skip to main content

Anyone else here with Parkinson's besides me?

18 years ago

I was diagnoised 12 years ago with early onset parkinsons disease. Im now 49. I also have dystonia to go along with it, which causes my back to go into spasms, Im currently on sinemet CR 50/200, 3xdaily, mirapex 3xdaily, and lodosyn 3xdaily, and bacfloren 25mg. 3xdaily. Lately, ive been experiencing pressure in the back part of my head. I was wondering, if any other people with either dystonia, or pd. suffer with this too? I go see my neuro, the first part of April.

Hope to hear from someone.

Thanks

La Donna

Sort by:Oldest

Comments (3)

socks
18 years ago
La Donna, I do not have Parkinsons, but there is another place you can go to talk with people who do. It's called Health Boards, link below. Find Parkinsons on the list and then click Jump to Board. Maybe you can find some people there which have situations similar to yours.

Hope this helps.

Susan

Here is a link that might be useful: Health Boards Links
ladonna
Original Author
18 years ago
Thank you so much Susan.
Related Discussions
Anyone else besides Agristarts have large
Q
Comments (2)
Sent you an email....have roughly 10 acres to play about a 1/4 mile from the ICW. Give me a call or an email. Ordered saba and Ice cream from Agristarts.............
...See More
Really O.T. anyone else here own a mountain
Q
Comments (6)
Sounds great to me. I'll be there to visit. How Lucky you are! I don't have a mountain, but for the past 50 years I've owned a fairly large meadow at the edge of a forest in Germany, by a lake. I inherited this from someone who, I suppose, didn't like me, because I can't sell it, because you can't build on it,(city ordinance, - it is farmland) and there is no water or electricity, and only a dirt road leads to it. So now I have to pass it on to my offspring - what else can I do? Maybe in 100 years they will let you build on it and someone might get lucky.
...See More
Anyone else besides me
Q
Comments (11)
Love the yard, I think you are right. I'm not having any problem getting out of a post. A recent problem is the thread title does not change color to show it has been read. I inquired to the Gardenweb staff about it and this is what they said: "Visited links are your web browser's way of being helpful, displaying a different color so as to let you know that you have clicked on that link before. Unfortunately, this isn't something GardenWeb controls. I would guess the changed colors likely disappear when you close your web browser, clearing the temporary cookie files that save your browsing info. You may be able to adjust your web settings to make sure they won't clear your cookies upon closing your browser." I'm waiting for my son to come over and reconfigure my settings. He spoils me in that I don't have to figure out how to do it.
...See More
Anyone else getting a JCPenney popup ad for rings here?
Q
Comments (14)
Mike - I didn't visit any sites this morning other then my email, my bank and two forums here at gardenweb - appliances and figs. I didn't open any other links. Now I do use Firefox exclusively but I'll have to check to verify Ad Block Plus has been downloaded. I assumed I had it because I so seldom get pop ups - and this one was so odd because it happened every time I opened a new message but it only happened here at the Garden Web for about 10 minutes and then it disappeared. OK - I'm going to check for Ad Block now. Thank you again everyone.
...See More
socks
18 years ago
It's so important to be able to interact with others when you have a difficult health situation, so I hope there is something there for you. I visit the Osteoporosis Board, and it's a very nice group of people there sharing information and frustration too.

Take care.

Susan

Related Stories

BEDROOMS The Cure for Houzz Envy: Master Bedroom Touches Anyone Can Do

By Becky Harris

Make your bedroom a serene dream with easy moves that won’t give your bank account nightmares

MUDROOMS The Cure for Houzz Envy: Mudroom Touches Anyone Can Do

By Becky Harris

Make a utilitarian mudroom snazzier and better organized with these cheap and easy ideas

BUDGET DECORATING The Cure for Houzz Envy: Entryway Touches Anyone Can Do

By Becky Harris

Make a smashing first impression with just one or two affordable design moves

LAUNDRY ROOMS The Cure for Houzz Envy: Laundry Room Touches Anyone Can Do

By Becky Harris

Make fluffing and folding more enjoyable by borrowing these ideas from beautifully designed laundry rooms

DECORATING GUIDES The Cure for Houzz Envy: Guest Room Touches Anyone Can Do

By Becky Harris

Make overnight guests feel comfy and cozy with small, inexpensive niceties

KITCHEN CABINETS Choosing New Cabinets? Here’s What to Know Before You Shop

By Ventana Construction LLC

Get the scoop on kitchen and bathroom cabinet materials and construction methods to understand your options

COLOR Want More Color in Your Home? Here’s How to Get Started

By Affecting Spaces Design Studio

Lose your fear of dabbling in new hues with these expert words of advice

KITCHEN DESIGN Survey Results: Kitchen Trends That Seem Here to Stay

By Mitchell Parker

More than a third of respondents in Houzz’s annual kitchen trends report now have the means to remodel. Here’s what else they told us

DECORATING GUIDES You Said It: 'If You Do Nothing Else ... Clean Your Gutters,' and More

By Becky Harris

Design advice, observations and inspiration that struck a chord this week

KITCHEN DESIGN The Cure for Houzz Envy: Kitchen Touches Anyone Can Do

By Becky Harris

Take your kitchen up a notch even if it will never reach top-of-the-line, with these cheap and easy decorating ideas

Sponsored

AIS Renovations

15 Reviews

Custom Craftsmanship & Construction Solutions in Franklin County, Ohio