I asked my dh about this and he said he already knew and was waiting for the notice from the authorities. Personally I am having to switch to Ibuprofen due to liver issues I could have due to the chemo. I try to not take meds much. Luckily for the kids I use half doses and always buy the generic so I don't have to throw out anything.

Thanks so much Amygdala.Yes my son does have coverage under dads insurance and always has.They have been great.They have paid unbelievable amounts toward Adams expenses but they can only do so much.Unfortunately sometimes even the smallest remaining balance after insurance pays can be a hardship when there is also medicine to buy and gas for trips to out of town doctors and physical therapy and such.I had no idea just how much the CIDC program actually helped until we no longer had the help and a year later the after shock starting hitting with all the unpaid medical bills on top of buying the necessary meds and all.And during this time my daughter was diagnosed with her condition also.It just put us in a desperate place.I did intend to go by the social workers office while we at Childrens Hosp. Monday but after trying to track down the Neurologist's office who had moved out of the hosp to another building I completely forgot.Their office is the office that originally got Adam approved for the program to begin with.But since then they have devised a waiting list policy and it is backed up 5 yrs from what they told me.The beaurocracy is just unreal.They first tell he has to qualify for the waiting list either by income or by meeting another spin down amt.which we met well above what we needed to.Then we have to apply him for the state organized CHIP ins. but had we accepted we had to drop medical coverage thru DH's employer( NO WAY).So we refused the program and I had to send a letter explaining why to the state office.I did this.Then after about 4 or 5 mths I just recieved a letter stating that Adam was accepted on the waiting list.(This does not mean he is in the program just on the waiting list).I call the office handleing his case to see what his status is on the list and I 'm told because they have not recieved a confirmation from the state office of my refusal to accept the CHIP program that he actually isn't even on the waiting list until they get that confirmation.I then call the state office to explain what I need and I'm told they will get one to me .Well that's been two weeks and I'm still waiting.On top of that by the time I got the actuall letter telling me he was on the waiting list the dates of acceptance were such that it was going to be void in a matter of 3 or 4 mths.THen I have to start the whole process over.First by applying my son for Medicaid which I don't even want but they tell me I have to in order to apply him for the CIDC program.Which is a total waste of time because in 5 yrs he has never qualified.Confused yet?I'm sorry if I sound bitter.But can't help it.I cry, I pray, and then I pray somemore.My DH is a hard working man and he is carrying a huge load.And I feel helpless!The sights you offered I will definitely check out.Any info is a step in the right direction.I can't just give up because I am my son's voice.But I never wanted to be a crusader either.Thanks so very much for letting me vent.Shelia P.s. I was just curious I have read many posts you have written and you seem to have so much knowledge of the medical field.Do you mind if I ask what your actual field is.Thanks

Actually the insulin pump doesn't mean she's bad off. It is a relatively new tool, that is used in adult diabetics who have become very brittle. But it is also more and more commonly used by children and young adults due to their sometimes crazy eating habits, wild hormone swings as they approach adolescence and unpredictable schedules. Young girls also experience tough-to-control sugars as their monthly cycles begin to occur. The pump gives them the ability to keep their sugars more at a norm during the day due to a basal dose of insulin it gives out. In addition, they can push a button and administer fastacting insulin as their daily needs require. In short, the pump is the closest thing to a 'replacement pancreas' you can get, without actually getting a new pancreas. And it gives chldren and young adults their best shot at keeping sugars normal over the years. In the long run, it will give them a proven chance to avoid long-term complications like kidney failure, heart disease, blindness and other complications. And it will help them fit in with the other kids, without having to get a needle out and administer a shot.

When my child was in kindergarden, a friend of my child told all of the kids that there really is no Santa. Her parents do not celebrate Christmas at all because of their beliefs, and were very clear with their children about why they do not celebrate Christmas, explaining clearly to their kindergarden and preschool children that Santa is not real, and that parents that tell their children that Santa is, are lying to their children, and that they wanted their children to know the truth, and to know that "they" will always tell their children the truth, so that their kids will know that they can trust them. They did not want to act like Santa was real, and have their children believe they had lied or misled them, and believe that they could not trust what their parents said. You can imagine how upset the other moms were when their kindergarden children are telling them what the other children were told, and then asking "is Santa real mommy"? You will always tell me the truth, won't you mommy? Under "that" senerio, we were all put in a situation we did not want to be in so early, and had to admit the truth. Some of the kids even told that mom what her daughter told them, and she affirmed that her daughter had told them the truth, and went on to explain the same thing she told her children. You can imagine how upset a couple of the moms were with that mom.