Monday Morning Anxiety
Early today, my granddaughter will begin a 5 day admission at Children's Hospital for an extensive work up of her epilepsy which will include continuous EEG and a sedated PET scan. The purpose of this monitoring is to collect as much data as possible to determine if she is a candidate for alternative treatment or surgical intervention to bring her relief from her epilepsy.
The goal is to capture several seizures while hooked up to EEG, and pinpoint precisely where in her brain they are happening. In order to induce her seizures, they will stop all seizure medications (Keppra).
For safety, she will have an IV placed should rescue medications be needed. Going into status epilepticus is real concern and danger.
On Friday, she will receive general anesthesia again, but this time for a PET scan. If all goes well, she should be discharged to home on Friday afternoon.
I will take any and all positive thinking and goodwill that you wish to offer.
Update in 5 days.