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The Kitchen Table
kacram

PeT scan results . . .

15 years ago

As you all know, I have been going through the process of getting my bone marrow harvested and stored for a transplant down the line. I've been up at the Seattle Cancer Care Alliance everyday since last Thursday. I was up there again Friday and they told me that the PeT scan I took on Thursday was positive and that the cancer was growing again. So much for maintenance chemo! ! LOL

My doctor had told me to get up there and get this done last year. We played phone tag for a few months with the financial office and then I just focused on treatment, thinking I had a little time. And I just didn't get to it til this year. I hope that I didn't wait too long. That makes me angry, and upset with my self and a little scared.

I will be getting a protocol called R.I.C.E... I don't have the papers right here, but the R is rituxan and the C is carboplatin. I have to have this done as an inpatient at the hospital for 5 days After the 5 day inpatient treatment, we will do it again in 21 days. . He says we will try 2 cycles and then hopefully that will stop the lymph node growth and we will be able to harvest the bone marrow. Then My regular oncologist and I have to make another plan of attack, since this last chemo didn't work for but 6 months or so. Please pray and cross your fingers for me. it is so strange, because I have never felt better. I was sure hoping to make it for another 35 years! LOL I have faith that I will, I just got the news Friday afternoon. It was not a fun drive home (like it EVER is from Seattle LOL)

Oh, well, just another stumbling block! what 'cha gonna do? I am a little scared this time though. I can't think of $$$ because that makes me ill! I did tell DH to divorce me if that situation gets too bad, I don't want to lose the house! LOL

thanks for all the support you have given me the last years.

I really appreciate it. It's fun to come here and just forget everything and be goofy and have fun. thanks!

Comments (47)

  • 15 years ago

    Oh my, I pray that everything works out for you. You sound like you have an outstanding outlook. It never ceases to amaze me how many people on here have such crosses to bear and how they deal with them.

    Kudos to everyone fighting the good fight with whatever challenge they have in their lives. I admire you all so much for the strength and courage you show. I thank God every single day of my life for my precious family and my health so far.

  • 15 years ago

    Thinking of you in the days to come. You certainly have the emotional outlook that will get you through the tough times successfully.

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  • 15 years ago

    You definitely have my prayers, Kat. What a bummer!! I wish money didn't play any part in your decisions.

    Shirley

  • 15 years ago

    sending you prayers and good thoughts. my dear friend did the bone marrow thing and was very pleased with it.

  • 15 years ago

    Oh crap, Kat, was hoping you were going to give us more good news. Will be saying a prayer for you and your family. Stay strong, we all love you!

  • 15 years ago

    My stepdaughter did the RICE in Seattle..and thank God it worked!! ( At the time she did it, she was part of a high risk study and it scared us to pieces.)
    Hang in there you are at the best treatment site!

  • 15 years ago

    (((((((Kat)))))))

  • 15 years ago

    The last thing you need to worry about is 'the house'...( I don't think THEY can take it but get some advise from a professional).

    Sending good thoughts and prayers.

    ML

  • 15 years ago

    Your outlook on life is uplifting! That can get you through the months ahead. I'm praying that your fight is a good fight and all will turn out well. Hugs and healing thoughts for you and yours.

  • 15 years ago

    We have always been here for you, Kat, and always will be!

    (((((Kat))))

  • 15 years ago

    Kat, this just breaks my heart. I thought we had won this war. Well, we just lost a battle, but we are going to increase the prayers...and we will win the war!! You and your family are in my special thoughts and prayers each and every day. Hugs!

  • 15 years ago

    You are always such a happy, positive person, taking everything in stride. This is such a disappointment for you, and I'm so very sorry. I know you'll keep fighting. My heartfelt prayers will be offered for good news in the near future. I would be scared too, that's normal. Hugs hugs hugs to you.

  • 15 years ago

    D@MND@MNEDCANCER!! Kat I am so sorry another stumbling block (and that's ALL it is) has been placed in your path. I'm sorry you are even having to fight this battle, but I also know you are not fighting it alone! I am holding you in my Prayers and will continue for the next 35yrs.!! *S*

  • 15 years ago

    please go with that feeling you have of feeling better and run w/ that...don't worry about what is possible, don't waste precious time (it is precious to everyone as we can't stop forward progress) being down or worried. you need to be positive and think good thoughts while in treatment, be as happy as you can muster even if you fake it, after awhile you won't be. this is just a bump in the road and you can overcome this, just as you have overcome even bigger challenges. RICE is a proven therapy, don't let this development scare you, get w/ support groups w/ members going thru this too. if you have never heard of Louise Hay check her out...she overcame cancer and credits her philosophies w/ healing herself. at the very least it might alleviate some stress.... i am a very intuitive person, i run my life on my intuition, and i am not feeling this how your life is going to be, it can't you have brought yourself thru worse you will persevere. you serve as an inspiration to me w/ you weight loss and i don't even think that is really your purpose, you have not yet met your true purpose...don't give up before the fight starts, we are all here for you 24/7 to help you! ~ liz

    Here is a link that might be useful: Louise Hay Inspiration

  • 15 years ago

    I know the disappointment you must feel and the angst because I go through it every time I have that test. You have beaten this thing up until now and I am just going to continue to pray that you and your doctors find the right chemo. Hang in there and remember that renewed health happens every day.

  • 15 years ago

    Sorry to hear your news, Kat. With your positive attitude I know you will beat it, especially with all the KT prayers. Let yourself have a good cry, then put all the scary thoughts out of your mind and fight! You have too much to live for, and we need you here. ((((Kat))))

  • 15 years ago

    ok! plan B . You can do this, it's just going to take some time. We'll be here through the whole thing too.
    ((Kat))

  • 15 years ago

    Oh, Kat.....was so sorry to read this. You have such a positive attitude, I know you will get through this latest obstacle thrown your way. ((((kat))))

  • 15 years ago

    Sorry they threw you a curve. But I am glad you are feeling so good. It will give you strength if the going gets tough. Keep eating well and doing what you are doing. Get to the library and check out some interesting books for your upcoming hospital stay. Keep up the positive attitude-it really makes a difference I think. Just think 'room service' and no housework. Might as well think of any bright side to this.

  • 15 years ago

    I was hoping for better news, too, but oh, Kat, we'll be here for you and continue to send our best prayers and healing thoughts. We all admire your wonderful attitude so much, and are grateful to you for the many times you make us laugh and brighten our days.

    (((Kat)))

  • 15 years ago

    Sorry about your news...sending you lots of good thoughts! When's your inpatient stay? If you want me to bring you anything to keep you busy while you're there, or sneak ya in something delicious to eat,let me know! I'm close by.

  • 15 years ago

    (((Kat))) Hang in there! You are in my thoughts and prayers.

  • 15 years ago

    thank you so much, everyone~ Liz, I will check that site out...

    Jenn, and Kath, I'm going to have the RICE down here in Oly.
    I will have inpatient down here. My transplant Dr. from the Hutch/scca agreed that it would work just great down here. so much easier for DH and DS. I will still go back up there for the harvest. Yes, the SCCA/Fred Hutch are world class. I am lucky.

  • 15 years ago

    You've been in my thoughts and prayers for a long time lady, I'm sure not going to give up now. Glad you aren't either. I too have heard great things about it.
    Stay strong as usual.
    We will be with you every step of the way dear girl!!!!!!

  • 15 years ago

    Hugs Kat, you are always in my thoughts.

    Anne

  • 15 years ago

    yeah, but what's a house? lol

    Don't panic yet, and don't think of the "what if I had dones". Just concentrate on the healing and we'll be here to kick you back in the right direction if your mind should stray towards the negative too much.

    Cheering for you, as usual.

  • 15 years ago

    Kat, remember 'one day at a time'.
    You are always in my thoughts and prayers.

  • 15 years ago

    Sweet Kat, I send you years of healing and positive thoughts.

    Jodi-

  • 15 years ago

    Kat I will keep you in my prayers. Keep up your great attitude.

  • 15 years ago

    Kat,wishing you all the best in thedays and weeks ahead.You have a very good attitude,and that will take you far.Sending you many healing thoughts and prayers.
    (((((((((((((((Kat)))))))))))
    Kathi

  • 15 years ago

    Kat, I'm too old to live for another 35 years, but for however many I do live, I will continue my prayers for you. Hang in there...we won't let go.

  • 15 years ago

    Oh, nuts, nuts. I'm sorry you have to go through this set-back but with lotsa prayer and the good docs you have, you'll get this kicked yet. Count on me too in the prayer department!

  • 15 years ago

    This is bad news but prayers do work and I will be saying a lot of them for you, Kat! I'm sorry you have to go through this. ((Kat))

  • 15 years ago

    ((((Kat)))) you are in my heart and in my prayers.

  • 15 years ago

    What a wonderful positive attitude you have. This will get you far. My thoughts and prayers are with you.

  • 15 years ago

    (((Kat)))...please stay positive cause I firmly believe that's half the battle...I know myself and all the other Kt'ers will continue to pray for you and keep good thoughts going...

  • 15 years ago

    Rats. I'm sorry to hear about that. This washington gal will be pulling for you!

  • 15 years ago

    I am still praying for you, Kat.

  • 15 years ago

    Kat you were my inspiration when I had cancer last year, of course you will be in my prayers!

    Vickey

  • 15 years ago

    Kat, with all you've done and been through, and even with the latest news, I just love it you can say, "I am lucky."
    That makes me smile. :)

    Love you Kit Kat,

    Lana

  • 15 years ago

    I expect to still be seeing you here in 35 yrs! Still praying for you. I know you can beat this!

  • 15 years ago

    Kat, you're remaining in my thoughts. Take good care of yourself.

  • 15 years ago

    I'll be pushing 100 in 35 more years Kat, and I fully expect to find you right here being the funny brat kat you've always been. All my prayers and best wishes for you, your doctors and your treatment. You can do this! OXO!

  • 15 years ago

    Damn. I am so sorry to hear this, Kat... . I am truly at a loss for words. You are such a strong positive person with a wicked sense of humor.

    Stay strong and keep on. You can do it and get thru it.

    ...and I won't even mention anything about 'Kat' Houses, PeT Scans or any kind of fighting involving Kats.

    (((Kat)))

  • 15 years ago

    Kat, you are in my prayers.

    Tami

  • 15 years ago

    Praying for you........

    (((((((Kat)))))))

  • 15 years ago

    No words, just good thoughts and lots of cyber-hugs coming your way (((((Kat)))))

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