I hope and pray that this brings some relief from your many pains. I hope your quality of life improves, I'm so sorry you are suffering.

No experience, but I hope it works for you.

I hope you’re feeling better soon.

I'm sorry you're suffering from pain. I hope this will help you.

I also hope this treatment will help you.

My only experience is that I knew someone in San Francisco was on methadone, and he lived a normal life. He had been a heroin addict in London, but was a very successful artist and performer. I sublet my bedroom to him one winter while I was in Mexico for two months because he was good friends with my roommate. He stayed with us for a few months after that because we had a tiny office that my roommate (also an artist) let him sleep in.

The main thing I remember about opioids is that they cause constipation, and you might want to talk to your doctor about that. I've had this experience after surgery.

My personal experience with opioids is that they can be very effective. I hope that you have no qualms about taking them under a doctor's care, to get the relief that you need and deserve. Good luck and best wishes!

No personal experiences to share here but I hope this brings you relief.

I also have no personal experience. Sue...if this gives you some relief, go with it. I'm a do-whatever-it-takes kind of gal. I hope this brings some relief. Your positive energy needs a boost....I'm sending some of mine your way too. Have a wonderful day my friend.

Thank you for sharing. Your experience may be helpful to others. Heartfelt wishes that this program works well for you. I hope you felt the hug I sent your way.

I hope they help your pain.

I hope this new cocktail gives you relief and the ability to enjoy life.

Good advice above about the constitpating effects of opiods. Collace and Miralax are your friends.

Chisue, I hope this new regimen of meds will help. No experience to offer, just love and encouragement.

My oldest sister who also has MM takes Hydrocodone and Tramadol plus some oc Nsaids. She has to deal with the constipation of course and has to check in with an addiction specialist every three months. It is working for her more or less. She gets itchy patches for instance. She cant take some opioids because like me they make her vomit-pits. I was told when I was being given some sort of super duper injectable opioid recently and told that you dont actually become addicted if you have pain. This is from when I broke my leg in February.

Chronic pain is so debilitating. I hope this combination of drugs improves your quality of life.

My mom was on that for her restless legs after almost all else failed to help her, and it worked well. She was taking quite a bit of fentanyl after going through other opioids that stopped helping, and this was pretty much all that was left. Sister thought it was a bad idea (I don't know why,) but it really did do the trick. I don't remember that she had any big side-effects from it. I say, at this point in your life, with the conditions you have, take whatever makes you comfortable! Don't drive, though. :)

Patriciae, my sister (deceased,) used to work for Purdue and the "can't be addicted if person has pain" line was a sales pitch they were taught to repeat over and over to the docs. She bought into it and we used to argue til the cows came home! Opiods have their place in bringing chronic pain sufferers some relief, imo. But the idea that one's brain won't become used to them is ridiculous.

Why argue about? The issue is not becoming used to a drug till it doesnt work but becoming dependent to the point of suffering withdrawal. I took a medication during Chemotherapy over 30 years ago during my treatments and 24 hours of being given that stuff would cause me to go through withdrawal. It was the pits. I was given additional pills to take to ease off of it but I preferred to just get it over with. It was like being packed with squirrels. My understanding of addiction to Opioids is that most people with pain do not experience the high that causes people to want to take it. I certainly did not get any sort of high but I did get the constipation which was sufficiently unpleasant for me to want to try anything else even if I had more pain. But that is me and I do have an unusually high pain threshold.

Oh no, I agree with you! My point was her company pushed the line so that those with a marginal or no need for the opioid were told there would be no addiction worry. For those with much pain, it's a necessity, imo. And older people like my mom (who died at 97, need not worry about that.)

Heartfelt thanks for the love and encouragement. Big Help!

I'm to take Miralax AND Senna to fight the constipation. I've just messaged the PA to question taking BOTH together. (I've been using Miralax while on Tylenol-4.) Whatever, I'll wait to change this until after tomorrow's nasty abdominal CT.

The MM is completely 'at bay', but I'm still suspicious that some of my troubles are due to the Revlimid that was added last September. In October I had that face-plant fall (my first fall ever), and various adjustments in dose haven't made me feel better. In April they tried alternate weeks of Revlimid 10MG. By the third week (off the med) I woke up one morning and felt I'd 'met death' -- felt completely depleted. (Ghastly!) Now I'm on Revlimid 5MG daily -- still wondering if IT is causing my all-over weakness.

As is said, no way around it but *through* it. I appreciate the support more than you can know.

You might consider adding Docusate. It is a stool softener. It will not affect the bowel itself. You can take it forever with no drawbacks. Most laxatives affect the muscular action of the bowel and eventually fail to work. Long term problems ensue. Good luck.

Wishing you all the best with your new pain regimen, chisue. You have gone through so much with such an amazing attitude. ❤️

Chisue, three days into it, how are you doing? Are you feeling an improvement? (((hugs)))

I am wishing you all the best, during this difficult journey. Take care! Paula

I am really sorry to read that you are going through all this- I'm hoping that you are getting relief and side effects are minimized.

I have no knowledge or wisdom to share regarding your question. But only sending my sympathies for all the pain and ill health you are suffering, and I hope the meds can provide you with much needed relief. Hang tough!

No personal experience here either, but my heart goes out to you for enduring all the pain and going into unknown territory for relief. You are one brave lady in my mind. May you find relief and healing.

Chisue, I hope something will work for you and ease the pain. I have relatives dealing with some of the same, without the MM, but with the patchwork of patches and epidurals and meds for pain. No Revlimid, as far as I know. How are you feeling now after a few days of the new regimen

Catching up: I got through the abdominal CT, and the barium has pretty much got through me. Back pain is less -- I credit the medhadone. I'm anxious to hear results, as this a.m. I had to take an anti-nausea pill for the first time ever. (Prescription dated last December.) I'm "OK"; just a lot of swollen glands, sore tongue, and feeling kinda 'weak in between the arms' (family saying).

Thanks for your kindness and concern!

I am anxious to hear your results as well. Good luck.

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