We Met with the Doctor Yesterday

13 years ago

The family was scheduled to have a meeting with the doctor yesterday at 11 a.m. He had 2 emergency surgeries and it was 2:30 before he could see us.

This guy is about 33 years old and is the head of 6 surgeons in his team. Everyone who has worked with Mom is baffled, they've never seen anything like her case before.

With her tumour/abscess (they are sure it's a tumour) it's connected to things it shouldn't be. Blood vessels, the urinary tract, small bowel, bladder and GI tract (poop). They've never seen something attack the blood vessels and small intestine before.

(Her artery ruptured in her leg twice and they put stents in). This artery is now dead, and the small veins are feeding blood to her leg and keeping it alive.

They want to do a surgery as soon as we give the okay where they will do a bypass so that the urine doesn't go into the bladder. It has a hole in it, and her stool is co-mingling with her urine, and this has them baffled. This should never happen.

Anyway they will do a nephrostomy where yet another bag is collecting urine through 2 tubes out her back.

This will enable her to eat and drink and slowly regain her strength so that 6-9 months down the road they will do radical surgery and go in and see if they can remove the tumour, AND remove her bladder, and rectum.....everything in the gut.

She will for sure have an ostomy bag as well as the colostomy bag she has now. The nephrostomy tubes are temporary, till they can perform the major surgery down the road.

She got out of the CCT (ICU) unit late Friday nite, and has developed liquid, and wheezing in her lugs from the ventilation tube. We told the doctor we didn't want her to have any kind of procedure/surgery while her breathing is compromised.

He agreed and we'll re-visit the idea of surgery in a week or so, and see if she's even a bit stronger, and her lungs have cleared.

Mom did say she wanted to go ahead with this first surgery so she's willing to try what she needs to to hopefully get better.

The risk is there with this surgery and it is definitely higher with the radical one, months down the road.

This woman is a trooper no doubt about it, but it's terrifying, scary, and so heart-breaking. By not doing anything, though is no life either. She's on iv for nutrition and that's all she would be able to do, and with this tumour still in there, and them not knowing what it is, no one knows what it will do next.

The doctor did say that she's in the right hospital, they want to keep her there, not send her back home. It's a top-notch, teaching hospital. Not everyone would want to take her on as a patient because of the uncertainty of what she has.

So we march on, and stay by her bedside and give her our love and support and just hope she will be able to come home sometime in the future.

Hugs to you all,

Jasdip

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Comments (22)

katlan
13 years ago
God bless her heart. It's just heartbreaking to hear some of the things people have to endure. I wish your Mom all the best, and you and yours also.
dotmom
13 years ago
I have no advice, just compassion for all of the turmoil, your precious Mom, you and her family have been enduring. I'm so sorry, and so admire her and your strength. My Prayers and healing thoughts are being sent out. ((((((Hugs, friend))))))
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Georgysmom
13 years ago
Wow! That's all I can say. She's been through so much as have you and the family emotionally. You must be drained. Your mom is such a fighter. All that you can do now is be there for her and see that her wishes are carried out. ((((jasdip, family and of course, mom)))))
alisande
13 years ago
What a huge ordeal for all of you, especially your mom. I'm sure your family's support means everything to her right now. You're a wonderful daughter.
country_bumpkin_al
13 years ago
JASDIP..I am pretty much at loss for words, except to say your Mom, you and the Family continue to be in my Prayers! Your Mom has already proven (not that she had to prove anything) that she's a fighter. I'm just so sorry she and all of you are going through this. I Pray each one of you be given renewed strength daily.
lydia1959
13 years ago
(((((Jasdip & Mom))))))
fran1523
13 years ago
God give you all the strength you need. What an ordeal and kudos to her for wanting to get better no matter what. Some people would just give up.
luckygardnr
13 years ago
Sherry, you must be so proud of the way your Mom is fighting this! I'd be afraid of another surgery, and she's willing to try anything to get better. Amazing woman!
sleeperblues
13 years ago
Would you feel comfortable sending me contact information so I can send her a card? I feel so bad for her, and the rest of your family. You have all been through so much.
phyllis__mn
13 years ago
This is just so much that she has to go through, and still maintain her great outlook. May all go well with her.

Phyllis
jannie
13 years ago
I'm so sorry all this has happened to her, and you. I am still praying for her for a full recovery. Miracles do happen.
patti43
13 years ago
You all have a long, long road ahead of you. Do you think they would call in a top ?? doctor in that field so he could give his opinion on how to remedy her problems.
She's definitely a candidate for the textbooks, it seems.

Is she far from where you now live? I hope not. It does you both good to see each other whenever you can. But don't burn yourself out. You have a ways to go! I would like to send a card, also.
glenda_al
13 years ago
Adding my special thoughts!
socks
13 years ago
Oh my goodness, what a terrible situation for your dear mom. I'm sending caring thoughts your way.

Susan
mawheel
13 years ago
Your Mother, you, and all your family are in my thoughts and prayers.
joyfulguy
13 years ago
What a grinding, long-extended ordeal that you have all been though! And continue to endure!

I pray that strength of body, mind and spirit may persist without flagging for all of you.

May the medical people find their way through this maze with outstanding skill and diagnose the situation correctly. I hope that her situation may be healed as much as possible with as little disruption as possible.

ole joyful
cheryl_down_under
13 years ago
Jasdip - such a trying and difficult time for you all, especially your dear mum. You are all in my thoughts and I wish you the courage and strength to face what lies ahead.
cynic
13 years ago
Hoping for the best.
dollydolots
13 years ago
It is very difficult to know how ill your Dear Mom is and
feel like your hands are tied behind your back. I know exactly what you are going through, I went through the same thing.
Keep your chin up, think positive and hope for a miracle.
God grants miracles every day.
Gods Blessings to keep you strong

Dolly
tami_ohio
13 years ago
Jasdip, I will continue my prayers for your mom and you, too!

Tami
pattico_gw
13 years ago
All of this has to be so hard on all of your family.

Maryann has a saying she always has on her posts....it says..."When the world says....Give up........Hope whispers....Try it one more time. "
I love this....

I hope you all keep your hope...Attitude is a big part of healing.

patti
des_arc_ya_ya
13 years ago
I am so sorry for all the troubles that your mom and your family are having. Good, healing thoughts going your mom's way. I'm sorry that she's having too go through so much. ((Jasdip))

We Met with the Doctor Yesterday

Comments (22)

katlan

dotmom

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