Hi, just thought I'd post a little update since you all were so kind to me during diagnosis. I cut off just about everybody besides a few as I went through the first batch of chemo. It was BRUTAL! It was hard to hold a conversation because I'd be wasted by the second sentence. Plus the things people were saying started to irritate me. My dad sent me some cancer diet that he paid for on the net and said the guy selling it stated that I would die if I didn't follow it. My cousin calls and tells me about someone going the extra mile to go overseas for treatment for some leg surgery. How you can compare that with cancer I'll never know but it was like she was saying that I didn't do enough. Truth is, if things had been rushed the other masses deep down would have been missed because they were prepared to just do a lumpectomy and radiation to the smaller cyst-like lump, and no chemo. I just lost patience and most times turned my phone off. I did explain to them on Facebook that it was easier to not even start a conversation.
Speaking of Facebook, I did put out updates to around 20 people so that it didn't have to be constantly repeated and they were hearing it from the horse's mouth. But I found out after that someone was sending these updates through my company's email system and the head of the company told me that I upset a lot of people. Sigh. And my sister still screams at everything I say to her so I limited contact with her to text messages, and haven't told her what type of cancer I have yet.
The good news is that I had u/s scans on Wednesday and met with the surgeon yesterday. The surgeon did not have the results but from looking at the u/s screen and talking to the technician, it appears as if all the lumps have disappeared besides the smaller, hard one that resembles a cyst. And that has reduced in size. The surgeon actually smiled and congratulated me for getting through the chemo. He still wants to do a lumpectomy but the oncologist said no, definitely a mastectomy. I may leave one breast just in case it decides to come back, it can try to come back there first.
Next week the AC chemo starts and the oncologist has assured me twice that it won't be as bad as this first chemo cocktail, thank goodness!
Unfortunately the type of cancer I have is not nice! It's very volatile and reoccurs frequently, normally to the lungs or bones at first. The reoccurrence can happen as early as 2 months after chemo or anytime after. There aren't many stats out there because it is so uncommon, but it's almost a miracle if you make it to 5 years. There are no 10 year stats.
So, those new dish towels that I never used, the perfumes that sit for decoration - they're all being used now. I've started to clear out drawers and will do the closets next. I'm going to fight it with all my might, but I have to be realistic also. I watched as a woman succumbed to it a few weeks ago, and she was diagnosed and treated this past January. Even though they say it is very rare, there are many women being diagnosed with it now probably because the labs are finally recognizing it.
I'm stressing to women to find out if you have dense breasts at your next mammogram and if you do, demand an ultrasound. And if you have pre-teen or teenaged daughters, please physically check them too. Because of environmental conditions, the cancer is hitting younger females.
My job doesn't want me back yet so I spend days researching and making sure I'm getting the proper treatments. So far I'm happy with the plan that has been layed out for me, and if all goes well I should be finished everything by the end of the year. I won't know if I'll be getting radiation until the final pathology report comes in, after surgery. This cancer is known to grow during both chemo and radiation so I may decline the radiation if they get clear margins with the chest wall.
Hope everyone is well and I hope to come back and participate in the near future. I'm sure I'm missing everyone's children growing up and I don't want that to happen!
terilyn
kayjones
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