Hi laa laa, just found your post. I know 7 people with the illnesses mentioned in the title. They can't stay in stores with flors. for very long, and always avoid some particular stores. The wiki site on meniere's mentions fluors as a trigger. http://en.wikipedia.org/wiki/M%C3%A9ni%C3%A8re's_disease Sure glad to hear that your meniere's retreated, at least for a while. It sounds like it got pretty ornery with you. Did you notice any other triggers such as diet? Here's a resource that has clear introductory info on meniere's disease, which most people have never heard of. Over 3 million people have it, and there are several triggers. http://www.meei.harvard.edu/patient/meniere.php Avoidance of the triggers salt [and sodiums, including MSG], alcohol, and caffeine, tobacco too, help. If you go over a VERY low salt intake- like under 200mg - in one meal, and your ear starts buzzing louder, sometimes a hershey bar or two, after that salt, can help. The big info site, that sells vitamins, menieresinfo.com, is honest and thorough. They care and have a lot of detailed info,and good vitamins, but if you contact them, you will get deluged with vitamin sales emails. Thats too bad, because vitamins seem to help, but quality in stores seems to have tumbled. Here's the link: http://www.menieresinfo.com/moretopics.html#travel Some sites have surprising tidbits of info. One medicine, can cause deafness, so you may want to make sure your pharmacist knows you have meniere's. http://books.google.com/books?id=ETMWzoDCqvUC&pg=PA385&lpg=PA385&dq=meniere's+erythromycin&source=web&ots=-PQ-GW3KO_&sig=2Xch1u3J6f9cbkJS_4VVgURAPyQ I think there are a couple of chat sites for inner ear probs. too. If anyone has more, detailed, info, it would be great to have.

Thank you Shirley. This is such a crummy feeling. I'm going to have to keep really busy tomorrow, to take my mind off of it, as there is nothing I can do about it right now. I've called her a couple of times to "test the waters" and see if she's ok. So far she's feeling better about it than I am, it seems. I worry that she'll hit a low spot though, it's happened before.

Doesn't seem like school administrators have handle on this situation. Lisa was willing to do what was required if they'd given her assurance this was a communal responsibility which they didn't. Unless all the responsible adults involved have already had serious cooperative discussions and drawn up written treatment parameters for all school personnel to be trained with there seems to be some missing parts in this situation. I refrained from commenting on this thread until some outcome was arrived at with school officials but some people here seem to be missing relevant facts. This is not the same as measuring glucose level and administering insulin shot. This little boy is newly diagnosed, probably has not even processed what his limited experience can understand and seizure regulating medication protocol is still in very early stages. Has anyone even asked this newly diagnosed 6 yr. old child how he feels about a stranger administering medication with rectal applicator? When/if he has a seizure in school they need to have previously done an age appropriate explanatory presentation to his class so they have some understanding of epilepsy and likely embarrassment and/or emotional impact on this little boy is minimized as much as possible. If you look on any site dealing with epilepsy and the Diastat manufacturer's site there are measurable criteria for giving medication and person administering/responsible adults are supposed to determine if it's grand mal, petit mal, etc. before giving this break through medication. Diastat site gives very specific observational, administration, after care and recording instructions which are probably most important when a child has been newly diagnosed. Also, according to all these epilepsy sites everyone on school staff who will come into contact with child must be trained to recognize seizure (sometimes as subtle as continuous blinking or staring for certain amount of time which may be prelude to more serious seizure or totality of that one seizure episode) and it's type and be completely familiar regarding very specific "seizure action plan" with which all school personnel coming into contact with this little boy must become familiar with. I originally thought a child would be home schooled until daily/emergency meds are regulated. According to both fed/state disability regulations the child must be admitted to school if that is what parents want. Part of child accepting diagnosis and treatment plan is going on with life as normally as possible. For a new kindergarten student he hasn't had much "experience" with school at all with which to compare. Hell, he may have been a little tentative about moving up to the "big kids" school before he was just diagnosed with epilepsy! I know I'm inclined to over protectiveness with children but going through the time tested and medically relevant protocols and meetings may not have been thoroughly addressed here and they don't seem to have been communicated to the school secretary asked on the fly to be responsible for administration of emergency medication. There's more to planning for this child's physical and emotional well being than just giving him a suppository. I'll get off my soapbox. I hadn't consciously known what was involved in monitoring and administering meds for a child with epilepsy (particularly one newly diagnosed) in a school setting. This little 6 yr. old and his family are likely still feeling their way through a new diagnosis so seems everyone has to get together on specific way to handle possible emergency treatment. Hopefully people in concert will learn to deal with it properly and everyone will play their part to aid this little boy in acclimating to his new school surroundings, epilepsy and meds while his classmates have been properly educated as well. Makes you want to just hug all the little ones in your life and be aware that love and knowledge will make us able to address any challenges with them. If only....

Ditto the good wishes. I do hope that someone in the family can be with her continuously! I fully expect that the hospital has someone remotely monitoring the EEG continuously, and I have every confidence the staff will respond promptly if she does have a seizure.