Are you certain that your dizziness is due to the crystals and not something like Meniere's Disease?

sushipup, I believe that we have talked before, everything is related, and not much one can do about it, once you have it can't take a pill and have it disappear. The ears have the crystals in, keeps balance, Meinere's and tinitus also play a role here, and have them all, I would not wish this on anyone, is very debilitating.

Yes, my friend has it, and is miserable much of the time. Treatment for the crystals has a very slight temporary effect, maybe none, considering that the symptoms seem to ebb and flow (but never completely go away.)

Hey, glad to know I amnot the only one feels that way. Some days, I swear it is even the shoes I wear, some feel squishier than others and make me tipsy it seems, so always looking for hard shoes, which is difficult cuz I need orthotics in them. Yep those head movements are not the cure all, at least for me, and I do get just as good results throwing myself on my bed and hoping for the best. That seems to be what the PT gal does, just lets me go down fast, and turns my head, etc., am sure you know all the stuff they do. I have tried the self done movements, don't feel a thing from them, but the bed thing, I do feel that does something. Meclizine is ok, but it makes me out of it for a couple days, tho I do feel better afterwards, not knowing what it really does, just know it is cheaper than running to get the doc to do something or PT either. I am retired so I can lay around, and sleep if that be the case, I noticed this came on for me while I was still working, and tho it was debilitating, I managed to "work thru it" at one nurse told me long ago, Seemed as tho that did the trick sometimes too. Doc says keep head level, well, you can't live your life just walking around like a zombie, wonder if this affects them, and what they do for treatment? Inquiring minds!

My daughter had severe dizziness and couldn't get out of bed for several days. Discovered her Vitamin D level was way too low. I know I've had dizzy spells too, and my Vitamin D was tested low around that time. I'd take a good D3 supplement several times a day (and a good multivitamin while you're at it).

You can do that Epley maneuver at home. There's lots of You Tube videos of how.

But definitely take D3 and see if that helps.

I had BPV for a couple of years and it was terrible. Can someone help you do the exercises at home with your head hanging over the bed? I had to do it every day for a long period before I felt relief. Or there may be exercises you can perform on your own. My doctor gave me a diagram of what to do but I probably don't have it anymore. I got dizzy for the first time in years a couple of weeks ago and panicked thinking it was back. So frustrating and destabilizing.

I just heard on TV about too much vit D, and I do take a good daily vit, plus be sure I get extra calcium and D in the OJ, drink a couple glasses daily, but guess I could do a pill, one of my meds says stay out of the sun somewhat, and so I don't spend a lot of time out there. Pills I can do. Good suggestion.

There doesn't seem to be as much concern anymore about getting too much vitamin D. I think we're just not getting the sun we need, or some of us have skin that just doesn't absorb it enough. I wouldn't hesitate to take extra D. I end up getting at least 5000 units a day and my D levels aren't very high. It would be great if your doc could draw a blood sample for you and have it tested. Make sure he/she knows the right test to run. (25- Hydroxy Vitamin D). Then you'll know for sure. You might as well get a CBC and Chemistries too......to make sure your dizziness isn't caused by something else. Good luck. I've been dizzy and I know how awful it can be.

You mention these tests, are they pricey? I usually just have the regular blood testing done, glucose, triglycerides, etc., are there special names for them? Inquiring minds want to know. Tho, I have to say, I believe I have more episodes during the summer than winter. Gotta get to the bottom of that too.

Do you hydrate well in the summers? I don't seem to get thirsty anymore and have to remind myself all the time to drink..especially for a few hours before I go outside and work. I'm not sure what the tests cost. My husband runs them at his business for me. A CBC would tell you if you're getting dizzy because of anemia. Have you seen a dizziness expert? I saw a doc who only deals with dizziness. The blood chemistry test is probably what you've had.......it includes blood sugar, cholesterol, liver function, kidney function, calcium, etc.

How old are you? I got dizzy during perimenopause.............

75 and counting, gal, I don't have anemia, don't eat much meat, but tests all ok, just done recently. Where I live seeing specialists is hard work, so unless it requires immediate attention, driving the time to get to the university hospital is almost futile. Living rural has it's probs., but as I stated seems to me more so in summer, and the hydrating thing, I drink a lot, will let you know part of it is coffee, weak, but coffee, and watered down OJ, cuz I can't take it straight, too acidic for stomach. This getting old stuff is for the birds, always want to know what happened between say 45 and now? where did the time go, and if anyone had told me that life wasn't as enjoyable when older, I sure wouldn't have paid any attention I am sure. thanks for your input, always good to hear what others do, and how they feel. I live Midwest, and always want to be outdoors when weather is good. Knee replacement is also giving me fits right now, have arthur behind the kneecap between it, and the replacement, lots of pain. Had I known this would have occurred I would have insisted that they resurface when first done, some docs do this, others don't, ya gotta ask questions for sure.

Let's hope for better times a coming, and any info shared is always welcomed too. Take care?

I have to say your situation is more complicated than mine. I hade it for 3 months. It came on in a yoga class and I was dead weight, A neighbor gave me her pills because it was a waste of time for her and then me. My mom had it and suffered w/o much help. So is it hereditary? I am under the impression that nothing helps. I told people and they did not really care. Until you have it, you don't worry about it. I am sorry you are in the middle of this. I was told 3 months of suffering was the norm. But I will always be on guard as I am 70 and falling apart. I wish you luck and if you do lose it please write back.

Aw, that is a great post. I will do it. Be prepared is my new slogan. I get good advice online like this site or The Kitchen Table where I find people my age. I just posted on there called The Clothesline. See if you like it.

Are you under any unusual stress. My husband had AZ and I took care of him for 4 years with no relief. I was having dizzy spells, one time I fell and broke my humorous in 3 places. Two doctors told me if I did not get rid of the stress in my life I would die before my husband. After I put my husband in a care home the spells stopped in 2 or 3 months. I had a reminder off an on for 6 months.

not stress per se, just the stress of worrying about falling being dizzy. Used the meclizine, and have had good luck with ridding self of dizziness at least for today, will see what comes tomorrow. Of course, living life, and doing things as normal people do, you do sometimes have head below knees at times, doc says no, well, just how to accomplish picking things off floor, etc., I know docs don't think of those things, but I just feel what I have comes in waves, more so at some times that others, and believe summer more than winter. I haven't written that part down, but remembering...

Gotta tuffen up and hope for the best. thanks for your puter advice too!