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finnie_gw

***UPDATE** My Henry has a heart murmur

finnie
16 years ago

Well we went to the Specialist yesterday - and not so good news. :( Henry's heart is quite enlarged, enough so it may be touching the trachea and causing him to cough. At this point I bust out crying and was barely able to talk. He didn't have any fluid - yet - but I gather that will happen soon enough and he will go into congestive heart failure. When I started asking about times - he said "Well he could have 2-3 years of a relativley good life, or something can happen in 6 mos - I just can't tell you." I have a strong feeling it will be shorter than longer - just by the way he said "I'm sorry." He put him on a trial of Enalapril - 1 a day for 4 weeks - to see if he gets more energy. But when Henry woke up this morning, he coughed, which he has never done except after his walks. So if he is coughing by this evening, I will notify the Dr since that is one of the things to watch out for. I am just sick over this - even though I had a feeling things were getting bad. I think 9 yrs old is just too young - he just loves life too much! Has anyone had any dealings with this medication? I know have to take it one day at a time and make sure he enjoys every day - and I will, he deserves it. Thanks for listening and for your prayers for Henry.

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