Wishing you all the best!

How incredible. You are brave but I think I would do the same, even though I’m a scaredy cat. Wish you the very best and I know you will keep us posted.

Best wishes and keep us posted.

I'm thrilled for you! I hope you get the best results ever. Be sure to keep us posted and remind us later of the date so we can be cheering for you.

Beat wishes for a perfect outcome!

Sounds promising! I wish you the best outcome possible!

My best hopes and wishes for you! I would do it too, if the track record so far is good!

Wishing you the best outcome possible.

wow, that sounds amazing -- best of luck, June 3rd!

Amazing. I can't wait to hear of incredible improvements for you. Yep, amazing!

Awesome! Best of luck. So great to hear of new opportunities and treatments.

Best wishes for a terrific outcome!

How exciting; hope it goes well and no more tremors when done!

Oh man! I do hope this works for you. I have had good friends with this and it is so limiting. I will think positive thoughts for you. We will want to hear back.

Very interesting. From one phoggie, to another foggy, good wishes to you for a great result!.

whoops, that was reversed.....

This is fascinating, I am wishing you the best results!

For those of you who know of anyone who has a tremor, please refer them to INSIGHTEC....If there is 10 million of us shakers, there might be someone on here who might benefit from Focused Ultrasound also. Feel free to ask questions and I will try to answer them. Something else, I am excited about...a TV station is wanting to do feature about my surgery so it will be videotaped in hopes to help someone else.

Good luck! Ihope it works for you. I have a right hand tremor due to Parkinson's for over 10 years. Medicare hasn't approved the operation for that disease yet. I don't understand why not, a tremor is a tremor. I have been on a waiting list at Stanford for one and half years. I keep praying it will be approved soon so I can have a normal life again. Sorry, didn't mean to hijack the thread, I am just so frustrated.

Wishing you the best possible outcome, Phoggie. I am so excited for you!!

All good wishes for a successful surgery and fast recovery.

How it goes wonderfully well for you, and you get the outcome you want.

Calflowerluver....don’t feel sorry for posting...that is why I posted hoping it would be helpful to someone. If you have Parkinson’s, have you inquired about Deep Brain Stimulation? That is approved for Parkinson’s. FSU is being done for ET....maybe the tremor is in a different part of the brain. I hope you get some help soon. Tremoring is NOT funny! Hugs 🤗. Just curious...does your hand tremor when it is at rest or when you hold something? That is the test they did for me twenty years ago... I feel fortunate to be doing this so soon in Nebraska..it was a 1 1/2 year wait at Mayo Clinic.

Phoggie, I do hope this gives you relief, and thank you for sharing the
above info. I've watched as my good friends tremor seemed to progress
from a little jaw tremor at lunch years ago to full blown essential
tremor. Not sure what all she's tried but do know she recently tried Botox shots, which did nothing for her, and is scheduled for acupuncture this coming Tues. By the way, her right hand tremor is when she holds something. Even worse when she gets upset.

phoggie - Thanks. I thought about DBS but am holding out for the Ultrasound treatment. I don't like the idea of them cutting into my brain. The only time the tremor stops is when I am sleeping. Hope your surgery goes well. Let us know how it turns out.

phoggie, you made my day! Hard to not be happy when hearing good news. I want you to win at this! I have followed you quietly for years.

Wishing you the very best and that all goes well.

Sue

Wow! I bet you never thought you'd have to learn so much about brain anatomy!

Sending you thoughts of strength, courage, speedy recovery and the best possible outcome from your procedure.

What wonderful news....sending a prayer for success in all phases! And, a

hug just because.

Great news! I’m sure anyone would be nervous, but excited to have this opportunity too. I love hearing about these breakthroughs in treatments. Hope everything turns out as expected with full recovery for you.

What wonderful news and you made it happen that you will be well. I'll bet there was a great deal of research work and learning that went on and you aced it. Better days are a coming for sure. Thrilled and happy for you.

Good grief. You are one brave woman. Think anyone would be nervous doing this. You are to be commended. Very good luck to you.

GREAT NEWS! Relax, and use these few months to make yourself into the healthiest possible YOU.

When I chose hearing aids, I had to decide between those using batteries and a more expensive rechargeable option. The fitter said that many people can't manage the teeny batteries due to tremor. There must be a huge demand for this procedure.

DH developed ET in his right hand about 25 years ago. At 81, it's still only 'annoying', and not yet a serious problem for him. (Annoying when holding the newspaper or a fork; I am noticing more tremor when he is holding the steering wheel too.)

We'll be waiting to hear your outcome. I'm sure it will be GOOD!

Wishing you all the best. So grateful you have this opportunity for healing.

Breenthumb, your friend has a classic ET tremor. It is my right hand that tremors when I write, eat, thread a needle, drink etc...and yes, stress does certainly magnifies the tremor! Give her a hug from me...🤗

Maggie200...”quietly following me for years” .... I hope I have not led you astray 😉

Chisue, thankfully, I do not have hearing aids...yet...but putting in that battery would be impossible for me...trying to put on earrings is even a huge challenge!

Wow this is all so fascinating. Who knew such a thing even existed. Your sharing has opened the door for others in similar situations.

You wouldn't be normal if you weren't scared. I think that is only natural, but think of all the possibilities and improvements to your quality of life. Wishing you the best and a speedy recovery.

All the best wishes. I need to tell a neighbor about this, He has a similar problem. Thank you for telling us.

Praying that this upcoming procedure will be a complete success for you.

My mother had an ET for years. I wish you the very best outcome with this procedure.

This is very exciting for you! it'd be very scary to me. my tremor was much worse in the early to mid 2000s. it doesn't seem so bad in recent yrs. or maybe I've just gotten used to it. mine is worse when holding a cup or glass. I try not to use glass. I use mugs for drinking. I also have 3 trigger fingers on the right hand. and it is worse when I'm really tired, stressed or sick. I'll have to ask my sister and nephew if they notice it.

be sure to post a reminder days before it happens so we can be in prayer for you (and the doc) in advance and during the surgery. if they do a video, I hope there is a way to view it.

This is such great news. Now just behave yourself between now and then, so you are at your best for this surgery. Sad there is no March Madness to get excited about and take up some waiting time.

Oh lady pat, I am having terrible KU Jayhawks withdraws!!! I spend hours in Match watching college basketball ❤️💙🏀

Phoggie, I'm happy for you!!! My prayers for the best possible outcome!

Good luck with the procedure. I met with a Philly neurosurgeon to discuss if I would be a good candidate. I haven’t had the testing done but in general it appears that I would benefit. He also suggested DBS, which I am not willing to do. Unfortunately for me, my insurance won’t cover the cost of focused ultrasound so that will fall on my shoulders. If I do it, it will be done in January

Jojoco, i hope you will also be a candidate for FUS. DBS was too scary with holes drilled into the brain and running wires from the brain to the device implanted into a chest! Best of luck to you. Where would you have it done?

Phoggie, mine would be done at Penn Medicine.

Well....I received a call today from my surgeon’s office that my FSU will be put on hold or canceled because of the Coronavirus 😩