PeT Scan results are good

16 years ago

thank you so much for all prayers, special thoughts, etc..

So, I don't have to take bendmustene (sp)(or you can call it Treanda) any more right now.

Yea! That one was the drug that gave me a little more trouble... but not much.

Doc (and DH and I decided too) is having me take

the other chemo like a maintanence chemo. So

August 19th I start the Rituxan again. An 8 hour day, but only every two months for several years.

Hopefully it will keep me in NED (no evidence of disease)

for a few more years. yeah!

Now, I need to get REAL with Weight Watchers again and lose that stupid

27 pounds I gained with chemo! lol

thanks everyone!

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Comments (39)

sjerin
16 years ago
Yea, yea, yea!!!!! Just as I posted on your other thread, this came up--thanks so much for answering the burning question. Sometimes it's hard to ask about a test if you don't know whether the person wants to talk about it or not. I'm so thrilled for you, Kat! Maintenance chemo is GOOD!!
donna_oh
16 years ago
WOOHOO!!! Celebrate big time!

Thank you Sweet Jesus!

Hugs to ya, Donna (^_^)
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Hang in there tough lady! Boy it sounds like your doc is right there with you - wonderful!! My mom went to a doc that told her she had 10% chance of being alive in 5 years. Guess what - mom is still here, her scans have been clear after surgery and the doctor is no longer at that hospital! Her cancer doc said she should be fine, but they keep an eye on her. Welcome to the tough old broad club! Big hugs, Kathy
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I'm home now and will get my scan results on Monday. I'll be sure to post the results here. Thanks again for all the prayers and good thoughts. Gale, I've been wondering about you and how you are doing. Please let us know how your scan goes.
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I hesitate to contribute but... I'm a physician, and thought it might be helpful to clarify some things. Believe it or not, I stumbled across this looking for info about stoves (ranges). Anyway - 1. Abdominal pain is a real challenge to work up. Sometimes, a CT scan will clearly show the problem, but often, it doesn't. I'm ER by training, and I usually tell my patients that we only get an answer to belly pain in the ER about 50% of the time 2. The best study is determined by your exam. Sometimes, no study is needed. Sometimes, it's an ultrasound. A CT with intravenous and oral contrast will better show the blood vessels and organs than one without. A barium enema is only useful in rare situations. Xrays are generally not the study of choice 3. If you can't find an answer on a CT, the next option may be treat & wait; or refer (depending on the pain). Sometimes you need to go to an endoscopy, or a gyn, or colonoscopy, or urology. 4. Pain can be functional, meaning we won't find an anatomic cause for it on CTs. Or microscopic, as in celiac disease. Or allergic, as in lactose intolerance 5. Many, many physicians are poor communicators. Even as a physician, I've experienced this, and it is beyond frustrating. If you think you're annoyed - when I am imaged, I ask for copies and reports, and I like to look at my studies myself. Usually, I get someone who will help me out but occasionally I can't see the studies, get copies or get the reports. It drives me NUTS! 6. What sounds abnormal on a report may be no big deal clinically, or at least - not an emergency. It's not ever good to get information without an explanation, and it sounds like that happened to more than one of you, and for that I am sorry. An explanation can take that "slightly enlarged liver" or "ovarian cyst" from "I have cancer" to "that's a normal variant, or normal for me." 7. There is ALWAYS someone on call at your physician's office - you should be able to reach someone who can answer questions, and you can ask to speak to the physician. Don't let the front desk feint. The earlier you call (e.g. 12 PM vs 11 PM), the happier they'll be to answer your questions 8. Your doctor might say "I don't know," and that's ok. Not because you should be satisfied without an answer, but because the answer might be - there's something we haven't found. In that case, the next best question is, "what do we do next to figure this out?" 9. In terms of physicians, nurses and the health care industry as a whole: like teachers, who have been placed under a progressively more stringent set of requirements that are difficult to meet, there has been enormous economic, regulatory and social pressure placed on physicians in recent years. Patient volume has increased such that we are expected to see more people per hour with the same amount of productivity, which is virtually impossible with the inefficient computers and regulatory hurdles. Your physician, for example, is supposed to assure the government that he's counseled you on smoking, treated your blood pressure and counseled you on your weight - even if you just came in for a sore throat. It's often hard to make patients happy when they want things that aren't medically necessary. There is increasing pressure to reduce utilization (e.g. CTs), decrease antibiotic use (antibiotic resistance) and reduce pain medication (opiate / heroin epidemic). These constant pressures and others increase stress, reduce the ability to meet real patient needs, and reduce the real access patients have. I want to do the right thing for my patients, and that's my first goal, but it's not rewarded by the system, which pushes us to check boxes, not check people. We are just as unhappy as you are. At least, those of us not fresh out of residency anyway - I hope this helped answer some of the questions I see above. Darcy, I wish you luck.
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Glad you've finally gotten some information. I know from my own experiences that even bad news is better than the not knowing and having the medical profession questioning the "reality" of your symptoms. Go easy and give yourself plenty of time to heal. And...if it won't alarm you too much, I'd look up the side effects of the various medicines you take/have taken. I've learned that the medical profession often times isn't too thorough with this type of thing. They swore that my DFL was not experiencing a drug interaction, yet when we got very insistent that the change the 1 med to something else on an temporary basis, all the side effect issues disappeared. Take care yourself. Lisa
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socks
16 years ago
That's great, Kat.

We love NED!!
Linda Wayman
16 years ago
So glad to hear it Kat. Sending you celebration hugs. ((( Kat )))
Georgysmom
16 years ago
Love feel good news!
lydia1959
16 years ago
Great news!!!
wanda_va
16 years ago
What wonderful news! The prayers continue for NED for decades to come. You need to take care of yourself, so you can spend lots of time with your future grandkids! Hugs!
gemini40
16 years ago
Oh Kat what good news...I am so happy for you and your family too..

june
Jodi_SoCal
16 years ago
Excellent news Kat! Just excellent!
nodakgal
16 years ago
Beautiful words there Kat!
Wanna do the happy dance? LOL
hayjud_mn
16 years ago
Thanks for sharing the great news!
glenda_al
16 years ago
YES YES YES

and

YEA YEA YEA
mariend
16 years ago
Hubby had good Petscan also and he is also getting Rixtuim (sp) every 3 months, but if the next scan shows it still in remission, can go to every 6 months. He has had Rixtuim so much that they do fast track--that is he gets the treatment in 2 hours instead of longer. He still feels tired for about a week.
Good luck to you
Marie
heather_on
16 years ago
Such great news Kat and Marie's DH. Jumping up and down with excitement. NED is wonderful!!!!!!!!!!!!
jen_tx
16 years ago
Oh Kat! That is FANTASTIC news! And 27 lbs is nothing compared to NED! I am so, SO happy for you! **doing the Happy Dance** (be glad you can't see it!) :-)
pattico_gw
16 years ago
WOW...that's good news...

Remember.....

TODAY is the first day of the REST of your life....Make the best of it...

Enjoy...

patti
coral_ok
16 years ago
Yahooooooooo and yippeeeeeeeeeeee!!!
carol_in_california
16 years ago
How interesting it is for you to have posted this today....I haven't been able to get you off my mind since I woke up today.
I am so happy there are tears in my eyes.
PTL!
Kat, I know you will enjoy being a grandmother when the time comes!
Keeping you in my thoughts and prayers.
alisande
16 years ago
That's wonderful!!!
Jamie_LA
16 years ago
GREAT news, Kat!!! Congratulations--YEAAA!!
ritamay91710
16 years ago
I have been wondering about you also....Congratulations for the good news!!!

Oh, and thanks again for posting the info about the vacuum cleaners...I got the Hoover Anniversary (bagged) one that was on the list you posted...so far...so good.....picking up lots of crud. LOL!!
murraysmom Zone 6a OH
16 years ago
Wow, that's great! Congratulations!!
katclaws_mo
16 years ago
Wonderful News, Kat! And, as always, prayers will continue.
Mystical Manns
16 years ago
I don't know nuthin' about maintenance chemo ... this is the first I've heard of it. But, it sounds positive! Will you have the same side-effects for the whole time you're taking it?

NED is our friend ... I'm so glad he's at your house too.

Continued Blessings to you, dear Kat.
bigfoot_liz
16 years ago
YEAH!!! wonderful news, so happy for you!

you lost waaaayyy more than 27 lbs before, this will be easy after everything else you've been thru :-) ~ liz
Kathsgrdn
16 years ago
Wonderful news, Kat! ( :
patti43
16 years ago
Happy for you, sweetie!
FlamingO in AR
16 years ago
Oh, that's wonderful news, bRAT Kat! Love your attitude, sweetie. And I know you can whip those extra pounds off in no time, you know you have lots of willpower.
Granlan_TX
16 years ago
My sweet Kat, this is the best news I've heard in a long time! :)

I have no doubt you'll succeed with this weight loss.

I just ask you always take good care of you.

Love and best wishes always,

Lana
Vickey__MN
16 years ago
Oh Kat that is such good news! I'm so happy for you and your family

Vickey
kathy_
16 years ago
Oh how wonderful! Big grin!!

I am keeping fingers and toes crossed that mom gets good news in September. Getting anxious just thinking of the scan coming up.
country_bumpkin_al
16 years ago
NED..there are no sweeter words to someone who's had cancer!! I Pray you remain cancer free for many many years...or at least until you're 135yrs old!*S*
lindaohnowga
16 years ago
Thanks given to God for this wonderful news. I am so happy for you.
maryanntx
16 years ago
Kat, that is such great news!!! Now your life can get back to normal.
ruthieg__tx
16 years ago
Kat that is such wonderful news. I hope you manage to lose the weight....I admit that my weight gain is still hanging around but last night I had a talk with myself about it....I am going to continue my good thoughts for you and the rest of our survivors here and hope and pray that you all will do the same for me.........We may not beat this beast, but lets hope we can live with it in check long enough for something else to get it...You rock my friend.
trishaw
16 years ago
Yay! You are always in my thoughts Kat!

Trish
tami_ohio
16 years ago
I thank God for answering our prayers for you, and continue prayers that you keep in good health.

Tami
kiwidj
16 years ago
Yayyy ... that's fantastic news Kat!!!
jennmonkey
16 years ago
YAY!!!!!! Awesome news Kat!

PeT Scan results are good

Comments (39)

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