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I'm asking for big time prayers please

18 years ago

It looks like so many bad things on the KT today/tonight.

I just got home from my uncles funeral. It was at 6:00 and it was 10:15 or so after we got home from my cousins house. I'd had a phone call from my oldest daughter, and she'd left a message, saying she wanted to talk to me. Well, I figured she'd be in bed or that it was to late to call her. In about 5 minutes the phone rang and it was her. She told me my 15 year old grandson, has an inoperable tumor on his brain stem. He's been having headaches for a couple weeks, and she took him to the ER after he had a bad one Wednesday. She'll be taking him to a neurologist and some other type doctor on Wednesday, I think. They think theres a good chance they can shrink it with radiation. I'm just a mess and I can't remember all the details.

I know the power of prayer is so great, and I'm asking for all your prayers if you would, or good thoughts. I know it can work miracles.

Leslie

Comments (72)

  • 18 years ago

    Oh Leslie, this breaks my heart. Will put your DGS in my prayers!

    Hugs, Donna (^_^)

  • 18 years ago

    Adding my prayers Leslie.

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  • 18 years ago

    Certainly, i'll have him in my prayers

  • 18 years ago

    You have my prayers and thoughts hugs for you imabest

  • 18 years ago

    I am so sorry Leslie. Special thoughts and prayers going out to you and your family. As others have said they have made great strides in the medical field.

  • 18 years ago

    Leslie I am so sorry. My thoughts and prayers for you and the family.
    There are so many things that can be done these days I'm sure they will find just the right treatment for him.

  • 18 years ago

    Leslie, I am sending prayers for your grandson and family. This is so heart breaking. Try to keep the faith. We are here with you.
    Love,
    Linda

  • 18 years ago

    My thoughts and prayers are going out to your grandson and family, Leslie.

  • 18 years ago

    I'm so very sorry to hear about your Grandson. God bless you and keep you. Your family is in my prayers.

    Gayle

  • 18 years ago

    Leslie, I'm sending big-time prayers for your grandson and your whole family. Please keep the faith. As others have said, there is so much that medical science can do today--and a 15-year-old has the fight to conquer this. Keep us posted on his progress, and know that we are here for you. Hugs!

  • 18 years ago

    Oh Leslie.... ((((Leslie)))
    Hang in there til you get the neurologist report and find out what they will do....I know its hard, believe me!!
    In the meantime, lots of strong prayers and big hugs going out for you and your family!!!!!!!!

  • 18 years ago

    I'm so very sorry ((((Leslie)))). Will certainly be saying prayers for your grandson and his family.

  • 18 years ago

    I'm sorry---prayers here too. Sheila

  • 18 years ago

    Sending good thoughts and mega prayers for your grandson and all of your family!! (((Leslie)))

  • 18 years ago

    Leslie...I am so sorry to hear this news. Please know that you, your grandson and your entire family are in my thoughts and prayers.

  • 18 years ago

    Leslie: Be strong for him and your DD and know that we can be strong for you. Many, many prayers for your and your family.

    Barbara

  • 18 years ago

    You have my prayers for his complete recovery.

    Shirley

  • 18 years ago

    Mighty special thoughts for your grandson!

  • 18 years ago

    I am so sorry to hear this. I will keep everyone in my thoughts and prayers.
    Deb

  • 18 years ago

    I hope things are looking brighter today. That was quite an emotional day you had yesterday. Saying prayers for your grandson--and you. Take deep breathes, Leslie.

  • 18 years ago

    Sending prayers for your grandson and the entire family.

  • 18 years ago

    Leslie...The first thing that hits you is fear...But like Maryann said "there is so much they can do now"

    Prayer is powerful.....Believe !!!

    I will keep him in prayer too...

    patti

  • 18 years ago

    oh my Leslie, that's overwhelming.

    I saw a woman on tv a few days ago. She had a tumor like that and finally found a doctor that would operate. She is doing very well now and her future looks good. I hope the docs can help your grandson too. Hugs for you.

  • 18 years ago

    ((((Leslie)))))))

  • 18 years ago

    Leslie, I am so sorry. I will keep you and your family in my prayers.

  • 18 years ago

    I am so sorry to hear your news. I have a 15 y o GS and I can only imagine how I would feel. There are so many advances in medical science--I know 2 men that have had brain tumor surgery within the last month and they have healthy prognoses. You're in my prayers.

  • 18 years ago

    Oh my gosh, what shocking news for you and your family.
    I think he may have the blessings of being young on his side. Please keep us posted on his progress. Be his rock for him.

    Bless you,
    Trin

  • 18 years ago


    Not a very clear picture at all.
    Here he is, doing what he loves to do. Fish. This picture is 2 years old, and he is now grown a little taller, and is more muscular. He is a freshman, and a varsity wrestler (seasons over now though). His name is Nathan (Nate). A good boy, and never in trouble. His mom is my oldest daughter. The one who had breast cancer 4 years ago.
    Thanks you all for your thoughts and prayers. I appreciate them so much.
    Leslie

  • 18 years ago

    I am so so sorry to hear this! How horrible. I am hoping that the doctors find something that will help it to shrink quickly. You all have a very rough road ahead of you. I feel so bad for you. And to hear this just after returning from your uncles funeral, you poor thing. I bet your nerves are just shot.

    Sending loads of special thoughts and prayers for you and your family.

  • 18 years ago

    Oh my, I am so sorry you and the family of the handsome young man are having to go through this. I know that there aren't enough words to describe you feelings for what lies ahead for Nate. I am sending my special thoughts for a miracle for Nate...and all those who love him.

  • 18 years ago

    Oh gosh I remember that picture!
    He is a handsome young man Leslie.
    Still praying hard for you all.

  • 18 years ago

    Leslie, Sending prayers for Nate and warm hugs for you and your family.

  • 18 years ago

    Oh he's so cute! So sorry to hear about his tumor. They can do miraculous things these days though. My nephew was diagnosed with a rare bone cancer in his leg about 6 years ago and the doctor said they did all they could for him and he would have to have it amputated. They took him to the city of hope doctors the day before his operation was to take place for a second opinion and they said no way! They got him into their care and saved his leg and so far no cancer is left! He was in the hospital quite a bit for a year but it saved him. I say never give up hope! Keeping him in my thoughts and prayers.

  • 18 years ago

    Sending big time best thoughts.
    I hope that the neurologist visit goes well.
    I'm so sorry!

  • 18 years ago

    Adding my prayers as well.
    Kathi

  • 18 years ago
  • 18 years ago

    Leslie, you all have my thoughts and prayers for a successful treatment for Nate. What a frightening diagnosis, but I also know that it is possible to shrink the tumor and not have it return.

    Be strong, hopeful and prayerful.

    Leslie/KS

  • 18 years ago

    Oh Leslie, I am so sorry to hear this news. I will keep you all in my thoughts.

    sooey

  • 18 years ago

    I am so sorry. I will keep your grandson and family in my prayers.

    Donna

  • 18 years ago

    Praying for you and your family.
    Dee

  • 18 years ago

    Before beginning my reply I told my DH about Nathan, and we said a prayer for him right then as well as the rest of your family because we know exactly how afraid y'all are...we went through it with our oldest DS. He was nearly 30, had two children- one only 4 weeks old when he underwent surgery at Loma Linda Hospital near Riverside, CA. Surgeon said he was unable to "get" it all- much too close to the brain stem, and that it would return. We simply could not imagine how it could have happened to a healthy young man; asked the how's and why's & were told it could have been there since birth, a small child, exposure to toxic chemicals (to which he'd never had exposure- at least to our knowledge,) but there was really no way of
    knowing for sure.

    Four years later he called to tell us it had returned. We flew out again for the second operation, just sick with worry. GUESS WHAT???? 21 years have gone by, annual brain scans show NO sign of it!!!

    Don't give up hope- all of you should earnestly try to think positive positive thoughts, and if you don't feel right about the first Neuro consult, get another opinion, and if still not pleased ask for copies of scan, x-rays, etc. and see another. If it could be managed all those years ago, consider how many wonderful techniques have been developed in the ensuing years.

    We'll be lifting prayers for your handsome, beloved young man until you tell everyone things are alright. Meantime we'll ask that God hold y'all close & shower you with bountiful blessings.

    Suzi

  • 18 years ago

    You and your family will be in my thoughts and prayers.

  • 18 years ago

    Leslie, I am sending healing prayers for Nate, and comforting prayers for the rest of the family.

    Tami

  • 18 years ago

    Leslie, you can count on my prayers for your Grandson, and big hugs for you and your family.

    Laurel

  • 18 years ago

    Hoping for some better news this week from the DR's. He is young and strong and will have lots of friends and family to support him.

  • 18 years ago

    I'm so sorry Leslie. As someone who has had a brain tumor I know how scared you are. Do you know if the tumor is malignant? Does it have a name? I had a benign tumor called an Acoustic Neuroma. It was a slow growing tumor that was 3cm when they found it so it had to be there for a long time to get that big. It was "kissing" the brain stem (that's how one of the doctors decribed it.)

    The best advice I can give you is don't rush into anything and do your homework. Since I don't know what kind of tumor your DGS is dealing with I can't help with that but will be glad to if you can provide a name. I opted for radiation because the surgery was so high-risk. I found that they could do one large dose of radiation which could cause collateral damage or a series of smaller doses to minimize or eliminate collateral damage. I went with the small doses called Fractionated Stereotactic Radiosurgery at Johns Hopkins. I had 5 treatments over a 5 day period. The only side effects were vomiting one day and I was very tired and slept alot for a few days. That was in March/April 2000 and I am fine. With radiation I was told the tumor would never go away completely but would die and not cause problems. That is what has happened. I had an MRI again last year and everything was great.

    Now I don't know if Nate is candidate for FSR but it's worth looking into. They don't do this just everywhere - at least they didn't 8 years ago so you may have to look around for a place that does this.

    You can email me if you want more information or just a shoulder to cry on.

    Linda

  • 18 years ago

    I remember when they told my daughter they could see a mass in her brain and that they thought it was cancer...

    I wish I could think of the songs name...it's on a Praise and Worship CD. Something about "you are God , My healer."
    I used to sit at the dinning room table and listen to that and sing it from my heart. And pray...

    Don't know what it was , but the second set of MRI's couldn't find anything.

    Miracles still happen.

  • 18 years ago

    I hope and pray that all goes well and that he has a speedy recovery.

  • 18 years ago

    Leslie, what an adorable boy! I will include Nate in my prayers.

  • 18 years ago

    ((Leslie, Nate and Family))