well, it's not the greatest news. Doc says the tumor size according to the CaT scan hasn't changed much. The written report showed .6 cm smaller. (point 6 cm just over a half of a cm I guess, lol). And he says that means to him it hasn't changed .. he is considering it the same size because a different radiologist read the scan and it's not totally precise. So, he cancelled chemo yesterday. Doc wants to do another test. He gave me a choice of a CT guided needle biopsy, or a PeT Scan. I chose the Pet scan. The last biopsy I had was totally scary because the tumor is located up next to the spine, on the inside.. facing my lovely innards! lol And as they were going over the risks of paralysis, perforated bowels and the such, I decided it wasn't such a neat idea! lol
Anywho... he says it's possible that what is showing on the Cat Scan that I took on Tuesday is scar tissue. And that the pet scan could show that...he says it is possible that the tumor has stopped growing. Doc said pet scans are second choice for my lymphoma because of cost and the iv of radiation, but that it might give him a better idea if this is scar tissue. It it doesn't we, well, I guess I, lol will have to do the CaT scan guided needle biopsy but I worry about that because the barely got enough tissue last February to send to the lab. I probably won't be able to get the PET til the last half of next week. And the results the following week. They have to get approval from insurance. THAT is the part I'm worried about! LOL Gary went with me, but he had to get back to work after the appointment . Gotta pay for that insurance! lol And since i wasn't going to be at the "chemo bar" for 7 or 8 hours today, I took myself to a movie! LEAP YEAR.. it was okay. I've seen better, but I've also seen worse! WAY worse! lol AND because of Weight Watchers, I didn't even buy myself any comfort food... like that LARGE popcorn! It smelled so good, but really isn't worth 1600 or so calories! I packed a little to eat in chemo, so I ate my chicken breast and apple during the movie!
then I stopped at an antique store and it was BAD! Then hit a furniture store on the way home. Nothing there floated my boat either! And we just might need a boat with all this rain! I wonder if they are going to have enough snow for the Olympics?
Hey, Kat, it sounds a little bit promising. My friend with follicular nhl was told his pancreas might be involved at first, but the pet scan he had after the first 6 months of chemo showed that it was not. Whew! That was one happy boy. I'm glad to know you're having that scan, as it seems to show tissue pretty well. (I don't know this, just guessing from what I've been told.) I've got to rush off now but know that I'm thinking of and praying for you.
I'm so glad you posted. It might not have been the greatest news, but it wasn't the worst news either. Good reason to hope for better news from the pet scan. And as always, Kat, I love your attitude and resilient spirit!
So while there is some question about whether the tumor has shrunk at all, there is *no* question that it didn't grow? That is good news, yes?
I know nothing of Pet scans and CT biopsies and such ... I just know I'm praying for your doctors to offer you the best choices possible, and for those choices to lead to your recovery.
((Kat)) Wish I was near enough to hug you in person.
Hi! thanks! I was lazy and I cut and pasted from an email that I wrote tuesday night.. sorry! But I guess you could probably tell that, huh? LOL
"no* question that it didn't grow? That is good news, yes?" absolutely! yes! and the other good news would be that since I've gained 12 lbs more than my goal weight, this gives me 2 weeks to work out and work out HARD to get back to my goal weight before I get more chemo! lOL Yea,,, good news, I guess! lol
Kat, the only chemo patient you know that gains weight! LOL
You're doing well, my dear! The chemo cocktail that I was supposed to have, before the test that determined my tumor probably won't come back, was predicting a 25 - 40 lb. weight GAIN. I said ... WHAT????? The two positives I was looking at, was losing weight and curly hair when it came back ...
So I'm extremely PROUD of you for being on top of your weight gain and keeping it at a minimum. Rah! Rah! Cheerleading in your corner!
"The two positives I was looking at, was losing weight and curly hair when it came back ... "
ROTFLMAO!!!!!!!!!!! seriously! lol THOSE were MY two silver linings NINE years ago! ahahahaha I told DH, well at least I'll lose weight! HA .. no I gained about 50! AND I said, with the stories I've heard, I might actually get CURLY hair for a while, and maybe red! ahahahahahahahah.... yeah, NOT! I lost only 1/3 of my hair.. and the new stuff that did grow in was a little curly for a while, but mostly WHITE! lolol
Sending lots of well wishes your way! Hope it's just scar tissue, and also hoping they'll be able to tell that without the icky scan you described (yikes!). Kudos to you for resisting that theater popcorn, too, lol!
And thanks for the update..keeping my fingers crossed that the PET Scan will answer all doubts and prevent you from undergoing that other test, too. :)
Thanks for the update, Kat. You're sense of humor always cracks me up in light of all that you've been having to go thru. Count me in as part of you Cheering Squad. Keeping you in special thoughts, as always.
Kat, I am so happy to hear from you.You are amazing to me, and sort of my role model.When I think of what you have gone through and how strong you are, it keeps me going.I did lose all of my hair, and like you and stoneybaloney, I was thinking I should at least be able to lose weight and have beautiful red hair and curls. I even got a free brand new red wig from the Cancer Center. I did lose some weight and now that the chemo is over I have some hair, look like a baby bird when their feathers just start coming in. Sad to say it is more silver and gray than red. But hey, at least it is growing and I only have 18 more radiations when it started out at 30. So, know that you are in my prayers.
donna_oh
alisande
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