I know this is a years old post, but I still want to add my two cents anyway. Just for any future readers, and you if you happen to read this again. First off, I'm so terribly sorry that you had to go through that, and I truly wish that I had been around, with the knowledge that I now have, back then. The VCUG procedure is terrible for both parent and child alike. I had to get VCUGs constantly as I grew up, and I want to say that the trauma a child experiences during them is nothing to glance over. By the time my fifth VCUG came around I literally collapsed on the ground, begging and crying for them to not make me go through it again. Now that I'm older, I'm learning more about what happened. The doctors say no to sedation because young children are at risk of never waking up. Others say that it's because the test won't work properly- it was pointed out to me that children have the potential to pee while their under, effectively ruining the test. But honestly, I say bullsh*t. I would have rather been put under and take the risks full-heartedly, rather than go through what I had to. I felt molested, I was in pain, and I felt betrayed by both the doctors and my parents alike. I still have a hard time trusting doctors and I don't feel like I can talk to my parents about important things anymore. In one of your later posts, you said that your daughter was likely to get over it long before you would. I'm sorry, but you're likely wrong. That event will always stay with her somehow- especially if she remembers it. I had the procedure multiple times, which made it worse for me, mentally, in the long run. I'm oversensitive about my lower body now, and more skittish than I should be. I refuse to use tampons because of what I went through, and intercourse is a never for me. As another person has already mentioned: I'd rather die than go through any similar situations that relate to VCUGs. I've actually developed PTSD because of the trauma- and I'm not the only one. Many people who went through the VCUG procedure as a child have claimed to be traumatized and to have developed depression or PTSD. So if your child does remember her VCUG (ask her)- even if it's just a little bit- I suggest you pay attention to her. Look for signs that the event still lingers as a more negative memory than it should be. Even if nothing is apparently wrong now, keep an eye open. It might take years before any type of mental symptoms show themselves. For me, the most noticeable symptom that can be seen from outside perspective would be my lack of motivation. My school work suffered and I seemed to have no will to do anything with my life. It was first believed that I was just lazy- which made me feel terrible... This can become a severe problem if you don't catch it soon enough. Another thing to look out for is over-discomfort in the doctor or dentists office. Those medical tables/chairs won't look as friendly as they once did. The doctors less so. For me, I'm overly sensitive about getting shots. My distrust about doctors sticking things into me has manifested to such a normal, simple thing that most people get used to. But even now, I feel sick to my stomach when the doctor says I need one. Finally, it's possible that she may outright refuse things like tampons and thoughts of having kids in the future. This is completely normal if she remembers the VCUG. She's likely to never let anything near her lower body ever again because of it. It brings back the negative memories. I refused tampons the moment I learned about them. I managed to avoid them for the longest time, even though everyone thought me silly. (This was before we knew why I hated it.) One day, though, we travelled to Mexico to swim with sea lions in the ocean. Just my luck that my monthly began the day before the trip... When we got there, the plan was to finally get me to use a tampon. My mother took me into the bathroom, and began to explain how it worked. Visualizing it in my head scared the H*ll out of me. I broke down crying when my mom told me that it would hurt a little. To me, a little meant a lot. Thankfully, my aunt had a better solution. (Pad, plus salt water, plus temperature change would slow/stop the flow and dissolve whatever managed to escape.) I still thank her for it whenever it comes up. Anyway, bottom line is, keep an eye out for any mental problems that might show up. Being three, she probably forgot, which will make this post somewhat useless. But it's still good to know, right? Just in case. I wish I could have been here earlier. To tell you that you NEED sedation- and not the extremely light stuff that just makes you drowsy. The procedure is painful- no amount of sugar-coating from the doctors would change that. After the VCUG, when you pee, it BURNS. I've come to say that, "It burned as if I was peeing out the fires of H*ll..." And it continues to feel like that for a few hours to a few days. And again, it can be mentally scarring. I'm glad that your daughter didn't have anything wrong with her, and I'm ever so relieved that she at least didn't have to go through more than one. I hope you're both healthy and happy right now, and living your lives to the fullest. (Sorry, this is long...)

Martinca; who else in your family has joint pain? What I pasted in below is the 1st sign that this will probably be life long. I'm not sure they will get a good handle on it. Hyper-mobility of the joints is called EDS- Ehlers Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. Ehlers-Danlos Syndrome (EDS) is a group of inherited disorders that affect connective tissue. Take a look at the link below; it opens the direct PDF location; you can either open or save it. Back around May; I made a post about Chiari Malformation for a friend. One of the gals here mentioned that she has EDS & little did I know that this would smack me in the face in another 6 weeks after my post. I had no clue what EDS even was; but I'm learning a lot & it's why I haven't been around much the last few months. My daughter has been majorly suffering for 3 years; guess what? Her mystery diagnosis will most likely be EDS. We saw the 1st neuro yesterday; have to find a geneticist probably endocrinologist & rheumatologist. People can live with varying degrees of EDS; some may never know they have it while others are wrongly diagnosed with fibromyalgia. Still others will be fine until like your grand daughter; injure themselves & do not heal right. There is no "test" to confirm EDS; from what I understand it goes off of symptoms which are many. How are her teeth? Please be careful with braces; from what I'm reading they actually weaken teeth- which fits in with my daughter & how her teeth are breaking at the gum. Another issue is she may not be able to be put down for surgeries. My daughter had a molar pulled a few weeks ago; they couldn't get the IV meds to knock her out. Back to her ankle; from what I do understand; the right physical therapist; possibly chiro may be able to work with her to strengthen it. I dislike the word cured because from what I'm reading with others diagnosed; she's going to have to keep working at it but with the correctly trained people. Send me an email; I'll get you set up at a decent facebook group. Inspire also has an EDS board. she is 13. She's had X-rays and MRI . We 've been told she has hyper- mobility of the ankle caused by weak ligaments , and perhaps exacerbated by an injury( sprain). Two months of pt and home exercises only caused more pain and no improvement. Here is a link that might be useful: So You Think You Might Have EDS?

add me to the list of well-wishers!! so sorry to hear all u are going thru, its very exhausting, mentally and physically., so take of yourself so u can take care of everyone else!! a friend of mine, her son of 19, had a stroke out of the blue...they still have no real reason for it. he was in a major hospital in the city (PA). he recovered 100%, was very lucky!!!!!!! he will be monitored the rest of his life. it really can happen at any time to anyone for any reason.... so whoever said up-thread, Health is Wealth, is very smart indeed. we always say "if u have your health, you have it all".... annie1992, my thoughts and prayers are with u and all your family, all the best!!! always love reading your posts, BTW :)

It’s a little of both Chisue. Our Oncologist(s) have all told us that there have been many many new medications to help control MM. And while the number of younger people getting the disease has increased, the remissions are lasting longer and longer as well. DH was 48 when he was diagnosed and has been in remission for 6.5 years. At that time the average remission was 3-5. They are even starting to think of it as a long term chronic illness as opposed to “cancer”. But here’s the thing, if you haven’t already, now would be a good time to evaluate your diet and shift your dietary thinking from just “healthy” to “healthy and immune building”. It’s crucial because even though the maintenance drug you will be taking is low dose, it’s still going to quash your immune system which can and will make you more vulnerable to other illness. Having a diet that focuses on immune support really does help. Another thing you can do to help your body is to switch to a vegitarian diet. Animal protein can be hard on the kidneys. Switching to a plant based protein instead will keep them healthy too. Foods like Garlic, Beans, Onions, Mushrooms, Berries and seeds or more commonly known as G-Bombs are all immune builders. Avoid Dairy products that are animal based as well as foods with sugar, yeast, or fructose syrup in them. If you do a search for G-Bomb foods you will find more information on it. It works.