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bob_cville

Biopsy results negative.

bob_cville
7 years ago

Well it been an interesting few months. Through the end of April
and all of May I had been having pain throughout my right side and right
back. It was a persistent nagging pain that would be worse after
playing on the Wednesday and Thursday volleyball leagues, but it could be mostly squelched through taking ibuprofen. Lots and lots of ibuprofen.

Finally
around the middle of May I saw a doctor. I told him I was having pain
in my side and ribs and back, he poked me a little bit and diagnosed it
as Costochondritis, which basically means "inflammation and pain in the ribs"

After
that no-big-deal diagnosis, I continued to stay active, and played
doubles sand volleyball one evening after work, after which the pain was
very, very much worse. I probably should have returned to the doctor
immediately, but my wife was out of town, and then we had a family
reunion in Ohio, then we had my nephew visiting us for a week and
through soaking in the hot tub and using a hand-held massager and still more ibuprofen, it seemed to be under control -- more or less.

Finally
after sneezing, and feeling like a spike had been driven through my
chest, I went back to the doctor. He prescribed better pain medication
and prednisone for the inflammation and sent me for an X-ray. That
afternoon he called he at work and said "Its no wonder you are in pain,
you've got a broken rib in your back." he continued after a pause, "the radiologists think the break looks unusual, atypical and peculiar, so can you go back to the hospital for more X-rays and some blood tests, today if you can."

So I went back and they drew some blood and took X-rays of everything, at least 20 more X-rays. The orders mentioned a possible lytic lesion -- a spot where something has caused the bone to weaken --
and they were obviously looking for evidence of more of them. The
doctor scheduled me for a Cat/PET scan the next week to look further.

I read some more about "lytic lesions"
and nothing on the list is good news. Several of the possibilities only
occur in people under 30, a few others are really unusual, and the
remaining two are Myeloma (a type of bone cancer) or any other type of
cancer that has metastasized to the bone.

The morning of the
Cat/PET scan I stopped in at my doctor's office I was feeling quite a
bit better since I had been taking it easy and taking the pain medicine
and the prednisone. Plus I had remembered falling while walking down a
hill in mid-April where all of my weight landed on my right arm which
was really painful (at first) and which conceivably could have caused the point of the shoulder blade
to strike the rib fracturing it, and subsequent physical activity could
have re-broke it several times. He suggested waiting 4 weeks and
re-X-raying it to see how it looked. He then talked to the
radiologists and they thought that scenario was very unlikely, and
thought that I should at least get a CAT scan ASAP and schedule an appointment with a specialist..

A few days later,
after the CAT scan, they were even more insistent that I see the
specialist. I told them an appointment had been scheduled for the next
Friday, but that was the day I was going to my niece's wedding in NYC.
They said to reschedule, and to see if they could make the appointment
earlier than that rather than later.

I was somewhat in a daze,
especially as I went to the appointment with the specialist and I am
directed to the newly-built cancer wing. I explained my theory of the
fall followed by repeated re-breaks to that doctor, but he discounted
that idea. He discussed some of the possibilities and explained that
none of the other tests had shown anything and first suggested a biopsy
but then decided that the next step should be a bone scan, to see
whether any other unusual spots could be located since the known
fracture was behind the shoulder blade and would be hard to access to do
a biopsy.

I went off to the wedding with all of that on my mind
but tried my best to block it out and have a good time. One thing that
helped was that was feeling almost no pain and hadn't even needed to
take any of the pain medicine.

The next week I went in for the
bone scan where the inject radioactive technetium wait for 2 hours and
then place me on a "flatbed scanner" which slowly moves detecting the
radiation. At the meeting with the cancer doctor after that he showed
the results of the scan and the report from the radiologists and said
"It's real." The scan showed a dim grey skeleton on a black
background with a bright spot at the location of the break. At least
there were no other spots shown, but he set an appointment for a biopsy of the bone for the next week to determine what was going on.

My
wife drove me to the appointment since it would involve some amount of
sedation. Although I was nervous going into it, the biopsy operation
was mostly no big deal. The worst part was just having to lie with my
arm at a funny angle so that the shoulder blade moved out of the way.
After it the surgeon said he was sure he got right in the center of the
questionable area and a preliminary look at the sample under the
microscope showed "nothing but blood". He said that they would need to
do something to the sample and look at it more closely to know for sure,
but that there was a chance that this was all "much ado about nothing"

Finally, today, a week later, a had an appointment to get the results of the biopsy.
I went back to the cancer doc in the cancer wing, and was taken to a
room and told he'd be in shortly. After what seems like 10 minutes, he
knocks, comes in, sits down, staring at me stone-faced, for what seemed
like a very long time (but which may have only been a couple of
seconds), before delivering the test results.

The biopsy was
clear, it was just an unusual fracture, in an unusual location, caused
by unusual circumstances, followed by repeated re-breaking of the
undiagnosed fracture.
I wanted to jump up and say "I was right and you were wrong" to the doctor.

Or at least jump up and down.

Comments (40)

  • nanny98
    7 years ago

    You are right, Bob.....what a few months of stress you have survived; I'd be jumping up and down, too. Glad to hear that your medical team were thourough and have found your mystery pain is really not very serious. Keep up the good work, staying well.

  • Texas_Gem
    7 years ago

    I'm so happy to hear that it was indeed what you had initially suspected and at the same time I'm glad to hear that the doctors were vigilant in checking for Myeloma.

    My grandmother and her brother died of that and it is not a pleasant diagnosis.

    Now...go do your happy dance but just make sure you don't fall and break another bone!! ;)

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  • Elmer J Fudd
    7 years ago
    last modified: 7 years ago

    One can only wonder if the unfortunate experiences you've been through are reasonable under the circumstances or might have been partially caused by a lack of prowess among the docs who saw you, including radiologists. Were you being seen by physicians at or at clinics of a medical school? Maybe it was to be expected given the nature of your injury, but it doesn't sound like any of them did a very good job listening to what you had to say. That alone is cause for concern for any "next time" experience with this same crowd.

    There's an aphorism often told to first year medical students. There are probably several versions, but one I heard was "when you hear hoofbeats that sound like large animals running, think of horses and not zebras." Your docs seem to have ignored that simple advice.

  • Amazing Aunt Audrey
    7 years ago

    Was a long journey of tests...better than telling you it was a virus or just in your head. I appreciate a thorough doctor. Am happy with your results. You can be very grateful. Hugs

  • jkayd_il5
    7 years ago

    So happy for you. After having breast cancer and a sister have her cancer metastasize to the bones in her back something like this is a fear to me. So glad yours will heal without serious treatment.

  • Alisande
    7 years ago

    What an ordeal! And what a relief! You'd think he could have delivered good news like that ASAP over the phone.

  • janey_alabama
    7 years ago

    Sorry you had to go thru all of that, but glad it ended happily.

  • Jasdip
    7 years ago

    OMG, I was wondering where you've been, you haven't been quite as active here as usual.

    I'm soooo glad everything turned out well, but you and your wife must have been sick with worry. Are you going to be laying off the volleyball and other stressful activities for a while? Will the broken bone heal? I think your doctor should have been more on the ball, but what a relief.


  • User
    7 years ago

    That's an amazing story. I applaud your strength and calmness while facing such a scary scenario. I hope you can return to all the things you enjoy.

  • wanda_va
    7 years ago

    Sorry you had to go through all of that, but I commend the doctors on being thorough. Isn't "benign" a beautiful word?! I'm so glad it all worked out, with a happy ending.

  • graywings123
    7 years ago

    Amazing story is right. I'm glad you titled the story like you did because it sure didn't sound good mid-way through. I guess the doctors had to ignore your opinion to avoid a lawsuit down the road if you had been wrong. I can't believe you played volleyball with a broken rib - no matter how much Advil you took!

  • rhizo_1 (North AL) zone 7
    7 years ago

    I'm so very happy for you, Bob. SO happy!

  • User
    7 years ago

    I'm really happy for you Bob that is really good news, my husband has myeloma and it's a journey that's for sure.

  • lindaohnowga
    7 years ago

    Very thankful for your good news and thankful that the doctors checked you out completely.

  • bob_cville
    Original Author
    7 years ago

    I have already laid off of volleyball since the beginning of June, and probably will continue to at least until August, even though it is feeling pretty much healed.

    To extend the comment by the-poster-formerly-known-as-Snidely, I think the doctors were looking for a zebra because my explanation seemed to be a unicorn. A single rib broken (rather than several) in a healthy 50-year old male, in a location that is hidden and protected by the shoulder blade, especially given that the fall was over a month before seeking treatment seemed like a far-fetched, grasping-at-straws explanation to them. Especially given whatever it was they were seeing on the X-rays.

    A couple of weeks ago my wife found out that the husband of a friend had just passed away. A day or so later and she learned more about it, she said "he died from 'multiple myeloma' do you know what that is?" My response was "yeah that's one of the things they think I might have."

    Cancer has always been a big scary monster to me, since my mother endured several years of progressively more horrible treatments before finally passing away. Add to that a dimly remembered line from a TV show or a movie where a character is given a diagnosis of "bone cancer" and he breaks down because he had heard in the past something like "with bone cancer its not the cancer that kills you, its the pain of the bone cancer that kills you".

    I do think they could have given the news over the phone as soon as it was available. The cynic in me thinks the doctor wanted another office visit fee from the insurers. A more charitable view might be that he so rarely has unqualified good news to present that he wanted the opportunity to make himself feel better by delivering it in person. I was annoyed at the cancer doctor when he was sitting there saying he was sure the radiologists were wrong all along and was sure that it was an unusual accidental fracture all along when just at the previous appointment he was just as sure that "It's real"

    Although I've never seen it, my new favorite Shakespeare play is "Much Ado About Nothing"

  • Yayagal
    7 years ago

    That's the kind of news that lets you breathe again.

  • ravencajun Zone 8b TX
    7 years ago

    So glad you finally have a good diagnosis and are healing. Take care and remember our bones are as old as we are!

  • murraysmom Zone 6a OH
    7 years ago

    I'm very glad it turned out so well and while you were right, it was good that they did their overboard checking to rule out the worst. You would have been in a bad spot if they had taken your word for it and it turned out to be something much more serious.

    So, All's Well That Ends Well. So very glad it wasn't anything worse than a break that will heal. And good for you for still playing volleyball!!

  • Fun2BHere
    7 years ago

    Happy news, but I'm sorry that you had to go through so many tests and weeks of worry before getting that news.

  • jim_1 (Zone 5B)
    7 years ago

    I gotta tell you that if it were me undergoing all that jazz, my BP would have been through the roof and all the health care folks would have been more worried about a potential heart issue rather than anything else. A simple visit to the doc's office will send it so high one might wonder how I am still alive.

    I feel good that your wedding experience was good. I feel good that you have beaten the medical-care system. I feel good that you have relieved some pain. I feel bad that you are getting older and that this BS happens!


  • Lindsey_CA
    7 years ago

    Oh, wow, I was getting so worried as I was reading your original post. I was getting all teary-eyed and ready for a good cry. SO glad that it's not cancer and that you are going to be just fine. Take care of yourself!!

  • PKponder TX Z7B
    7 years ago

    I am so glad that you've gotten to the bottom of it and at least now you know what caused that pain. Sorry that you had all of that mental anguish though.

  • hounds_x_two
    7 years ago

    What a scary road you have been traveling! So happy and thankful that your results were good news.

  • mare_wbpa
    7 years ago

    You've really been thru it Bob, but you're in the clear. I'm so happy for you.

  • bob_cville
    Original Author
    7 years ago
    last modified: 7 years ago

    Thanks so much to each and everyone of you. It has been a long and scary journey. I thought several times about sharing my feelings, thoughts and fears here at the KT as this was going on. Perhaps if I had, especially early on, you all would likely have pointed out how foolish I was being and how I needed to figure out what was going on. As each subsequent test was scheduled I thought about asking here for kind thoughts and prayers, but I likely would have felt like a hypocrite, since I am staunch unbeliever -- ever since my mother's battle with cancer.

    It was remarkable how much one broken rib can hurt, especially how the pain isn't just localized to near the break, my whole right side ached pretty much continuously. When someone here started a thread about "Does your body predict the weather?" I thought about posting that my right side must be able to predict bad weather in the Houston, Texas area since it had been hurting for most of the time that they had been having bad weather there. However I didn't think RavenCajun would have appreciated that, plus I wasn't feeling much like joking.

    When it was finally diagnosed as a broken rib, I was immensely relieved. However my relief only lasted about 20 seconds until the doctor said the fracture looked "funny" and wanted me to go back to the hospital for more tests "if possible, today."

    At times this has all seemed surreal, like a bad dream from which you cannot awake. Maybe I should take it all as a learning experience, as an opportunity to better look out for myself and my health.

    If so, maybe yesterday was the first pop-quiz. I was using the push-lawnmower to cut down weeds and seedlings, and felt a slight pricking sensation on my ankle, like a fly-bite, but then realized I was wearing socks, so that was unlikely. My next thought was a thorn snagged in my sock, and tried to brush it away, but there was nothing there. The pain then steadily increased, doubling and re-doubling, I abandoned the mower and limped toward the house. I didn't see what caused it but it had to be a poisonous bite or sting from something. I used a benedryl ointment, a lidocaine cream, and took anti-inflammatory drugs, wrapped it, iced it and elevated it. Even with all that it was still throbbing with pain when I went to bed at 1:00 A.M. This morning the spot was slightly numb and tight feeling, but by mid-afternoon the only symptom was a tiny red dot. If this bite or sting or whatever it was, was a pop-quiz, I'm not sure whether I passed or failed.

  • Lindsey_CA
    7 years ago

    "It was remarkable how much one broken rib can hurt"

    I have had a broken rib, and can say it was the worst pain I have ever had.

  • jemdandy
    7 years ago

    Your next challenge is healing that broken rib. It is by now, an old break that has been agitated to the point that it has not knitted properly. That probably means no volley ball for awhile. Maybe they will put you in a shoulder sling.

    I'm surprised that it took so long to diagnose a broken rib, although that one was in an uncommon place. I guess that doc's these days do not see many of that type of injury. If you lived 100 years ago as a ranch hand riding unpredictable horses and driving cattle, broken ribs would have been more common.

    I wish you the best of luck. You've had some luck already in that you have dodged the cancer bullet.

  • sleeperblues
    7 years ago

    I'm really glad all is well. I agree with your cynical statement re: the cancer doc wanting another office visit. And here is another cynical statement: You must have really good health insurance.

  • rob333 (zone 7b)
    7 years ago

    I'm glad you have negative results.



    I would however caution those saying it's all about the money. I'm really sure it's all about making sure you're ok; no stone unturned. Doctors aren't hurting for patients and time is really slim for them, so I truly doubt they want to add to their waiting rooms. Frankly, I'm surprised anyone would really think that! Doesn't everyone have to wait to get seen? Is there ever a time it's empty in the waiting room? C'mon, they don't want to work 24/7.

  • bob_cville
    Original Author
    7 years ago
    last modified: 7 years ago

    I certainly wasn't suggesting that in general, just about the last office visit on Friday where the entirety of it was the doctor coming in, sitting down, staring at me from across the room, and saying the biopsy is clear. That easily could have been handled by an e-mail or a phone call or a short letter rather than having me leave work, drive across town, wait in the waiting room, wait some more in the exam room only to hear a couple of sentences.

    Perhaps they wanted to be sure I got the information, and given how they continually called and left reminders on my home phone despite me repeatedly and pointedly telling them to call my cell phone instead, I can understand why that would be a worry for them.

  • rob333 (zone 7b)
    7 years ago

    I'd say you're right on there. They don't want any misunderstandings when it comes to something as important as this could've been. Also, many people would've been far more anxious than you and they'd want to be there to answer any further questions. I'm just sure of it.


    I was really commenting more generally. Those on this thread and anyone else who might be lurking ;)

  • User
    7 years ago

    Bob_cville, geez, what a scary time for you, but what a wonderful outcome. I was on the edge of my chair, reading about your ordeal. Congratulations on a clean bill of health!!

    jim_1 Zone 9A, I also have white coat hypertension and it's terrible to deal with. The doc has me monitor my BP at home, but it still shoots up at his office, which makes me hate going there. I've also been putting off my dental cleaning because they now insist on taking BP prior to the appointment and, of course, it goes up there as well. I am considering valium. :)



  • chisue
    7 years ago

    Good lord, you didn't "dodge the cancer bullet". That was all in the medicos' heads. Your MD should have ordered an x-ray of your ribs at the get-go. (And you should have sought help at the get-go.)

    I can't guess the cost of all this! There are no 'numbers' to put on your anxiety.

    I cannot think of any reason for making you come into the hospital to tell you the biopsy was *benign*. There's nothing to question about hearing, "This isn't cancer. You were right about breaking the rib when you fell."

  • sleeperblues
    7 years ago

    Sorry, Rob, but this is poor doctoring and poor communication. I absolutely positively guarantee you that if Bob had medicaid or medicare, they would have settled on a broken rib a heck of a lot faster. You can't argue with me, I know what I'm talking about.

  • Jasdip
    7 years ago

    When we go for hubby's follow-ups from his prostate cancer, a couple of weeks prior he gets blood-work done to test his PSA. They should come back with 0 or almost 0, since his prostate is removed.

    The doctor could call us by phone to tell us the results are great, 0 or whatever but he likes to see his patients. So we drive an hour, pay for parking and sit in the waiting room for a 3-minute visit. When the weather is bad, as it was in January, we called and the nurse told us over the phone (good news) But she still wanted us to schedule an app't with the dr, so we made one for April so that our appt's would fall in the spring and fall for good driving.

  • chisue
    7 years ago
    last modified: 7 years ago

    My DH was angry to see that Medicare was charged $300 for a PSA test from his physical last month. He's mid-seventies. His PSA numbers were never 'interesting' back when the test was appropriate for his age (prior to 70).

    We did our physicals at the same time. The lab gave me the option of declining the cholesterol test because I would have to pay the entire cost for it. I did decline it. (Perfect cholesterol is my only health claim to fame.) I wish DH had known he was getting the PSA; he would have declined it as inappropriate.

    Just because a test or procedure isn't Out Of Pocket doesn't make it appropriate.

    Jasdip -- Why is your DH having this test if he has no prostate? Is it indicated because he DID have a problem? (I don't understand.)

  • susanjf_gw
    7 years ago

    oh they can get you going and coming...had a total hyst cancer cervix, and everything that could be, was removed....and the surgeon follow up were a nightmare...the sob had so many patient you get a 2pm appt and see him at MIDINGHT...no joke...I finally said no more...and have had occasional vag checks...even with breast cancer lumptomy I'm down to once a year....but still get squished (tomorrow in fact) btw be sure your next check, they have the latest scanner...

  • rob333 (zone 7b)
    7 years ago
    last modified: 7 years ago

    I'm not interested in "arguing" with you SB, but I too know what I'm talking about. You can try to dismiss it, but that doesn't mean I'm wrong. Besides hearing from my coworkers on a daily basis, here's an excerpt from JAMA (aggressively=lots of testing).

    __________

    Results ...The most important factors physicians identified
    as leading them to practice more aggressively were malpractice concerns
    (76%), clinical performance measures (52%), and inadequate time to spend
    with patients
    (40%).

    _______________

    Because it sums it up quite well. I'd add to it, there are institutional measures expected sometimes, so their hands are tied! The last thing they want is to add to the workload with large numbers of patients.

  • sleeperblues
    7 years ago

    Thanks for defining the meaning of aggressively.