((((Terilyn))))

I'm so sorry to read this! When my sister had her initial problems with her heart atrial fibrillation Etc she had swelling all over the place. A water pill helped her the best but I see you're already taking a diuretic. The weird thing is that it's only in one leg for you at a time. Some people here were mentioning that travel caused them to swell up. Have you been traveling? It sounds like you've seen every doctor. I get allergy and sensitivity related swelling in my face Maybe you are allergic to something you're ingesting. Also talk to a good pharmacist bringing all of your drugs list along for him or her to see. Maybe they know of negative interactions which the doctors don't know. Hope people have other ideas. Good luck

No traveling, only use one pharmacy, they are very aware of the situation. I don't know where else to turn.

I'm sorry you're dealing with that! I can relate to the junkie comment - my arms are all black and blue from my ER visit a few days ago (took them 4 tries to get my IV in - ouch)

Have you had any falls or injuries? I had a bad fall a few years back and had a hairline fracture in my foot that I was unaware of, so I never treated it. This foot swells all the time now due to weather, or sitting too much, or too much sodium. It's always bigger than my other foot. Just a thought, though this seems unlikely for you since the swelling seems to move between feet and ankles/calves.

Terilyn, I sense how totally hopeless you feel. I am sorry you are going through this. I have my fingers crossed that with the wealth of information here, someone will have some suggestions to get you the help you need.

My mom's first symptom of a mass in her abdomen was a swollen leg. Luckily, we caught it in time. Her primary care doctor (at that time) kept calling it "idiopathic" and had prescribed her a custom stocking. My mom had no pain at the time, and no other real symptoms. DH and I got her checked out by doctors we know and trust, and a scan revealed a mass pressing against her ureter.

This is NOT to say this is what's wrong with you, by ANY means. But I will say, that pursuing it until you have exhausted all the possible diagnoses is advisable. And I agree with mdln, to get into the system at a teaching hospital, or what they call a tertiary care center. If possible. I would gets tests, and tests, and more tests, and consults from different types of specialists.

That's very similar to how my rheumatoid arthritis started along with a few other auto immune disorders. Check with a good rheumatologist. I had everything run on me. I am happy to give you the name of my rheumatologist if you need one. She is awesome.

Good luck!

Terilyn, so sorry to read this. I have no info, just sending you a hug. Hope you get some answers soon.

mdln's is the knowledgeable voice, please take her advice. Get yourself to a medical school practice where your diagnosis can be considered in a coordinated way by, if necessary, a team of experts.

If that's where you've been seen, try a different one.

Keep at it. I feel for your frustration, but it is important you find the root of this problem. The swelling could be a symptom of many, many illnesses (serious or benign) so you need to get to the bottom of it. As you've already read, get yourself to a multi-disciplinary facility where the specialists can work as a team. Don't be afraid to have to travel to find a center like this. It will be well worth the inconvenience to efficiently determine the cause of the swelling. Hope you have a quick resolution to the problem.

I’m sorry you’re going through this and I hope that you get it figured out soon. I agree that it could be the symptom of any number of things so it might take time to get it resolved but don’t give up.

wishing you find some answers. I hope you will look into some of what others have advised.

I have kidney disease and frequent swelling. I like on the floor with my legs up the wall in an L shape, it helps a lot. Were you checked for cellulitis?

So sorry, no help from me except to wish you well.

Hope you get some relief soon....I know nothing...sorry I'm no help.

I'm having problems with swollen feet/ankles for the first time since I was pregnant 47 years ago. I do see doctors who are on the staff at our local med school, and have had multiple tests, but so far, no explanation. It is very frustrating. A friend at pulmonary rehab is having the same experience - a fortune in tests with no answers. Maybe it's just being old...