Helping my sister with her beds
Emily Saba
6 years ago
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Emily Saba
6 years agoRelated Discussions
My sister is on her way home from the hospital
Comments (20)Trin, Sending good thoughts and prayers for her. I went through the lumpectomy and radiation 6 1/2 years ago, so I hope that she will be as fortunate. The one thing that helped me was following the diet they gave me after the surgery. It said to have lots of good quality protein - eggs, chicken, turkey. I can't remember what else. The diet helped me heal quickly. I'm sure that they will give her good advice. Another thing that helped me is that I started swimming when the surgeon said I could. Swimming slowly helped to stretch the chest and arm muscles....See MoreIdeas for helping by sister through her chemo
Comments (10)A friend gave me a little book called "No More Bad Hair Days" - basically little cartoons. Heather showed it around to those starting chemo and had the whole group in stitches (not good on bladders when everyone was given IV fluid overload.) One of the most useful hints, is to have your sister drink lots of very cold fluids such as iced water, popsicles etc. We froze water bottles. This will decrease the circulation to the mouth during the administration of chemo and lessen the mouth sores that can develop from the chemo by constricting blood flow to the mouth. Bring your own in case the fridge is empty at the clinic. There are drugs that can be given just prior to chemo that help with the nausea. Unfortunately, they cost about $20/dose here in Canada but well worth it. If hair loss is going to be an issue, your sister may find it easier to deal with it if she cuts or shaves her hair very short ahead of time. She will need to do this to get the best fit for a wig but it is less traumatic than watching it come out 4-5 days later by the handfuls. If she goes for a wig fitting ahead of time, make it into a little party with one or two of her closest friends. The first time I saw my sister without hair after chemo - just hit me like a brick. It made it "all real". I could no longer deny what was happening. I'll never forget that moment. Journal the experience and look for the humour in the situations. For instance - the anaethetist who told Heather that a mastectomy was "a simple procedure" - yeah.... for who? or the radiation oncologist who told her that it was "no-brainer radiation". We hope someone put their brain into it! These situations provided the humour, although warped, that carried us through. Bring a blanket in case they run short. You can get very chilly with large amounts of IV fluid being flushed with the chemo. Everyone's experience is different. Heather claims she sailed through the experience and in fact she was on a ladder painting the deck a week after. I was amazed at her spunk. I was no help with a broken foot. It hits some people with full force. I don't know how many courses your sister will need but the affects are accumulative. It doesn't get easier as you go along - so it just isn't a matter of "being used to it". Heather found small amounts of food frequently rather than a huge meal cut down on diarrhea. One thing I hated hearing was people telling me "if anyone can make it Heather can". I didn't want to blame her if it didn't work. Strange - our father fought cancer for ten years but I remember the "irrational anger at him" I felt when he lost the battle. Fortunately, Heather is now nine years past the most aggressive type of breast cancer. Remember not to get discouraged by "statistics". The only one that really applies is how you do. She had a 16% chance of making five years. Knowing that in itself caused major stress. She found that teaching as many people as she could about IBC helped. She did nursing inservices and spoke at a lactation conference etc. There are support groups both Internet and in the community that may be helpful for your family. Do the research for your sister to find them. One of the ways I was able to offer help was in dealing with disability insurance hassles. She will be tired and sometimes insurance companies use this to minimize their costs. Some insurance employees are given "paid by performance incentives" to encourage them to pressure you back to work before you are physically and emotionally ready. Chemo fatigue and chemo brain are very real. Concentration may be a real factor depending on your sister's career. A person without energy just gives up instead of mounting an appeal. Become your sister's advocate. Sending along wishes for success....See MoreSister starts her radiation Monday
Comments (19)Trin - I know how you feel. My baby sister is 50 and they treated her for eight weeks with strong antibiotics for a fever. She was so sick. It turns out it is liver cancer. I live in NY and she in Florida. We talk a few times a week. It breaks my heart.She is still receiving chemo and is quite sick. I went down for a week and we both felt better after that. Our mom died when we were young so we are all we have. We just sat and talked by the hour about everything. I felt better myself when I got home. But it is not about me, it's all about her. She is one strong woman. I admire her. I am sending my prayers your way. Lynn Lynn...See MoreSadie May has joined her sisters at the Rainbow Bridge
Comments (16)Awwwww No. I'm so so sorry,Linda. I know she knew she was loved very much. For the short time she was here you gave her a good life. She was a beautiful baby. My heart aches for the loss you are feeling. Take care,Marilyn...See MoreEmily Saba
6 years agoEmily Saba
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6 years ago
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gracie01 zone5 SW of Chicago