I've never heard that "SWAN" but really that's it! They nickname it "Happy to Starve" in gastro school (per my gastroenteroligist) And many call it "Putnam's Syndome" but that's just a nick name as well given that Dr. Putnam has spent so much time analzying kids with this problem. They tell me it's a great deal like when you're told your child has died of SIDS. There is always a reason children die, but systemically they can't find the reason and so you get SIDS. With us, we got Putnam's or SWAN I guess (Dr Putnam is our doctor as well) :o( Eating disorders normally happen with children who have special needs, like autistic children, children with brain disorders, etc., but we don't have any of those problems so the fun part of this is dealing with insurance companies for treatment, when he has no official disease (his actuall diagnosis is Fail to Thrive without reason). The insurance companies seem to want him to go ahead and "Fail" and we insist that isn't the route we want to go. I learned abut the Kennedy Kreiger clinic on feeding disorders and while reading realized they were describing my child to a T! They do work with kids with much more significant issues involved in their eating problems (ie cleft pallet or inability to swallow etc) but they also have a place for the Jesse's of the world who just won't eat because it hurts. Somehow we need to figure out why it hurts before we begin treatment....that's the hard part. But fortunately we're going to do more poop testing first, instead of anything that will hurt him. Thanks for SWAN. I'm going to have to keep that on the tip of my tongue because I'm tired of having to explain this over and over and over to people who want to hear a name fancier than "Happy to Starve" (Which actually fits him to a T as well)

Hi Trish (and others interested). I reread my last post and noticed that the last sentence of the first paragraph can be misinterpreted because I didn't place it in the proper context, so I would like to repeat it in the proper context here. The following paragraph was my response to your question: how do ethical vegetarians draw the line on what species are OK to kill and what species are not OK to kill? Here's a clue to understanding it when you read it: As it is in everything in life, people can only be expected to do the best they can do. Please, keep this in mind when you read it. Ethical vegetarians (people that don't eat animals for ethical reasons) are people that know that it's not necessary for humans to kill and eat animals. They prefer to live a life that doesn't result in animals being needlessly killed. Some go further than others and of course there are practical limitations. But, I think that all ethical vegetarians would agree that any effort to improve the lives of those of any sentient species is valuable and we don't want to needlessly cause suffering. Thanks :v)

My mom had a terrible experience with a clogged duct and had to have multiple procedures to clear it up. I remember her having gauze crammed in an incesion in her left breast. They left the end of the gauze dangling out like a sick candle wick of sorts so they could pull it out and change it untill the infection had cleared.....scary! I very clearly remember her picking a scab off of it once and having LITERALLY a gallon of puss come pouring out of it. It was off putting to say the least. Doodledoo, when I was taking childbirth classes the instructor was excellent, and really knew what she was doing. At the end of our last class she told us this, "Breastfeeding does not hurt if it's done properly. If the nurses tell you it hurts, make sure you see the lactation consultant because it should not hurt." But when I had my baby it hurt like he!! to say the least. The lactation consultant was on vacation, but her fill-in told me, "Honey, it just hurts some people". Every nurse, every visitor, every doctor told me the same thing - sometimes it just hurts. So I just assumed the childbirth instructor was wrong, until one nurse came in toward the end of my stay (I had some problems and stayed longer than some moms). She told me it hurt her really bad, too, but the regular lactation consultant helped her, and it doesn't hurt if it's done correctly. This nurse couldn't tell me how to do it (it had been awhile), but when she was on duty she'd come in while I nursed and hold my hand and cry with me (yes, it hurt that bad). At the end of my third week, I couldn't stand it any longer. I called the hospital crying and got the regular lactation consultant. She told me to come in, and I packed the baby up (even though I wasn't supposed to drive yet) and went in. It was an amazing experience. Everyone else (except the one nurse) acted like I was a whiny baby. But the lactation consultant didn't even ask to see my chest. She stuck her finger in my baby's mouth, her eyes teared up, and she said with the deepest compassion I've ever heard, "Honey, I know you hurt, I know you hurt. Let me see your chest." By this time my nipples were cracked, bleeding, scabbed and infected. Just the weight of a light summer shirt hurt. I had to bite my knuckles and hands to keep from screaming when I nursed. The lactation consultant leaned over, took my wrist in her hands and pressed it gently. She said, "That's what it should feel like when you nurse. Let me show you." As she positioned my baby, I flinched and prepared to bite myself to keep from screaming. She positioned the baby at my breast and held his tongue and jaw in place, and it felt like a butterfly landing on my arm. Absolutely no pain. It turned out my son had a problem with the way he sucked. I gave up breastfeeding anyway. I was going to have to have a helper every time I breastfed - one who would learn how to position the baby's tongue and jaw and hold it in place. My family didn't have any more vacation time, so I quit. I don't regret quitting - I was exhausted and needed to get well more than my son needed to breastfeed. Anyway, when I had my second child, I knew better. I had her at a different hospital, and she hurt me, too. Again, the nurses and the lactation consultant said, "Honey, it just hurts, you just have to toughen those nipples." I smiled sweetly and said okay, and had my husband make me an appointment with a private lactation consulting firm. As soon as I checked out of the hospital we headed straight for the private consultant. They didn't have the absolute amazing genius of the one who helped me with my son, but they gave me a lot of help. I nursed her through her first year and started weaning her at 13 months. My nipples never got very sore, never bled, never cracked, never got infected. My daughter had a problem with her palate that caused the problem, but no one at the hospital even checked. Here are my suggestions if you want to breast feed: First, the vast majority of doctors don't know beans about the comfort issues of breastfeeding. They are great about illnesses, diseases, etc., but not breastfeeding. Second, if you use nipple shields (I did with my 2nd child), just be aware that you can get mastitis more easily that way. The lactation consultant I had with my second child told me after I finished breastfeeding to make a circle out of my hands and encircle my breast with both my hands at the very top (like way up under my arm). Starting at the top is very important. Then slide the circle of your hands down your breast, squeezing gently. I can't remember exactly why, but I think you're massaging the milk out of your ducts. Also, another thing you can do is this: before you start to nurse, do the above-mentioned massage. This should get the milk massaged down so you will let down faster. I don't know if I'd do that right away, but after the first week I would. This shortens your nursing time a little, because the milk lets down earlier. I'm glad I breastfed my daughter. Our budget was tight and it's lots cheaper. It was also way easier in the long run (I was a SAHM). A few diapers and wipes and we were ready to go, no bottles, no formula. Breastfeeding is also an enforced rest time for the mom - I would have been up cleaning and doing laundry while everybody else bottle fed the baby. If I had had more children, I would have breastfed them even if I worked, because I enjoyed it. I never thought I would - I always thought it was a little icky, but I enjoyed it after the first 3 months. It is pretty icky to me at first - all the leaking, etc. till your body gets used to it is just unpleasant (to me). I am a firm believer that every mom should do what she thinks works best for her situation and her family's. If you ever decide you don't want to breastfeed, then don't. My oldest is just fine and he was bottle fed after the first 3 weeks. But please don't put yourself through the he!! I went through and your mom went through because people tell you it just hurts sometimes. If that nurse could put my son on my breast without hurting, then I know breast feeding doesn't have to hurt. I will say that my breastfed daughter has a much better immune system than my bottle fed son. That may just be coincidence. Anyway, I still don't regret quitting breastfeeding him. That was just too much pain to endure when there are bottles and formula. I tried not to write a book here, but my heart just goes out to any woman who might hurt so badly while breastfeeding, and if I can spare somebody a part of the agony I went through, I want to do that. I wish you a safe childbirth and a healthy, happy baby.

Carol: I'm happy and proud for Holly. Autistic children are VERY SMART, and VERY GIFTED. Jess: I was puzzled by the 40 lbs. mistake too, I saw your hand in one of the pic., it's a slender hand. I'm happy that it's only 20 lbs., due to the kilograms conversion. Twenty pounds is easy to lose. It took me 6 months to lose 20 lbs. when I had the time to eat salad & apple & carrot & exercise. Then I got busy & get into fast-food & IV myself with juice ... and gained back 20 lbs. WEIGHT-LOSS is a life-long-habit to MAINTAIN, rather than a goal to achieve. People achieve that goal, go back to the old habits, and re-gain all-over again. Jim: Thanks for that link on processed meat, I read the entire article. I wish it would say how many people were involved in that study, or how many test-subjects. Re-post info. from Huffingpost on tips to lose weight: http://www.huffingtonpost.com/entry/tips-losing-weight_562e8606e4b00aa54a4ab51b "Aim for 20 to 35 grams of fiber a day from plant foods, since fiber helps fill you up and slows absorption of carbohydrates. " Portion control: Popular “100-calorie” food packages do the portion controlling for you Eating mindfully means giving full attention to what you eat, savoring each bite, acknowledging what you like and don’t like, and not eating when distracted (such as while watching TV, working on the computer). Chew slowly, and savor each bite: Keep in mind also that the most pleasure often comes from the first few bites of a food; after that, it’s the law of diminishing returns. Thus, you should focus on those first few tastes of chocolate, cake, or other indulgences, as this may be enough to satisfy. Get protein in all meals: Some research suggests that distributing your protein throughout the day also helps in weight loss, rather than eating the bulk of it at, say, dinnertime. According to a 2015 paper in theAmerican Journal of Clinical Nutrition, higher-protein diets that include at least 25 grams of protein at each meal may reduce appetite and thus body weight, compared with lower-protein diets. Limit variety at meals. Don’t drink your calories. Allow for (controlled) indulgences. Consider weighing yourself regularly—at least once a week." Huffington Post Tips. **** From Straw: I agree with the above. My lowest weights were achieved when I snacked on high-fiber & high-protein cereal with soy milk ... with at least 35 gram of fiber per day. Also at least 25 g. of protein for each meal, be it peanut-butter or eggs for breakfast, beans for lunch, or fish/meat for dinner. I gained weight whenever I forget to weigh myself at least once a week. Really love their tip of " Keep in mind also that the most pleasure often comes from the first few bites of a food; after that, it’s the law of diminishing returns." So true, I really enjoy the first 4 bites of peanut-butter toast, that's all I can remember ... the rest was just to fill my stomach. Dolly Parton stays slim with her life-long habit, she eats 3 bites of a yummy food, and NO MORE. Practice portion-control is actually fun, once it becomes a habit. So proud of myself last night, I had a sour fruit, so I grabbed a fig-bar, took 3 bites, it was too sweet ... Instead of finishing that, I told myself "You don't have to eat that, you can give it to God." So I wrapped the rest and put away, GREAT FEELING! It felt good to be in control over a piece of junk, and turning something over to God, rather than torturing my body with that.