-12, vitamin D-3 and fish oil. Within six months, nine patients saw a noticeable improvement in memory. One patient, who was in the late stages of Alzheimer's, did not show improvement." **** From StrawChicago: fish-oil is best absorbed in liquid form. We used to take fish-oil capsule ... but after reading someone saw fish-oil capsules floating INTACT in the toilet bowl .. I tested it: I soaked fish-oil-capsule in vinegar (same pH as stomach acid) .. and it took hours to dissolve !! We use NOW fish-oil liquid since it's cheapest on Amazon. The liquid is from Norwegian fish (cleaner water) ... The liquid-form of fish oil is often the freshest since they can't disguise the taste with enteric-coated capsule (takes even longer to dissolve), and these often pass through if one doesn't have enough stomach acid. Another one of my favorite fish oil is Barlean's Omega-swirl, it tastes yummy like a sorbet. My teenager daughter likes that taste & it helps to weather her puberty. I tried Barlean's at my local health-food store: tasted good & like orange sorbet, zero fish-taste. I also tasted the LIME flavor, and the orange cream flavor. My ranking: 1) citrus sorbet 2) Lime 3) Orange cream. Very impressive Omega-3 profile: 910 EPA, 590 DHA, and 370 other Omega-3 .... for a total of 1,500 mg of Omega-3 per Tablespoon. I bought the Citrus Sorbet, only one left in the store's refrigerated section. I prefer buying fish-oil at local store's REFRIGERATED section, it's fresher that way. Also saw Barlean's swirl at Sam's club, but not sure about its freshness....See MoreDementia/Alzheimer's
Comments (17)You have a challenge for sure and yes some things need to be done. But a little dust in the home isn't something I'd jump up and down about when he's out driving. Establish your priorities. First things first. Laws of course vary from state to state so you need to do some research. Here in MN, a guardianship is not an easy thing to get. A Conservatorship is far easier and gives most of the power that would be needed here from your description so far. It would enable you to help with finances, etc. I'm not sure what your "draft" system is, I'm assuming it's some sort of an automatic bill payment. That can be OK if someone is monitoring it. He's still going to be susceptible to the phone scams, disreputable family members, neighbors, and others who prey on this type. Driving. You should get a statement from the doctor on his ability to drive. Put it in the doctor's lap if possible. I don't know his driving habits or anything but hitting a kid or getting lost are real possibilities. Even contacting the DMV seems extreme but a lot of people simply shouldn't be on the road and they can help evaluate. My dad went through it as did a good friend. Another friend was forced into it when his mother took his (these days you have to say) "challenged" daughter and disappeared. They were going to the store and she got lost. We had everyone we knew out searching for them, police and highway patrol were alerted. This was before cell phones were so cheap that everyone had them so there was an extra challenge there too. They were found, pulled over on a freeway ramp. That was enough to get him to pull the keys and take away the car. My dad was the same way, attitude-wise. Nobody's gonna tell HIM what to do! You need to approach it like handling a kid at times to avoid tantrums. One way that helps is to make them think it's their idea. "You wanted me to remind you to make the appointment" or "That was a good idea to get that checked out, you should do that right now. We'll go do it and stop for lunch afterward" or whatever works with him. My sister and I would go over and do some cleaning while he was gone. A lot of times he wouldn't notice it, which was all the better. I'd stop and mow while he was sleeping or gone. At first it really angered him but then it wasn't too bad. He started getting used to it. Otherwise, the suggestion to go in a group, even 2 or 3 is good, and 1 or 2 keep him occupied while other(s) tend to some things and rotate out. The biggest thing is to get it started and go. It has to be done and putting it off isn't going to make it better or easier for anyone. The optimist in me wants to point out this can even be a positive experience. Spending time with them while you can is enjoyable for both. Take a recorder and get him to tell stories, family history and the like. It also exercises their minds a bit. The recordings later will likely be treasured. Assisted living is nice, but around here, I doubt he'd be allowed into assisted living. Much depends on the local definition. Here, you have to be able to care for yourself for the most part. If his mind is going, he's going to be sent to a nursing home around here. Assisted living is exactly that, an assist. They'll give you the option to eat in the dining room, the option to have someone do light cleaning, the option to have someone wash clothes, etc. If he needs physical therapy or something, that is not part of assisted living. If you cause any trouble for any other residents, you're out. They do not have people who check on you daily, care for you, etc. It's an apartment with amenities for people who are having trouble, but it's NOT a nursing home and they're not about to become one. Went through that with my one aunt. They were patient with her and she became good friends with the administrator so they let her stay there longer than most but she was bumped to the nursing area when she was having troubles. An old GF's uncle was in a fabulous one in Eau Claire. I'd love to move into that place! Price was very reasonable there too. But there too, it's assisted living, not for someone who needs advanced care. So do some research on that before assuming things. Good luck....See MoreAlisande
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