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maddielee49

Health update - cross post, because I am stupid

maddielee
last year

Somehow I posted the following on a different forum. I can’t really blame my brain surgery although I blame it for every other dumb thing I do.


Because you all have been so kind, and many have asked.


It’s time for a quick update.


My DH is completely recovered from Sepsis. His specialists have released him from their care. We know signs to look for and who to call if any symptoms make an appearance.


It’s been a little over 6 months since my cancer diagnosis.


At last week’s appointment at Moffitt we learned that the Targeted Therapy drug I’m taking is doing its job, no growth of the tumor in my lung. This is excellent news, since finding the right medicine to fight this type of cancer (targeting the gene and mutations) often takes experimenting.


We are reminded that this treatment is a treatment and not a cure.


“The medicine works until it stops working.”


There is no ‘normal’ of what can be expected. Side effects of the med change, I feel good most of the time. Any discomfort is because of the medicine, not the cancer.


On bad days, which isn’t every day, I know to stay home close to the bathroom.


Sleeping through the night was still a fantasy, until one of my oncologists pointed me to a remedy which is legal in my state but not my country. Peace and love. And sleep!


No sign of cancer cells in my hip area or brain (the report “the cavity is empty” is good, although a funny way to state that).


Mind blowing stat- - Moffitt Cancer Center sees over 1800 new lung cancer patients a year. A very high percentage are classified as ‘never smoker’.


I’m now on a schedule of having a part checked every 3 months. Sept - hip, Oct - brain, Nov - lung. Moffitt ‘s scheduling of scans, blood work and Doctor appointments is choreographed beautifully. I start with a CT scan at 9, blood work at 10, my doctor has results by the time I see him at 11.


I realize how lucky I am having the Center so close (3 miles) especially when sitting with people who come from other states and countries.


The support of family and friends, including gardenwebbers, continues to strengthen me. Thank you. Love.

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