Couple choose medically-assisted suicide/disabled disability advocate
8 years ago
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- 8 years ago
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Any ideas? Advice please!!
Comments (6)I'm not sure I completely agree with what everyone else is saying. If your mother is having short term memory problems then maybe it is not that she is purposefully not telling you things, maybe she just does not remember, and may very well not be able to take care of things or understand enough to ask the right questions, not everyone is medically inclined. And it sounds like she is very lonely as well, don't sound like she has many people that come and see her by the statement your afraid her landlord may find her dead and her have been there for awhile. You live very far away and circumstances prevent you being there much, but it sounds like she does not have many friends etc... that stop by. I wonder if there is not like government apartments there for the elderly where she pays by her income and there are strictly older people in that apartment complex so that she has people to interact with and check on her, that could very well ease your worry and I sense alot of worry beyond the fact you and her don't get along, that does not mean you don't love her. Loneliness breeds depression and I can tell you it makes people terribly bitter. She may be embarrassed by her lack of memory often times even like in the beginning stages of dementia people know they are forgetting it is embarrassing and they lash out at people that bring up the idea and try to help because of embarrassment, slowly letting go of your freedom as you knew it whether it be because of mental or health issues is very hard. She also may be saying you have to come and take care of her at the hotel because "insurance" won't pay because that is her way of saying she misses you and is scared and needs you, she may be very proud and would never come out and just say I need your help because if the doctors say it then she don't have to feel like she is burdening you. You may not get along and I am not sure the circumstances but I know you only have one mom and when she is gone there is no bringing her back. I have the most stubborn sarcastic father that fabricates stories and I could go on and on. But I let him know I love him and I just want him to be my dad first, and my mom had a severe stoke in her early 50's and he takes care of her and there has been alot of riff, so I know where your coming from. I also know the lord says honor your mother and father, and I am trying so hard and I know it's tough. But maybe you and your mom need to discuss the things that have made your relationship go sour, for you and for her, because when she is gone you certainly can never fix it. You guys definately need open communication with her being so far away and not really able to come to you and you not able to move as well. That's just my opinion....See MorePublic Assistance/ Medicaid as 2ndary Ins.?!
Comments (21)I'm glad some have pointed out that children with special needs often have two insurance coverages: the private one that their family has and the Medicaid as a secondary one. Often special needs kids have overwhelmingly-expensive medical and psychological needs (that's what special needs means, after all) and fewer families might be willing and able to take them on without the assistance. It's really better for us all that all kids have permanent families, that families have protection from ruinous costs and we all live in a society that goes as far as possible in meeting everybody's needs. As far as adults also getting Medicaid when they have priate insurance (not Medicare which is different, though confusingly named; some below-65 y o people have Medicare because they have disabilities and they are on SSI or Disability benefits) some may be completely legitimate in ways that are not immediately visible to you. Of course some people are cheating, or at least gaming the system and that's awful, but I wouldn't be too quick to condemn unless you know the exact circumstances of the individuals. My DH and I are self employed and we pay more than $1500 a month (for the two of us) and have a $4,500 annual deductible so no one needs to tell me that things are out of control. That's over $23,000 per year! (And it's not a so-called gold-plated plan, either; I wish!) It is our single largest expense: higher than property taxes, food, transportation, etc. If we still had a mortgage we'd be in a precarious place. Our state (NY) has a variety of income-dependent Medicaid-backed private insurance oferings, particularly for children and low-income adults some of whom may be working but unable to afford co-pays/co-insurance of private insurance. We don't qualify because our income is too high, though our household budget is seriously stressed by having to earn enough to meet a #23+K nut just for health insurance before we see a dollar of coverage. Never mind the rest of those pesky things like food, heat, gas, property taxes, etc. The whole situation simply sucks right now, and it's really offensive to believe that some people are gaming the system. But I think we should all spend our efforts advocating for more and better health insurance reform, not less, or worse a retreat away from the modest gains made last year. Personally I'm for some sort of single payer system. No that's not perfect, but I think it's possible to use the experiences of other countries to improve on their systems and do it better. Single payer or Medicare for all, and let's move on. There I've said it out loud! L...See MoreAdult child needs advice
Comments (26)All of you are starting to really anger me. Tracystoke with her post:"yawn ,yawn ,get out and about and sniff smells" is about as disrespectful and rude as it gets. The others nitpicking and thinking they have all the answers and solutions to secrecy's desperate cry for help. I understand that he gives reasons why he can't do certain things that are suggested to him. Why is he being accused of making excuses. I see cold heartless responses and "You are the problem" when met with lack of an instant "Eureka!!!" moment default everyday suggestions that really can not work in his situation. He has and told us he has been diagnosed. He has to battle a mental illness. He is depressed. His home situation is deplorable. Does everyone think he really is possibly lazy, or doesnt want to have a job or bother looking for one, etc. etc. etc.??? HELLOOOOOO! He is reaching out for advice and telling someone with his illness and home situation to go get a job, or stay with someone else, etc. just doesn't cut it. I am sure some of the people mean well. I myself am on disability, with a couple illnesses with no cure. By the way, I also have Narcolepsy. I am stuck in an abusive situation just to keep a roof over my head and not end up homeless. Secrecy, I have a couple suggestions, and will understand if you have difficulties with them. Just try your best. The first good thing you are doing for yourself is asking for help, and sticking to your guns and not dropping off this thread and giving up (at least to as far as I have read). You do sleep so much with depression, let alone any other problems with it. If you can, try to get on several different additional forums such as one for Mental health or depression, looking for work is an insane undertaking at this point in your life. Does everyone really think that if secrecy gets a job how can he actually function with the mental and physical state he is in? Number 1, try to get help with depression, maybe getting medications, help with how to COPE with your home situation. Number 2, try to get from Mental Health doctor a referral to a sleep center to get tested for Narcolepsy. If indeed diagnosed with that too, medicine will do wonders and get you in a regular sleep cycle. If you don't have it, then,you know depression is a big factor. I am not going to guess or diagnose, just adding on to what you have told us. If you try and work with Mental Health, (therapy/meds), learn to cope with home situation (for now, not forever),(through therapy and/or support forums) - ask the people at mental health if you can qualify for their housing. Most Mental Health facilities in just about every town in the US has rooms, group homes, apts. set up for their patients. if they don't, I know they have referrals to agencies that will help. I wish you the best of luck and many blessings for your recovery from the nightmare you have been living in. Do not give up! I have a list of how to help or not help people with chronic illness written by Not Done Living: DON�T assume because I look well that I feel well. Looks can be very deceiving. Many days I look great, but I feel terrible. DON�T tell me you know how I feel. No one knows how anyone else feels. Two people with the same disease may feel totally different. We all have varying thresholds of pain, and pain cannot be measured. DON�T tell me about your great-aunt GERTRUDE and her illness, and how well she managed in spite of it. I am not AUNT GERTRUDE, and I am doing my best. DON�T tell me, "It could be worse". Yes, it could be, but I don�t need to be reminded. DON�T decide what I am capable of doing. Chronic physical illness doesn�t affect the brain. Allow me to decide what activities I can participate in. There may be times I might make the wrong decision, and if I do, I�ll know it soon enough. DON�T be upset that you cannot ease my pain. It won�t do any good for both of us to be miserable. DON�T ask me how I feel unless you really want to know. You may hear a lot more than you are prepared to listen to. DON�T assume because I did a certain activity yesterday that I can do it today. Chronic illness and pain is ever-changing. DON�T tell me about the latest fad �cure�. I want to be cured more than anything, and if there is a legitimate cure out there, my doctor will let me know. DO learn everything you can about the disease. The more you know, the better equipped you will be to know what to expect. DO realize I am angry and frustrated with the disease, not with you. DO let me know you are available to help me when I ask. I�ll be grateful. DO offer me lots of hugs and encouragement. DO understand why I cancel plans at the last minute. I never know from one day to the next how I will feel. Chronic illness is like that. DO continue to invite me to all the activities. Just because I am not able to bike ride along with the gang does not mean I can�t meet you for the picnic at the end of the trail. Please let me decide � If I cancel activities, please do not stop inviting me. I do not deserve to be shut out or forgotten and left alone. Do not give up on my life, I have a hard time doing that myself....See MoreI owe you all the truth
Comments (78)I'm not sure we know the whole story which is fine. I think I know/surmise what's going on as I know of someone that had something happen to them and was followed and photographed. Their FB page actually got them into trouble as they were supposed to be severely injured but they really were just pretending. They posted pictures on FB of being out 4 wheeling and having a great time when they were supposed to be so injured that they could hardly even walk. If there were someone that was investigating the case and did find their on line postings, they could even make something out of nothing. So rather than be afraid of every single word that is said, it is easier to just not participate. If he does indeed have a lawyer, they may be advising him to just halt all on line writing for now. I can't believe that someone has to be a vegetable just to get disability....See More- 8 years ago
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