Topamax was what my dr. wanted to put me on, it's dangerous Actually for epileptic seizures. I told him after they took MIdrin off the market(compounding pharmacies will sometimes make it) I wanted to try what 100 hrs of research on Internet told me. Children can not be given Imitrex as too dangerous so they have found that they can give even a 3 month old baby an herb from Germany called Butterbur, it has to be purified or could cause problems but my dr. didn't think much of it but I've gone to him for almost 40 yrs so he said he would look into it. He called back that night & said he had also found 3 more very reputable studies & recommended by American Pediatric & Surgeons Academy& said yes by all means try it & see how it works. It is supposed to take 3 mos to work. 1 week later I noticed when I put lotion on my hands that they weren't sore as usual(broke wrist while back) that was nice but didn't think it was helping with headaches but gradually I was able to reduce prescription med. So went from 8 Midrin(generic) down to about 4 a day & as summer came I could tolerate a little AC. still allergic to any kind of smoke, cigarette,BBQ, forest fire, they still messed over me good. But after being on butterbur for 2 yrs & 3 mos I sometimes don't need any to get through the day, if humid or in AC 1 or 2. Strange thing too, my hair as kid gave me headaches as so thick, I wore 3 ponytails 1 under the other to ease headaches, Often had stomach aches, but just thought it was sick mom, taking care of 4 little bros. etc. Didn't know anyone if family had migraines until went to specialist ,several actually & then found out 3 cousins on dad's side ,his 3 sisters, & his mom all had them. Was told to avoid all the triggers I could & I was like "bubble boy"(wonder if he ever got out of that thing) I could not figure out why when 100 degrees out I would be down flat sick for 2 days or more. Finally I heard same thing on news often enough that it rang a bell- strong winds coming up coast of Mexico expected to move on out towards Hawaii by later today- UH! Why am I sick every time storm off coast of CA. Nobody recognized that weather & barometric changes could make you sick. I kept insisting to point I would tell dr. storm was coming even before news reported it ,I told friends it was going to rain or get windy & they laughed & then came back & said" How did you know" So even with keeping track of what you eat staying away from nitrates,msg,bananas, all the things, there are unseen things like smoke or chemicals or weather changes that some of us can't deal with without getting migraine. Interesting that 3 mo. old baby has migraines(guess it's not imaginary as child too young to dream a migraine up- they can tell from MRI) So if you look up Butterbur get it at Whole Foods grocery by co. called Solaray out of Park City Utah. Health food stores didn't have it except mixed with feverfew(allergic to that) & I don't want any more junk in my body than I have to have to feell good. Oh, about the hair, got really thin with all the medicine, well about 3 mos ago I noticed I had hair flying around all over & everybody said, wow, your hair is getting long around your face(rest in bun) so I am getting more hair in on my head. What butterbur does is stabilize blood vessels so they don't go up & down all day & clears a lot of inflammation out of them. My sore veins from broken wrist no longer hurting showed me that it was actually working some after 1 week. It smells like a weed even through the clear capsule & comes in 50 mg ones. Take 3-4 a day I take with meals & it doesn't not react with anything else medicines or foods. Outside of adjusting to smell it's terrific. I'm about 80 % better than I was 2 yrs ago & I have been through so much stress with sick & dying parents, hospitals, rehab, etc Had I not started butterbur I would not have been able to care for my dad & now my mom. I've had 2 headaches bad enough to put me in bed for hours since 1st of year. Back then it would have been 2 times a week! It is reasonably priced also. Bottle of 60 last 20 days for little under $20. Since I don't use much prescription drug I get to keep all that money that went for it. I did see big bottles by this company on Dr. OZ 1 day & so probably easier to find it. Check it out yourself & if you have a child with migraines this is what they need to take & not bunch of prescriptions(will need them for awhile until this herb gets working in their system)

Thanks for posting this. My cousin was diagnosed with this at the age of 49. She had successful surgery, which prevented any further nerve damage. But the surgery and the untreated CM have left her in a considerable amount of constant pain in her neck, and limited range of movement in one arm. Apparently, once she learned what the symptoms are, she'd been having very specific symptoms for over 10 years, and she'd been having "migraines" most of her life. And her father is a neurologist.

I firmly believe that people who suffer chronically and don't help themselves, do it because on a psychological level they benefit from it. It's an excuse for them not to achieve, it avoids responsibility, or it reinforces their sense that they don't deserve better...it's a way of getting attention, or hanging on to those you fear you might otherwise lose. There are a myriad of reasons why. Many of those reasons can occur at an unconscious level. Only by doing the work of probing and understanding our past and our thinking can we understand and unwind the path that lead us to where we are today. We had an aunt who was always miserable. All she ever did was complain. My Mom used to ask me why if she is so unhappy doesn't she do something to fix it...and I would respond because Auntie is never so happy as she is when she's unhappy. She never thought she'd get attention if she was happy, but by being miserable, she garnered attention and support. She fulfilled the role that she believed was hers. I heard this talk on meditation by a chiropractor/yoga instructor/etc. He told the story of one patient who had a chronic shoulder problem. She been to doctors and chiropractors and nothing seemed to help. So he asked her to tell him her story. Turns out that she sat next to her father at the dinner table who was an angry man and who would often reach out and strike her where she sat. To protect herself, she got in the habit of hunching that shoulder. Only by telling him, did she make the connection between what was necessary back then, what is no longer necessary now and how to solve the problem....by understanding and then letting go of the past.

Thank you everyone for sharing their ideas and comments....it really has given me thoughts to think about......as an update .....I was scheduled for a nerve block today so I spoke to my doctor about my fears. She was terrific. She explained why the specific things that I am afraid of might happen ...and I know she's telling me the exact reason because I researched it. She also told me that she is an "approved" doctor by the manufacturer of Botox ... Allergan....told me specific sites to look at....but she told me she understands my fears and it's totally up to me.....she will honor whatever I want.....she just wants me to feel better❤️ So today I had a bupivacaine nerve block ....injections into my forehead only, since she didn't want to overwhelm me, and because that is where my pain mostly always is, behind my eyes. There were little stabs, no big deal, and then some stinging with the anesthetic being injected.....not a big deal either compared with a migraine....in my opinion. My head already feels lighter!! It's amazing what it feels like to NOT have a headache....I don't think I know the feeling:). Each person responds differently to these nerve blocks regarding how long they last but I am thinking positively:).