Geographic Tongue III

suki_2009

15 years ago

The foods that bring on GT, without a doubt are: Chocolate, espresso or the good coffee that still has much coffee bean oil retention (such as Caribou and Java) and Citric Acid. One taste of any of these, and a week or more of GT tongue follows, progressively getting worse by the day. It's even advanced to the stage of becoming a fissured tongue, especially on the front side borders. It's painful! At times, it even looks as if the edges of my tongue have been "lopped off". Has this happened to anyone? I don't know what to think. Is it auto-immune disease? Is it Behcet's Syndrome where the immune system is hyper-reactive to different things? I'm tired to doctors telling me that it's "idiopathic", meaning that there's no known cause and that it doesn't matter. Why does it not matter? This is not normal! Something must be messed up somewhere in my body.

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Comments (5)

goshen
15 years ago
Suki, Sounds like you're really having a rough time. There are many things the medical profession knows nothing about apparently.
Commansense dictates you totally avoid the foods that cause you so much trouble. We are lucky there are so many types of food available that we can pick and choose what goes in, through and out our body. When it comes right down to it we can be the only judge of what goes into our diets.
We humans were given good minds. We were also given the choice to use them or not. Does it really matter what causes it if you can avoid it by eating something else.
Good luck Suki, Let us know how doing without these foods help.
gringojay
15 years ago
Hi suki,
If it is actually idiopathic then the physiology of circulation in to & out from the tongue body must be involved.
Fissures & serration patterns would involve fluid content of the tongue tissues.
Your assumption that it is coming from some internal problem is in contrast with your doctor's assurance that it is not a pathological condition.
Historically for you there are chocolate/coffee/citric triggers & these contact your tongue during ingestion.
Maybe look to a more local response, where those geographic tongue triggers cause an on site reaction that reduces normal fluid circulation.
Sort of an astringent condition, that lasts too long & the tongue progressively dessicates into raw features.
The duration of each episode drags on until fluid circulation gets restored & has enough time to re-hydrate the tongue tissue, which flushes up the contours.
In terms of what to do about the sensitivity to your triggers:
it would be interesting to see if their ingestion accompanied by solid food spares you. In other words not eaten/drunk alone, before or after - but chewed & swallowed with the mastication saliva of your food.
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Hello everyone! I'm so very excited to have finally discovered a remedy for GT! As I described in my previous post, certain foods such as coffee bean oil (in espresso and minimal processing coffees) and chocolate without a doubt bring on my GT. I believe that these foods compromise my immune system's ability to fight certain foreign invaders, particularly fungus on the tongue. How did I come to this conclusion? Because Nystatin Oral Suspension rinse works! It totally caught me by surprise, but in my desperation, I gave it a try. GT (in my case anyway) is a manifestation of a systemic defect. Nystatin takes care of the expression of the symptoms of a systemic problem. I was so focused on fixing the problem from the inside out (Vitamin B12 helped) and missed a huge part of the boat! Since I don't want to stay on Nystatin for the rest of my life, I began researching for mouth rinses that have anti-microbial activity. My adventure lead me to an alcohol free natural mouth rinse that contains herbs. It's called "PerioWash" by Nauture's Answer. I'm so excited about having gotten to the root of this problem. I hope the PerioWash will continue to work for years to come and not result in fungal resistance. I hope my discovery helps all of you as it has helped me. Ask your doctor for a prescription of Nystatin Oral Suspension rinse and see if your problem is a fungal one like mine was! I had read that Nystatin helped other people, but didn't believe and thought it was too far out. I finally experienced it for myself.
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Dear Sissy: Usually the bald patches don't hurt unless they are really raw looking. But they do affect your sense of taste. Obviously if your taste buds are missing you won't be able to taste things there. I have found that Geographic Tongue is generally nutritional in nature so if it is occuring in an infant you probably want to be sure to look at that because it can slow their development. Did you know that most (prehaps as high as 90%)of pregnant women in the US are deficient in folic acid? Which can cause GT. Geographic tongue is a tricky thing and doctors don't show much interest in finding a solution. Hope this helps.
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novice_2009
15 years ago
Suki, I think idiopathic means the dr's don't want to take the time to get to the root of the cause, and there isn't a new drug sample lying around to treat your problem!
We can treat symptoms, or figure out the cause and act accordingly. Don't overreact, trying to name that dx. I agree with goshen, avoid those foods. Much love to you.
peaceone
14 years ago
I think I have the answer ......Sulfite intolerance......which is due to lacking a mineral called Molybdenum. You can contact me if you want more info,,,,I have been trying to solve this problem for eons. nanacer@yahoo.com
edward122
10 years ago
Hey everyone. I just signing in to say that I've seen a HUGE improvement in my geographic tongue ever since quitting soy. I was drinking a lot of soy milk, pretty much 1/2 a litre per day on average. I now suspect that I developed a soy allergy or that the soy interfered with my zinc absorption. If you're getting geographic tongue, I strongly recommend you look at your diet very carefully. Good luck to everyone

Geographic Tongue III

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